Colon Cancer Challenge Foundation

THE COLON CANCER CHALLENGE FOUNDATION ("THE FOUNDATION")IS A NEW YORK BASED NOT-FOR-PROFIT ORGANIZATION DEDICATED TO REDUCING COLORECTAL CANCER INCIDENCE AND DEATH THROUGH PUBLIC AWARENESS,PREVENTION,SCREENING AND RESEARCH.

DESCRIPTION OF FIRST EXEMPT PURPOSE ACCOMPLISHMENT SUPPORTING RESEARCH 1.YOUNG INVESTIGATOR/EARLY CAREER AWARDS THE COLON CANCER FOUNDATION CONTINUES TO FULFILL ONE OF ITS CRITICAL OBJECTIVES - RECOGNIZING AND SUPPORTING EXCELLENCE IN TRANSLATIONAL RESEARCH FOCUSED ON THE MOLECULAR BIOLOGY OF COLORECTAL CANCER - BY PROVIDING COLORECTAL CANCER RESEARCH SCHOLAR AWARDS FOR THE TOP-RANKING ABSTRACTS SUBMITTED BY TRAINEES OR JUNIOR FACULTY MEMBERS ATTENDING PRESTIGIOUS NATIONAL AND INTERNATIONAL CONFERENCES. THESE AWARDS PROVIDE FUNDING TO COVER MEETING, REGISTRATION, AND TRAVEL EXPENSES. IN PROVIDING THESE AWARDS, THE FOUNDATION SEEKS TO BOTH SUPPORT AND PROMOTE COLORECTAL CANCER RESEARCH. THE FOUNDATION HAS A SPECIAL INTEREST IN THE BIOLOGY OF EARLY AGE ONSET AND HEREDITARY COLORECTAL CANCER. HOWEVER, RESEARCH INTO OTHER AREAS OF COLORECTAL CANCER (E.G. NOVEL TREATMENTS AND INNOVATIVE MINIMALLY INVASIVE SCREENING TECHNOLOGIES) IS ALSO CONSIDERED. PARTICIPATING CONFERENCES AND ORGANIZATIONS CURRENTLY INCLUDE THE FOLLOWING: -THE COLLABORATIVE GROUP OF THE AMERICAS ON INHERITED COLORECTAL CANCER (CGA-ICC); -THE INTERNATIONAL SOCIETY FOR GASTROINTESTINAL HEREDITARY TUMORS (INSIGHT); AND -THE SOCIETY FOR SURGICAL ONCOLOGY (SSO). 2.THE EARLY AGE ONSET (EAO-CRC) COLORECTAL CANCER SUMMIT THE RATES OF THOSE DIAGNOSED WITH LATE STAGE CRC UNDER THE AGE OF 50 ARE STILL INCREASING DRAMATICALLY. THE FOUNDATION RECOGNIZED THIS TREND OVER A DECADE AGO AND HAS TAKEN THE LEAD ON ADDRESSING THE ISSUE BY ORGANIZING AND HOSTING THE NATION'S ONLY SUMMIT FOCUSED ON EAO-CRC. THE ANNUAL EAO-CRC SUMMIT IS A GROUNDBREAKING PROGRAM THAT PROVIDES SURVIVORS, LOVED ONES, HEALTH CARE PROFESSIONALS, AND RESEARCHERS FROM AROUND THE COUNTRY AND THE GLOBE THE UNIQUE OPPORTUNITY TO ADVANCE THEIR UNDERSTANDING OF THE RAPIDLY INCREASING INCIDENCE OF EAO-CRC WORLDWIDE IN A PATIENT/PROVIDER COLLABORATIVE SETTING. LEADING CLINICIANS AND SCIENTISTS REPORT ON THE EPIDEMIOLOGY, PATHOGENESIS, GENOMICS, AND LIFESTYLE CHALLENGES OF EAO-CRC. THE FOUNDATION TAKES PRIDE IN THE FACT THAT THE AGENDA OF THE FULL DAY PROGRAM IS INSPIRED BY THE EAO-CRC PATIENT COMMUNITY AND THEIR FAMILIES, AND GIVES THEM AN OPPORTUNITY TO BUILD CONNECTION AND COMMUNITY. FOR THE SECOND YEAR THE FOUNDATION OFFERED A CRITICAL COMPONENT TO THE SUMMIT - CME ACCREDITATION. HEALTH CARE