National Alopecia Areata Foundation
- Assets
- $3.5m
- Revenue
- $3.6m
- Investments
- $0.0
- Employees
- 11
- Location
- San Rafael, CA
- Founding
- 04/1982
- Data as of
- 12/2023
- EIN
- 94-2780249
Organization Overview
National Alopecia Areata Foundation is located in San Rafael, CA. The organization was established in 1982. As of 12/2023, National Alopecia Areata Foundation employed 11 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Alopecia Areata Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, National Alopecia Areata Foundation generated $3.6m in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 14.2% each year . All expenses for the organization totaled $2.5m during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Since 2020, National Alopecia Areata Foundation has awarded 25 individual grants totaling $1,053,085. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
PROVIDE EDUCATION & SUPPORT FOR PERSONS AFFLICATED WITH ALOPECIA AREATA; FUND RESEARCH REGARDING CAUSES AND TREATMENT OF ALOPECIA AREATA.
Describe the Organization's Program Activity:
Part 3 - Line 4a
AWARENESS AND SUPPORT - PROVIDED EMOTIONAL SUPPORT AND MEDICAL UPDATES FOR PERSONS SUFFERING FROM ALOPECIA AREATA. SERVICES PROVIDED INCLUDE NEWSLETTERS, VIDEO & AUDIO TAPES, WORKSHOPS AND BROCHURES. SPONSORED ANNUAL PATIENT CONFERENCE WHICH FEATURED SUPPORT SESSIONS AND WHICH WAS ATTENDED BY PERSONS FROM THE US AND OTHER COUNTRIES. ASCOT FUND PROGRAM PROVIDED HAIR PIECES FOR THOSE WHO CANNOT AFFORD ONE. FULFILLED INFORMATION REQUESTS FROM MORE THAN 10,000 PEOPLE HELD AWARENESS EVENTS AT MAJOR AND MINOR LEAGUE BALL PARKS TO RAISE AWARENESS OF ALOPECIA AREATA. FUNDED MEDICAL RESEARCH REGARDING CAUSES AND TREATMENT OF ALOPECIA AREATA. CONTINUED DEVELOPMENT OF ALOPECIA AREATA TREATMENT DEVELOPMENT PROGRAM.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Ann Hollins Chair | OfficerTrustee | 4 | $0 |
Bonnie Chong Vice Chair | OfficerTrustee | 4 | $0 |
Jonelle Massey Director | Trustee | 2 | $0 |
Wendy Yu Director | Trustee | 2 | $0 |
Jim Oconnell Chief Financial Officer | OfficerTrustee | 4 | $0 |
Ann S Hedges Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,699,475 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,699,475 |
| Total Program Service Revenue | $256,841 |
| Investment income | $146,088 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $510,946 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,613,350 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $175,339 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $831,315 |
| Compensation of current officers, directors, key employees. | $41,565 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $389,819 |
| Pension plan accruals and contributions | $127,358 |
| Other employee benefits | $126,498 |
| Payroll taxes | $84,033 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $2,864 |
| Fees for services: Accounting | $40,840 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $114,749 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $84,638 |
| Travel | $122,400 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $160,633 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $19,037 |
| All other expenses | $190,788 |
| Total functional expenses | $2,545,046 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,119,503 |
| Savings and temporary cash investments | $1,642,234 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $30,974 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $620,904 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $76,045 |
| Total assets | $3,489,660 |
| Accounts payable and accrued expenses | $91,471 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $79,016 |
| Total liabilities | $170,487 |
| Net assets without donor restrictions | $2,935,664 |
| Net assets with donor restrictions | $383,509 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,489,660 |
Grants Awarded
Over the last fiscal year, National Alopecia Areata Foundation has awarded $147,728 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
CERNER ENVIZA LLC PURPOSE: Research | $60,000 |
UNIVERSITY OF MIAMI PURPOSE: Research | $20,000 |
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI PURPOSE: Research | $43,000 |
PEDRA PURPOSE: Research | $24,728 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Olive View Ucla Education And Research Institute Inc Sylmar, CA | $13,925,204 | $14,010,014 |
Tower Cancer Research Foundation Beverly Hills, CA | $3,927,785 | $2,539,108 |
National Alopecia Areata Foundation San Rafael, CA | $3,489,660 | $3,613,350 |
Hawaii Hospital Education And Research Foundation Honolulu, HI | $2,011,127 | $2,796,667 |
Straub Foundation Honolulu, HI | $26,564,863 | $14,587,144 |
East Bay Institute For Research And Education Inc Rancho Cordova, CA | $1,080,729 | $1,603,332 |
California Institute For Medical Research San Jose, CA | $1,101,764 | $615,358 |
Alzheimers Research And Prevention Foundation Tucson, AZ | $2,675,186 | $565,965 |
Harvey Bassett Clarke Foundation Palo Alto, CA | $209,987 | $200,500 |
Maricopa Medical Foundation Phoenix, AZ | $386,122 | $0 |
Sherman Oaks Orthopaedic Research Foundation Inc Sherman Oaks, CA | $108,764 | $0 |
Los Angeles Biomedical Research Foundation At Harbor Ucla Medical Torrance, CA | $8,765 | $0 |