Specifically Named Diseases organizations account for 930 organizations in the United States. In aggregate, these organizations generate $951m in revenue and employ 4.4k individuals.
930
Active Organizations
$951.4 Million
Annual Revenue
4 Thousand
Employees in Sector
$1.7 Billion
Controlled Assets
Rockville, MD
Assets: $1m
Revenue: $3m
Employees: 8
MISSION:
THE ASSOCIATION OF IMMUNIZATION MANAGERS AIM WAS CREATED IN 1999 TO ENABLE IMMUNIZATION MANAGERS TO WORK TOGETHER TO EFFECTIVELY PREVENT AND CONTROL VACCINE-PREVENTABLE DISEASES AND IMPROVE IMMUNIZATION COVERAGE IN THE UNITED STATES AND ITS TERRITORIES.
Bingham Farms, MI
Assets: $1m
Revenue: $2m
Employees: 8
MISSION:
THE PINK FUND PROVIDES FINANCIAL ASSISTANCE TO BREAST CANCER PATIENTS
Leander, TX
Assets: $1m
Revenue: $735k
MISSION:
TO SUPPORT FAMILIES OF CHILDREN WITH AUTISM WHO ARE IN NEED OF, BUT CANNOT AFFORD, CRITICAL THERAPEUTIC SERVICES.
Newbury, OH
Assets: $1m
Revenue: $595k
Employees: 56
MISSION:
OPERATING A SUMMER RESIDENTIAL AND DAY CAMP FOR CHILDREN WITH (CONTINUED ON SCHEDULE O)CHRONIC ILLNESS, MOST COMMONLY TYPE 1 DIABETES.
Cary, NC
Assets: $1m
Revenue: $679k
MISSION:
THE HIDRADENITIS SUPPURATIVA FOUNDATION (HSF) IS A NONPROFIT PUBLIC BENEFIT CORPORATION DEDICATED TO IMPROVING THE QUALITY OF LIFE AND QUALITY OF CARE FOR INDIVIDUALS AND FAMILIES AFFECTED BY HIDRADENITIS SUPPURATIVA (HS). THE HSF FOSTERS AND ENCOURAGES WORLDWIDE RESEARCH BY DEVELOPING AND SUPPORTING AN INTERDISCIPLINARY FAMILY OF SCIENTISTS AND PHYSICIANS DEVOTED TO STUDYING THE MOLECULAR AND CELLULAR BASIS OF HS, IN ORDER TO DEVELOP AND DELIVER MORE EFFECTIVE FORMS OF TREATMENT AND PREVENTATIVE MEASURES FOR THOSE WITH THIS DEBILITATING AND EMINENTLY CHRONIC DISEASE.
Charlottesville, VA
Assets: $1m
Revenue: $1m
Employees: 6
MISSION:
THE MISSION OF ANGIOMA ALLIANCE IS TO INFORM AND SUPPORT INDIVIDUALS AFFECTED BY CEREBRAL CAVERNOUS MALFORMATIONS WHILE FACILITATING IMPROVED DIAGNOSIS AND MANAGEMENT OF THE ILLNESS THROUGH EDUCATION & SUPPORT. THE ORGANIZATION ALSO PROMOTES RESEARCH INTO A CURE AND PREVENTION OF THE DISEASE.
Dallas, TX
Assets: $1m
Revenue: $233k
MISSION:
The goal of this organization is to assist in the prevention or treatment of specifically named diseases and conditions. Use this code for named diseases not specified below.
Roselle, NJ
Assets: $1m
Revenue: $5m
Employees: 80
MISSION:
PREVENTION LINKS' MISSION IS TO FOSTER, HEALTHY, SUSTAINABLE COMMUNITIES BY EMPOWERING PEOPLE THROUGH EDUCATION, COLLABORATION AND LINKAGES TO RESOURCES. PREVENTION LINKS TAKES A LEADERSHIP ROLE IN THE PREVENTION OF DRUGS, ALCOHOL, TOBACCO AND RELATED ISSUES. WITH COMMUNITY BEING DEFINED AS ANY ENVIRONMENT WHERE PEOPLE LIVE, WORK, OR LEARN, THE GOAL OF PREVENTION LINKS IS TO PULL TOGETHER ALL AVAILABLE RESOURCES TO ELIMINATE THE DELETERIOUS EFFECTS OF DRUGS, ALCOHOL, VIOLENCE, AND INADEQUATE EDUCATIONAL AND HEALTH INSTITUTIONS IN OUR COMMUNITIES.