PRACTITIONERS WERE ABLE TO CLAIM UP TO 11 AMA PRA CATEGORY 1 CREDITS. THE FOUNDATION WAS FORTUNATE TO PARTNER WITH THE NORTHWELL HEALTH OFFICE OF CONTINUING MEDICAL EDUCATION AND THE DONALD AND BARBARA ZUCKER SCHOOL OF MEDICINE AT HOFSTRA/NORTHWELL FOR THE SECOND YEAR. ADDING CME ACCREDITATION ALLOWS US TO ATTRACT A WIDER AUDIENCE AND BROADEN THE IMPACT THE SUMMIT CAN HAVE ON HEALTH CARE PRACTITIONERS (HCPS). AND ONCE AGAIN THE ENTIRE EVENT WAS LIVE STREAMED AND VIDEOTAPED FOR FUTURE USE BY HEALTH CARE PROVIDERS, ACADEMICIANS, ETC. OUR ESTIMATED AUDIENCE REACH LEADING UP TO, DURING, AND IMMEDIATELY FOLLOWING THE EAO-CRC SUMMIT IS ESTIMATED AT APPROXIMATELY 4.7 MILLION UNIQUE VIEWERS. THE DIRECT RESULTS OF THIS CAN BE SEEN IN THE INCREASE OF ARTICLES, TELEVISION AND RADIO INTERVIEWS, AND RESEARCH PUBLICATIONS ON EAO-CRC. THE 2019 EAO-CRC SUMMIT THEME,PERFORMING A KNOWLEDGE GAP ANALYSIS AND BUILDING A STRATEGIC "ACTION PLAN" TO REDUCE EAO-CRC INCIDENCE AND MORTALITY, PROVIDED PARTICIPANTS THE OPPORTUNITY TO HEAR FROM AND QUESTION LEADING CLINICIANS AND RESEARCHERS ON THE LIFESAVING POTENTIAL OF TIMELY CLINICAL RISK ASSESSMENT/FAMILY CANCER HEALTH HISTORY; EARLIEST POSSIBLE DIAGNOSIS AND OPTIMAL FERTILITY-PRESERVING CLINICAL CARE; AS WELL AS THE LATEST INFORMATION REGARDING NATIONAL AND INTERNATIONAL EAO-CRC INCIDENCE TRENDS, PATHOGENESIS, AND GENETICS. IN ADDITION, THIS YEAR'S PROGRAM WILL PRESENT A "RESEARCH IN PROGRESS" SEGMENT FEATURING CURRENT NCI-FUNDED AND PLANNED EAO-CRC RESEARCH PROJECTS FROM ACROSS AMERICA AND EUROPE. AGAIN THIS YEAR, IMPORTANT BREAKOUT SESSIONS BASED ON NEEDS ASSESSMENTS FROM OUR SURVIVOR COMMUNITY WILL ADDRESS CHALLENGING ISSUES SURROUNDING PALLIATIVE CARE, SUPPORT NETWORKS FOR CAREGIVERS, AND A PRIMER ON THE EPIGENETICS OF EAO-CRC SPECIFICALLY REQUESTED BY OUR YOUNG ADULT CRC SURVIVOR PROGRAM ADVISORY GROUP. TO FURTHER SUPPORT THOSE YOUNG OR EARLY CAREER INVESTIGATORS, FOCUSING THEIR RESEARCH EFFORTS ON THE BIOLOGY OF EARLY AGE ONSET AND HEREDITARY COLORECTAL CANCER THE FOUNDATION INCORPORATED AN ABSTRACT/POSTER SESSION INTO ITS ANNUAL EARLY AGE ONSET COLORECTAL (EAO-CRC) CANCER (EAO-CRC) SUMMIT. FOR THE FIFTH YEAR THE FOUNDATION WAS ABLE TO ENGAGE A GLOBALLY RECOGNIZED FACULTY INCLUDING EAO-CRC SURVIVORS AS WELL AS CLINICIANS, EPIDEMIOLOGISTS, AND RESEARCHERS FROM LEADING CANCER CENTERS, ADVOCACY ORGANIZATIONS, AND RESEARCH INSTITUTIONS FROM AROUND THE US. OUR FACULTY REPRESENTED INSTITUTIONS AND ORGANIZATIONS INCLUDING THE FOLLOWING: ADCOUNCIL, ALIVEANDKICKN, AMERICAN CANCER SOCIETY, BOSTON UNIVERSITY SCHOOL OF MEDICINE, CANCER