The Iga Nephropathy Foundation Of America Inc
- Assets
- $710.7k
- Revenue
- $1.5m
- Investments
- $0.0
- Employees
- 4
- Location
- Wall, NJ
- Founding
- 10/2010
- Data as of
- 12/2022
- EIN
- 20-1155709
Organization Overview
The Iga Nephropathy Foundation Of America Inc is located in Wall, NJ. The organization was established in 2010. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. As of 12/2022, Iga Nephropathy Foundation Of America Inc employed 4 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes. Iga Nephropathy Foundation Of America Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Iga Nephropathy Foundation Of America Inc generated $1.5m in total revenue. This organization has experienced exceptional growth, as over the past 8 years, it has increased revenue by an average of 46.2% each year . All expenses for the organization totaled $1.3m during the year ending 12/2022. While expenses have increased by 35.4% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE IGA NEPHROPATHY FOUNDATION'S MISSION IS TO BE A PATIENT-CENTRIC ORGANIZATION FOCUSED ON FINDING A CURE FOR IGA NEPHROPATHY. USING THE POWER OF THE PATIENT COMMUNITY WE ARE FOCUSED ON FUNDING RESEARCH, USING PATIENT ADVOCACY TO EMPOWER OUR PATIENTS, AND BUILDING A NETWORK OF SUPPORT.
Describe the Organization's Program Activity:
Part 3 - Line 4a
SPARK IS A 2 DAY IN PERSON PATIENT CONFERENCE HELD IN NASHVILLE, TN ATTENDED BY 190 PATIENTS AND FAMILY MEMBERS. THE EVENT IS HELD TO EDUCATE PATIENTS AND CREATE A NETWORK FOR PATIENTS.
SPARK IS A 2 DAY IN PERSON PATIENT CONFERENCE HELD IN NASHVILLE, TN ATTENDED BY 190 PATIENTS AND FAMILY MEMBERS. THE EVENT IS HELD TO EDUCATE PATIENTS AND CREATE A NETWORK FOR PATIENTS.
EDUCATION AND ADVOCACYTHE FOUNDATION PROVIDES SUPPORT AND EDUCATIONAL RESOURCES TO PATIENTS AND THEIR FAMILIES WHO ARE HANDLING IGA NEPHROPATHY.
EDUCATION AND ADVOCACYTHE FOUNDATION PROVIDES SUPPORT AND EDUCATIONAL RESOURCES TO PATIENTS AND THEIR FAMILIES WHO ARE HANDLING IGA NEPHROPATHY.
RESEARCH GRANTS
RESEARCH GRANTS
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Bonnie Schneider Executive Director | Officer | 35 | $70,000 |
Leonard Erlanger President | OfficerTrustee | 5 | $0 |
Brian Parlato Vice President | OfficerTrustee | 5 | $0 |
Mary Kate Schneider Secretary | OfficerTrustee | 5 | $0 |
Susan Smith Treasurer | OfficerTrustee | 5 | $0 |
Jody Morse Director | Trustee | 2 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Cura Strategies Marketing | 12/30/22 | $319,562 |
Impact Health Communications Marketing | 12/30/22 | $114,655 |
Cura Strategies Marketing | 12/30/22 | $319,562 |
Impact Health Communications Marketing | 12/30/22 | $114,655 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $269,128 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $269,128 |
| Total Program Service Revenue | $1,197,824 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,466,952 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $100,000 |
| Grants and other assistance to domestic individuals. | $9,050 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $70,000 |
| Compensation of current officers, directors, key employees. | $7,000 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $83,600 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $15,111 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $1,679 |
| Fees for services: Accounting | $1,240 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $655,531 |
| Advertising and promotion | $38,771 |
| Office expenses | $37,342 |
| Information technology | $14,046 |
| Royalties | $0 |
| Occupancy | $42,408 |
| Travel | $1,187 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $161,186 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,128 |
| All other expenses | $0 |
| Total functional expenses | $1,261,962 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $510,705 |
| Savings and temporary cash investments | $200,000 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $710,705 |
| Accounts payable and accrued expenses | $89,908 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $3,959 |
| Total liabilities | $89,908 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $620,797 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $710,705 |
Grants Awarded
Over the last fiscal year, The Iga Nephropathy Foundation Of America Inc has awarded $52,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF ALABAMA PURPOSE: RESEARCH GRANT | $40,000 |
COLUMBIA UNIVERSITY PURPOSE: RESEARCH GRANT | $12,000 |