Prader-Willi California Foundation
- Assets
- $859.2k
- Revenue
- $192.8k
- Investments
- $0.0
- Employees
- 3
- Location
- San Diego, CA
- Founding
- 08/1980
- Data as of
- 12/2021
- EIN
- 95-3480752
Organization Overview
Prader-Willi California Foundation is located in San Diego, CA. The organization was established in 1980. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Prader-Willi California Foundation employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Prader-Willi California Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Prader-Willi California Foundation generated $192.8k in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (2.4%) each year. All expenses for the organization totaled $150.0k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (9.0%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE INDIVIDUALS WITH PRADER-WILLI SYNDROME, THEIR FAMILIES, AND PROFESSIONALS WITH A STATE NETWORK OF INFORMATION, ADVOCACY AND SUPPORT SERVICES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
SUPPORT & ADVOCACY PROGRAMS PWCF PROVIDED QUARTERLY SUPPORT GROUP MEETINGS FOR PARENTS, AND ONLINE SUPPORT MEETINGS FOR PEOPLE WITH PWS. SUPPORTED THREE PWS CLINICS THROUGHOUT THE STATE TREATING HUNDREDS OF CHILDREN AND ADULTS WITH PWS. PWCF FACILITATED SUPPORT GROUPS, WROTE LETTERS OF ADVOCACY, AND ACCOMPANIED PARENTS AND FAMILY MEMBERS TO SCHOOL MEETINGS, REGIONAL CENTER MEETINGS, AND HEARINGS. EACH OF THESE PROGRAMS SERVED TO PROVIDE FAMILIES WITH NETWORKING AND SUPPORT OPPORTUNITIES SO THEY FEEL LESS ISOLATED AND MORE CONNECTED WITH OTHER PWS FAMILIES AND PROFESSIONALS. PWCF PROVIDED SUPPORT TO FAMILIES DURING COVID, MAKING SURE THEY WERE AWARE OF HEALTH UPDATES, AND VACCINATION ACCESS.PWCF ALSO SIGNIFICANTLY REVAMPED ITS WEBSITE TO ENHANCE FUNCTIONALITY AND PROVIDE THE MOST UP TO DATE RESOURCES TO ITS MEMBERS AND THE COMMUNITY.
AWARENESS PROGRAMS - PRADER-WILLI CALIFORNIA FOUNDATION HELD NUMEROUS EVENTS TO RAISE THE PUBLIC'S AWARENESS OF PWS INCLUDING: A STATEWIDE VIRTUAL WALKATHON EVENT THAT WAS LIVESTREAMED; PRODUCING AN ANNUAL HOLIDAY GREETING CONTAINING INFORMATION ABOUT PWS.
EDUCATIONAL PROGRAMS - PWCF HELD OUR ANNUAL STATE CONFERENCE AND PROVIDED CRITICAL EDUCATION TO PARENTS, TEACHERS, PHYSICIANS, AND OTHER PROFESSIONAL CARE PROVIDERS. WE PRODUCED A PWS BEHAVIOR MANAGEMENT TRAINING SERIES, PROVIDED DOZENS OF EDUCATIONAL IN-SERVICE TRAINING SESSIONS TO SCHOOLS, FAMILIES, PROFESSIONAL PROVIDERS, AND ADULT RESIDENTIAL FACILITIES PROVIDERS THROUGHOUT CALIFORNIA. PWCF ALSO HELD WEBINARS ON NUTRITION,IEP TRAINING,AND FINANICAL PLANNING TO PROVIDE ADDITIONAL SUPPORT TO MEMBERS. PWCF PRODUCED A MONTLHY ENEWS AND FOUR QUARTERLY NEWSLETTERS THAT CONTAINED EDUCATIONAL ARTICLES, RESEARCH STUDIES AND SUBJECT RECRUITMENT OPPORTUNITIES, SUPPORT OPPORTUNITIES, AND OTHER VALUABLE INFORMATION. WE DISTRIBUTED EDUCATIONAL DVDS, BOOKS, AND OTHER EDUCATIONAL MATERIALS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Emily Dame Executive Dir. | Officer | 40 | $33,058 |
Diane Kavrell President | OfficerTrustee | 11.54 | $4,200 |
Nisha Mehta Treasurer | OfficerTrustee | 3.85 | $0 |
Wendy Young Vice President | OfficerTrustee | 3.85 | $0 |
Jennifer Paige Secretary | OfficerTrustee | 4.81 | $0 |
Daniela Rubin PHD Director | Trustee | 3.85 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $10,542 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $33,856 |
| All other contributions, gifts, grants, and similar amounts not included above | $90,526 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $134,924 |
| Total Program Service Revenue | $23,157 |
| Investment income | $15,362 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $18,856 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $454 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $192,753 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $6,933 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $37,258 |
| Compensation of current officers, directors, key employees. | $9,314 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $27,340 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $6,070 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $5,425 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $8,938 |
| Fees for services: Other | $8,450 |
| Advertising and promotion | $0 |
| Office expenses | $33,556 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $7,200 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,481 |
| All other expenses | $0 |
| Total functional expenses | $149,991 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $67,649 |
| Savings and temporary cash investments | $61,969 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $2,564 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $725,645 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,400 |
| Total assets | $859,227 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $720 |
| Total liabilities | $720 |
| Net assets without donor restrictions | $858,507 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $859,227 |
Grants Awarded
Over the last fiscal year, Prader-Willi California Foundation has awarded $28,349 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Irvine, CA PURPOSE: SUPPORT CLINIC | $10,349 |
Sarasota, FL PURPOSE: SUPPORT MEDICATION RESEARCH | $10,000 |
San Diego, CA PURPOSE: SUPPORT CLINIC | $8,000 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Prader-Willi California Foundation has recieved totaling $38,570.
| Awarding Organization | Amount |
|---|---|
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $36,839 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,731 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Global Genes Aliso Viejo, CA | $3,315,841 | $5,883,997 |
John Wayne Cancer Foundation Costa Mesa, CA | $19,544,868 | $1,886,224 |
The Familial Hypercholesterolemia Foundation Pasadena, CA | $6,401,928 | $4,759,952 |
Jessie Rees Foundation Rancho Santa Margarita, CA | $2,318,669 | $3,496,521 |
Hello Housing San Anselmo, CA | $571,806 | $2,684,046 |
The Neuromuscular Disease Foundation Beverly Hills, CA | $2,223,549 | $438,953 |
Emilio Nares Foundation San Diego, CA | $1,042,923 | $1,340,458 |
Gamechanger Charity Rancho Mission Viejo, CA | $66,864 | $595,676 |
Diabetes Research Connection Del Mar, CA | $1,933,836 | $804,111 |
Pedal The Cause - San Diego San Diego, CA | $880,045 | $1,362,913 |
Hay Foundation Carlsbad, CA | $5,847,331 | $539,117 |
The Baker Institute For Children With Hearing Loss Hanover St Palo Alto, CA | $2,973,416 | $691,906 |