Hannahs Hope For Giant Axonal Neuropathy Inc is located in Saratoga Springs, NY. The organization was established in 2008. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. As of 12/2022, Hannahs Hope For Giant Axonal Neuropathy Inc employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hannahs Hope For Giant Axonal Neuropathy Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Since 2015, Hannahs Hope For Giant Axonal Neuropathy Inc has awarded 27 individual grants totaling $2,521,609. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY
Describe the Organization's Program Activity:
Part 3 - Line 4a
GRANTS TO FUND GAN GENE THERAPY TRANSDUCTION TO NEURONS RESEARCH TO IMPACT DISEASE PROGRESSION
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Allison T Moore President | OfficerTrustee | $0 | |
Katie Hogan Secretary | OfficerTrustee | $0 | |
Kathy Buckley Treasurer | OfficerTrustee | $0 | |
Joseph Gerard Hacia PHD Director | Trustee | $0 | |
Christa Gognon Director | Trustee | $0 | |
Amber N Freed Director | Trustee | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $0 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $30,198 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $30,198 |
Total Program Service Revenue | $0 |
Investment income | $206,320 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | -$954,256 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | -$717,738 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $257,904 |
Grants and other assistance to domestic individuals. | $16,054 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation to disqualified persons | $190,600 |
Other salaries and wages | $2,750 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $38,254 |
Payroll taxes | $13,554 |
Fees for services: Management | $0 |
Fees for services: Legal | $25,699 |
Fees for services: Accounting | $7,241 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $38,333 |
Fees for services: Other | $11,575 |
Advertising and promotion | $0 |
Office expenses | $0 |
Information technology | $0 |
Royalties | $0 |
Occupancy | $0 |
Travel | $670 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $2,505 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $2,175 |
All other expenses | $2,259 |
Total functional expenses | $620,035 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $6,716 |
Savings and temporary cash investments | $2,333,553 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $0 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $5,865,961 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $8,206,230 |
Accounts payable and accrued expenses | $1,093 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $1,093 |
Net assets without donor restrictions | $8,205,137 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $8,206,230 |
Over the last fiscal year, Hannahs Hope For Giant Axonal Neuropathy Inc has awarded $109,755 in support to 3 organizations.
Grant Recipient | Amount |
---|---|
UNIVERSITY OF NORTH CAROLINA STATE PURPOSE: RESEARCH | $48,258 |
UNIVERSITY OF NORTH CAROLINA PURPOSE: RESEARCH | $43,788 |
UNIVERSITY OF MISSOURI PURPOSE: RESEARCH | $17,709 |