National Alopecia Areata Foundation

Organization Overview

National Alopecia Areata Foundation is located in San Rafael, CA. The organization was established in 1982. As of 12/2022, National Alopecia Areata Foundation employed 10 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Alopecia Areata Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2022, National Alopecia Areata Foundation generated $2.4m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.7% each year. All expenses for the organization totaled $2.4m during the year ending 12/2022. While expenses have increased by 1.3% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2020, National Alopecia Areata Foundation has awarded 29 individual grants totaling $1,301,905. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

PROVIDE EDUCATION & SUPPORT FOR PERSONS AFFLICATED WITH ALOPECIA AREATA; FUND RESEARCH REGARDING CAUSES AND TREATMENT OF ALOPECIA AREATA.

Describe the Organization's Program Activity:

Part 3 - Line 4a

AWARENESS AND SUPPORT - PROVIDED EMOTIONAL SUPPORT AND MEDICAL UPDATES FOR PERSONS SUFFERING FROM ALOPECIA AREATA. SERVICES PROVIDED INCLUDE NEWSLETTERS, VIDEO & AUDIO TAPES, WORKSHOPS AND BROCHURES. SPONSORED ANNUAL PATIENT CONFERENCE WHICH FEATURED SUPPORT SESSIONS AND WHICH WAS ATTENDED BY PERSONS FROM THE US AND OTHER COUNTRIES. ASCOT FUND PROGRAM PROVIDED HAIR PIECES FOR THOSE WHO CANNOT AFFORD ONE. FULFILLED INFORMATION REQUESTS FROM MORE THAN 10,000 PEOPLE HELD AWARENESS EVENTS AT MAJOR AND MINOR LEAGUE BALL PARKS TO RAISE AWARENESS OF ALOPECIA AREATA. FUNDED MEDICAL RESEARCH REGARDING CAUSES AND TREATMENT OF ALOPECIA AREATA. CONTINUED DEVELOPMENT OF ALOPECIA AREATA TREATMENT DEVELOPMENT PROGRAM.


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Board, Officers & Key Employees

Name (title)Compensation
Nicole Friedland
President & CEO
$215,000
Jeanne Rappoport
Chief Administrative Officer
$137,400
Laura Maciag
Chief Operating Officer
$120,937
Ann Hollins
Chair
$0
Bonnie Chong
Vice Chair
$0
Jim Oconnell
Chief Financial Officer
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$46,622
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$2,036,555
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$2,083,177
Total Program Service Revenue$112,939
Investment income -$79,331
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $281,137
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $2,397,922

Grants Awarded

Over the last fiscal year, National Alopecia Areata Foundation has awarded $186,429 in support to 3 organizations.

Grant RecipientAmount

CERNER ENVIZA LLC

PURPOSE: Research

$145,000

TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK

Org PageRecipient Profile

New York, NY

PURPOSE: Research

$21,429

UNIVERSITY OF MIAMI

Org PageRecipient Profile

Coral Gables, FL

PURPOSE: Research

$20,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 1 grants that National Alopecia Areata Foundation has recieved totaling $500.

Awarding OrganizationAmount
Robert J & Frances V Lawrence Foundation Inc

Frederick, MD

PURPOSE: CONTRIBUTION

$500
View Grant Recipient Profile

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