Hunters Cmt4b3 Research Foundation Inc is located in Scarsdale, NY. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hunters Cmt4b3 Research Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Hunters Cmt4b3 Research Foundation Inc generated $352.7k in total revenue. This organization has experienced exceptional growth, as over the past 3 years, it has increased revenue by an average of 46.9% each year . All expenses for the organization totaled $306.3k during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO FUND SCIENTIFIC RESEARCH LEADING TO THE DISCOVERY, DEVELOPMENT AND CLINICAL APPLICATIONS FOR THERAPEUTIC TREATMENTS AND CURES FOR CHARCOT-MARIE-TOOTH DISEASE TYPE 4B3 (CMT 4B3), AND TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE WITH CMT4B3.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CMT4B3 AWARDS RESEARCH FELLOWSHIP AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DISEASE TYPE 4B3. IT ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING AND ITS SCIENTIFIC ADVISORY BOARD TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF ITS SCIENTIFIC ADVISORY BOARD TO CAREFULLY OVERSEE AND REVIEW THE SELECTION OF THE RECIPIENTS OF THE RESEARCH FUNDING. THE SAB EVALUATES EACH PROPOSAL BASED ON THE EXCELLENCE OF THE INVESTIGATOR, THE WORK PLAN AND THE PROPOSALS' ABILITY TO BE TRANSLATED INTO TREATMENTS FOR PEOPLE WITH CMT4B3. APPLICATIONS ARE REVIEWED ON A ROLLING BASIS. THE LAW FIRM OF KATTEN MUCHIN ROSENMAN, LLP WRITES THE GRANT AGREEMENT CONTRACTS WITH THESE RESEARCHERS, UNIVERSITIES, OR ACADEMIC INSTITUTIONS.THE BOARD MEMBERS, IRIS SCHULTZ AND ROBIN SCHULTZ, ATTEND THE YEARLY MEETING OF THE PERIPHERAL NERVE SOCIETY. ALL EXPENSES RELATED TO ATTENDING THE CONFERNCE ARE PERSONALLY COVERED BY THE BOARD MEMBERS. CMT4B3 IS LISTED AS A PATIENT RESOURCE OF THE PNS. ATTENDANCE AT THE PNS GIVES BOARD MEMBERS THE ABILITY TO MEET WITH AND EXCHANGE IDEAS WITH INTERNATIONAL RESERACHERS OF CMT AND CMT4B3.CMT4B3 MAINTAINS A WEBSITE FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO ASSIST IN UNDERSTANDING AND TREATING CHARCOT-MARIE-TOOTH DISEASE TYPE 4B3. THE WEBSITE CONTAINS LINKS TO OUR RESEARCH PROJECTS, A NEW PATIENT PORTAL TO JOIN OUR NEUROGENETICS REGISTRY AND THE ABILITY TO JOIN OUR NATURAL HISTORY STUDIES. CMT4B3 PRODUCES EDUCATIONAL MATERIALS DISSEMINATED AT CONFERENCES AND AT PUBLIC EVENTS TO RAISE AWARENESS. CMT4B3 MAINTAINS CLIENT MANAGEMENT SOFTWARE. IT RETAINS ACCOUNTING SERVICES. CMT4B3 FOUNDATION IS COMPOSED OF VOLUNTEERS WHO WORK FROM HOME AND DO NOT TAKE ANY SALARIES.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Iris Schultz President | Officer | 45 | $0 |
Brett Schultz Vice President | Officer | 5 | $0 |
Robin Schultz Treasurer | Officer | 45 | $0 |
Amy C Schwartz Director | Trustee | 1 | $0 |
Mandeep Kaur Chohan Director | Trustee | 0.5 | $0 |
Lianne C Cappo Director | Trustee | 0.5 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $0 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $348,400 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $348,400 |
Total Program Service Revenue | $0 |
Investment income | $4,265 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $352,665 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $235,417 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $24,846 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $0 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $0 |
Fees for services: Management | $2,152 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $8,608 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $0 |
Advertising and promotion | $6,028 |
Office expenses | $10,187 |
Information technology | $0 |
Royalties | $0 |
Occupancy | $0 |
Travel | $4,552 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $850 |
All other expenses | $540 |
Total functional expenses | $306,267 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $209,913 |
Savings and temporary cash investments | $451,090 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $5,000 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $26,723 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $692,726 |
Accounts payable and accrued expenses | $19,202 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $19,202 |
Net assets without donor restrictions | $673,524 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $692,726 |
Over the last fiscal year, Hunters Cmt4b3 Research Foundation Inc has awarded $235,417 in support to 5 organizations.
Grant Recipient | Amount |
---|---|
UNIVERSITY OF MIAMI PURPOSE: DEVELOPING HUMAN PLATFORMS FOR THERAPY DEVELOPMENTS | $100,384 |
UNIVERSITY OF MIAMI PURPOSE: MTMRS MINIGENE CONSTRUCTIONS | $45,364 |
NEUMOURS CHILDREN HOSPITAL PURPOSE: PROJECT:MOTOR NEURON DYSFUNCTION | $32,000 |
Columbus, OH PURPOSE: DEVELOPMENT OF SPLIT-VECTOR AAV APPROACHES FOR CMT4B3 | $31,234 |
Bar Harbor, ME PURPOSE: EXAMINING SBF1 IN MUTANT MICE FOR RELEVANT PHENOTYPES | $26,435 |
Over the last fiscal year, we have identified 1 grants that Hunters Cmt4b3 Research Foundation Inc has recieved totaling $2,000.
Awarding Organization | Amount |
---|---|
The Retelny Family Foundation Scarsdale, NY PURPOSE: GENERAL OPERATIONS | $2,000 |
Organization Name | Assets | Revenue |
---|---|---|
Pan-Massachusetts Challenge Inc Needham, MA | $4,238,156 | $66,009,480 |
Health Effects Institute Boston, MA | $12,526,721 | $12,481,645 |
The Association For Frontotemporal Degeneration King Of Prussia, PA | $44,796,969 | $12,057,958 |
Childrens Oncology Group Foundation Philadelphia, PA | $22,837,173 | $7,487,855 |
Hope For Depression Research Foundation New York, NY | $59,831,359 | $6,866,948 |
Israel Cancer Research Fund Inc New York, NY | $17,015,756 | $7,146,502 |
Life Science Cares Inc Cambridge, MA | $8,104,702 | $8,289,428 |
Haymakers For Hope Inc Wellesley, MA | $644,411 | $4,070,620 |
Fox Chase Cancer Center Foundation Philadelphia, PA | $63,333,365 | $6,307,847 |
The Progeria Research Foundation Inc Peabody, MA | $53,690,802 | $49,219,762 |
Improvecarenow Inc Essex, VT | $802,029 | $3,120,134 |
Dubai Harvard Foundation For Medical Research Inc Boston, MA | $15,096,309 | $431,547 |