Syracuse, NY
Assets: $1m
Revenue: $2m
Employees: 45
MISSION:
THIS ORGANIZATION IS A MULTI PURPOSE CORPORATION SERVING INDIVIDUALS AND FAMILIES IN THE GREATER SYRACUSE AREA. IT PROVIDES SEVERAL TYPES OF SERVICES FOR THE LEARNING DISABLED TO PROMOTE THE GENERAL WELFARE OF LEARNING DISABLED, THEIR FAMILIES AND THOSE PROFESSIONALS WHO WORK WITH THEM.
New York, NY
Assets: $1m
Revenue: $201k
MISSION:
The goal of this organization is to assist in the prevention or treatment of specifically named diseases and conditions. Use this code for named diseases not specified below.
Huntigdon Vly, PA
Assets: $1m
Revenue: $13k
MISSION:
THE MISSION IS TO PROVIDE DIABETES EDUCATION TO MEDICALLY UNDERSERVED PEOPLE
Atlanta, GA
Assets: $1m
Revenue: $311k
Employees: 5
MISSION:
TO PROMOTE COMMUNITY AWARENESS AND HEALTHY LIVING TO PREVENT AND AND MANAGE DIABETES THROUGH INNOVATIVE COMMUNITY PROGRAMS.
Latham, NY
Assets: $1m
Revenue: $620k
Employees: 5
MISSION:
PROVIDE SUPPORT AND INFORMATIONAL RESOURCES FOR INDIVIDUALS AFFECTED BY HEMANGIOMAS, PORT WINE STAINS AND OTHER VASCULAR BIRTHMARKS AND TUMORS, AND SPONSORED RELEVANT RESEARCH
Middleton, MA
Assets: $1m
Revenue: $461k
MISSION:
TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY ("ALD") BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION
Lexington, KY
Assets: $981k
Revenue: $160k
MISSION:
TO PROMOTE RESEARCH AND EDUCATION IN THE FIELD OF ENDOCRINE SURGERY, TO ADVANCE THE SCIENCE AND ART OF ENDOCRINE SURGERY AND TO MAINTAIN THE HIGHEST STANDARDS IN CLINICAL PRACTICE.
New York, NY
Assets: $969k
Revenue: $575k
Employees: 2
MISSION:
PROJECT LYME'S MISSION IS TO ERADICATE THE EPIDEMIC OF LYME DISEASE AND OTHER TICK-BORNE ILLNESSES BY SPREADING AWARENESS, PROVIDING EDUCATIONAL RESOURCES, FUNDING PEER-REVIEWED RESEARCH, AND SUPPORTING ADVOCACY FOR SOLUTIONS TO END THE SUFFERING. SINCE 2016, PROJECT LYME HAS CHALLENGED MISINFORMATION ABOUT DIAGNOSIS AND TREATMENT, ADVOCATED FOR PATIENTS' RIGHTS, AND BUILT A COMMUNITY FOR LYME PATIENTS AS WELL AS THEIR LOVED ONES.
Santa Fe, NM
Assets: $967k
Revenue: $158k
Employees: 1
MISSION:
OUR MISSION IS TO PROVIDE AND MAINTAIN A MULTI-USE COMMUNITY CENTER THAT PROMOTES ACTIVITIES AND EVENTS FOCUSING ON MENTAL, SPIRITUAL AND PHYSICAL RECOVERY. WE PROVIDE AN INVITING, SUPPORTIVE ENVIRONMENT WHERE PEOPLE IN RECOVERY CAN HEAL AND HELP ONE ANOTHER.
Raleigh, NC
Assets: $953k
Revenue: $466k
Employees: 3
MISSION:
TO IMPROVE THE HEALTH AND QUALITY OF LIFE OF WOMEN WITH AND AT RISK OF DEVELOPING DIABETES.
Needham, MA
Assets: $922k
Revenue: $98
MISSION:
IS ORGANIZED & OPERATED TO PROMOTE PUBLIC HEALTH THROUGH THE FURTHERANCE OF RESEARCH RELATING TO THE CAUSES TREATMENTS AND POSSIBLE CURES FOR MYELOMA & RELATED CONDITIONS.THIS IS ACCOMPLISED PRIMARILY BY SUPPORTING WORLDWIDE RESEARCH INITIATIVES,THE SHARING OF INFORMATION & PROMOTING COLLABORATION BETWEEN RESEARCHERS & PRACTITIONERS.
Novi, MI
Assets: $896k
Revenue: $398k
Employees: 3
MISSION:
TO IMPROVE THE QUALITY OF LIFE TODAY FOR PEOPLE AFFECTED BY MITOCHONDRIAL DISEASE THROUGH SUPPORT, EDUCATION, EMPOWERMENT, AND ADVOCACY INITIATIVES AND TO ENGAGE THE COMMUNITY FOR BETTER CARE AND AWARENESS ABOUT THE DISEASE.