INSTITUTE AT NYU LANGONE, COLD SPRING HARBOR LABORATORIES, COLON CANCER COALITION, CHICAGO GASTRO LLC., COLORADO CENTER FOR PERSONALIZED MEDICINE, COLORECTAL CANCER ALLIANCE, DANA-FARBER CANCER INSTITUTE, EUROPEAN ORGANISATION FOR RESEARCH AND TREATMENT OF CANCER (EORTC), FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH/NORTHWELL HEALTH, FUNDACION JIMENEZ DIAZ UNIVERSITY HOSPITAL, GASTROENTEROLOGY OF THE ROCKIES, GEISEL SCHOOL OF MEDICINE AT DARTMOUTH, HARVARD MEDICAL SCHOOL - BRIGHAM AND WOMEN'S HOSPITAL, ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI, MAINE DARTMOUTH FAMILY MEDICINE RESIDENCY, MD ANDERSON CANCER CENTER, MEMORIAL SLOAN KETTERING CANCER CENTER, MIDWEST GASTROENTEROLOGY ASSOCIATES, MONTEFIORE MEDICAL CENTER, NATIONAL COLORECTAL CANCER ROUNDTABLE, NEW YORK CITY DEPARTMENT OF HEALTH & MENTAL HYGIENE, NEW YORK PRESBYTERIAN/HERBERT IRVING COMPREHENSIVE CANCER CENTER, NORTHWELL HEALTH, NORTHWELL HEALTH CANCER INSTITUTE, OHIO STATE COMPREHENSIVE CANCER CENTER, PROVIDENCE CANCER INSTITUTE & PROVIDENCE ST. JOSEPH HEALTH, RANBAM HEALTH CARE CAMPUS, SOCIETY FOR HEALTH COMMUNICATION, SPECTRUM HEALTH MEDICAL GROUP, THE JACKSON LABORATORY FOR GENOMIC MEDICINE, THE UNIVERSITY OF CHICAGO MEDICINE COMER CHILDREN'S HOSPITAL, UNIVERSITY OF COLORADO ANSHUTZ MEDICAL CENTER, THE UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER, TULANE UNIVERSITY SCHOOL OF MEDICINE, UCSD SCHOOL OF MEDICINE, UNIVERSITY OF COLORADO SCHOOL OF MEDICINE, UNIVERSITY OF LOUISVILLE, UNIVERSITY OF MICHIGAN, UT SOUTHWESTERN MEDICAL CENTER, WASHINGTON UNIVERSITY SCHOOL OF MEDICINE, AND YALE UNIVERSITY SCHOOL OF MEDICINE SMILOW CANCER CENTER.

DESCRIPTION OF SECOND EXEMPT PURPOSE ACCOMPLISHMENT 1.LEADING ADVOCACY EFFORTS THE COLON CANCER FOUNDATION IS AN ADVOCACY LEADER IN THE CRC LANDSCAPE THROUGH OUR COLLABORATIVE OUTREACH, PROGRAMMING, AND INTERNATIONAL NETWORK OF ACTION-TAKERS. WE HAVE A VISION OF A WORLD WITHOUT COLORECTAL CANCER, AND THAT IS WHY WE CONTINUOUSLY COLLABORATE WITH SCIENTISTS AT PUBLIC, PRIVATE, AND GOVERNMENT INSTITUTIONS TO OUTLINE THE RESEARCH PRIORITIES THAT WILL LEAD TO NEW DRUGS AND TREATMENT PROTOCOLS. THAT IS WHY WE ORGANIZE, HOST, AND FUND THE EAO-CRC SUMMIT AND EMPOWER ATTENDEES TO TAKE THEIR LEARNING BACK TO THEIR INSTITUTIONS, CITIES, AND COMMUNITIES IN ORDER TO MAKE CHANGE HAPPEN OUR NETWORK OF ACTION-TAKERS EXTENDS ACROSS THE COUNTRY AND THE GLOBE AND INCLUDES PATIENTS, CAREGIVERS, RESEARCHERS, AND HEALTH CARE PRACTITIONERS THAT REPRESENT EVERY ASPECT OF A PATIENT'S JOURNEY THROUGH THE CONTINUUM OF CARE - FROM BENCH TO BEDSIDE AND BEYOND.

DESCRIPTION OF 3RD EXEMPT PURPOSE ACCOMPLISHMENT 1.AWARENESS BUILDING ACTIVITIES THE FOUNDATION CONTINUED ITS MULTI-LEVEL PUBLIC AWARENESS AND EDUCATIONAL PROGRAM TO SPREAD THE CRITICAL MESSAGE THAT CRC IS A LARGELY PREVENTABLE DISEASE - IF CAUGHT EARLY. OUR SURROUND SOUND CAMPAIGN INCLUDES GRASSROOTS, ON THE GROUND EDUCATIONAL OUTREACH EVENTS, TELEVISION, RADIO, PRINT, AND DIGITAL ADVERTISING (PSA'S.) WE ALSO ATTEND OUTREACH EVENTS IN UNDERSERVED AND UNINSURED COMMUNITIES IN PARTNERSHIP WITH COMMUNITY HEALTH CENTERS AND SENIOR CENTERS. THROUGH ITS OUTREACH EVENTS AND ADVERTISING THE FOUNDATION REACHES AN ESTIMATED HALF A MILLION AMERICANS EACH YEAR. WHAT'S 20 FEET LONG 12 FEET HIGH, 10 FEET WIDE, INFLATABLE, EDUCATIONAL AND SHAPED LIKE A COLON? THE ROLLIN' COLON OF COURSE THANKS TO OUR SUPPORTERS, THE ROLLIN' COLON CONTINUED ITS NATIONAL TOUR IN 2019 CRISSCROSSING THE COUNTRY TO EDUCATE THOUSANDS ON COLORECTAL CANCER AND THE IMPORTANCE OF EARLY SCREENING. EDUCATIONAL MATERIALS ARE TRANSLATED INTO SPANISH AND CHINESE - ALLOWING THE FOUNDATION TO PROVIDE CULTURALLY RELEVANT EDUCATIONAL MATERIALS TO THE MANY UNDERSERVED AND UNDERINSURED COMMUNITIES WE VISIT. THE FOUNDATION'S LARGEST OUTREACH EVENT CONTINUES TO BE THE NEW YORK COLON CANCER CHALLENGE. THE FOUNDATION CELEBRATED THE 16TH ANNUAL NEW YORK COLON CANCER CHALLENGE ON RANDALL'S ISLAND IN NEW YORK CITY. THE CHALLENGE IS A UNIQUE OPPORTUNITY FOR SURVIVORS AND AFFECTED FAMILY MEMBERS TO HONOR LOVED ONES THEY MAY HAVE LOST OR TO CELEBRATE THEIR OWN VICTORY OVER COLORECTAL CANCER. HUNDREDS PARTICIPATED IN THE REMEMBRANCE AND PREVENTION WALK AND RUN. IN ADDITION, MEMBERS OF THE FOUNDATION'S COMMUNITY MAKE THEIR MILES COUNT IN THE FIGHT AGAINST CRC BY RUNNING EITHER THE UNITED AIRLINES NYC HALF MARATHON OR THE TCS NYC MARATHON. EACH MEMBER OF TEAM COLON CANCER CHALLENGE PLEDGES TO MAKE THEIR MILES COUNT BY RAISING AWARENESS OF THE NATION'S SECOND LEADING CANCER KILLER AND FUNDS TO SUPPORT OUR MISSION. 2.PARTNERSHIPS THE FOUNDATION IS PROUD OF OUR DIRECT GRASSROOTS OUTREACH TO COMMUNITIES AND INDIVIDUALS IN UNDERSERVED COMMUNITIES AND OUR WORK WITH LOCAL, REGIONAL, NATIONAL, AND INTERNATIONAL ORGANIZATIONS ON THE DEVELOPMENT AND IMPLEMENTATION OF UP TO DATE POLICIES AND PROGRAMS THAT CONTINUE TO ADDRESS CRC INCIDENCE AND DEATH AND QUALITY OF LIFE ISSUES AFFECTING PATIENTS AND CAREGIVERS. MEMBERS OF THE FOUNDATION'S LEADERSHIP TEAM SUPPORT, PARTICIPATE IN AND SERVE IN A LEADERSHIP CAPACITY ON MANY ORGANIZATIONS INCLUDING BUT NOT LIMITED TO THE FOLLOWING: -THE C5 SUMMIT (CITYWIDE COLON CANCER CONTROL COALITION), AN INITIATIVE OF THE NEW YORK CITY DEPARTMENT OF HEALTH AND MENTAL HYGIENE (NYCDOHMH); -THE COLLABORATIVE GROUP OF THE AMERICAS ON INHERITED COLORECTAL CANCER (CGA); -THE GI CANCERS ALLIANCE (GICA); -THE INTERNATIONAL SOCIETY FOR GASTROINTESTINAL HEREDITARY TUMORS (INSIGHT); - NATIONAL COLORECTAL CANCER ROUNDTABLE (NCCRT); -THE NYS CANCER CONSORTIUM COLORECTAL CANCER ACTION TEAM; -THE SOCIETY FOR SURGICAL ONCOLOGY (SSO); AND -THE WESTCHESTER CANCER COALITION.