Hannahs Hope For Giant Axonal Neuropathy Inc
- Assets
- $9.9m
- Revenue
- $6.7m
- Investments
- $0.0
- Employees
- 2
- Location
- Rexford, NY
- Founding
- 07/2008
- Data as of
- 12/2021
- EIN
- 45-0593226
Organization Overview
Hannahs Hope For Giant Axonal Neuropathy Inc is located in Rexford, NY. The organization was established in 2008. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. As of 12/2021, Hannahs Hope For Giant Axonal Neuropathy Inc employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hannahs Hope For Giant Axonal Neuropathy Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Hannahs Hope For Giant Axonal Neuropathy Inc generated $6.7m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 33.1% each year . All expenses for the organization totaled $368.6k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Hannahs Hope For Giant Axonal Neuropathy Inc has awarded 27 individual grants totaling $2,521,609. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY
Describe the Organization's Program Activity:
Part 3 - Line 4a
GRANTS TO FUND GAN GENE THERAPY TRANSDUCTION TO NEURONS RESEARCH TO IMPACT DISEASE PROGRESSION
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Allison T Moore President | OfficerTrustee | $0 | |
Kathy Buckley Treasurer | OfficerTrustee | $0 | |
Katie Hogan Secretary | OfficerTrustee | $0 | |
Lori Sames Executive Di | Officer | $0 | |
Joseph Gerard Hacia PHD Director | Trustee | $0 | |
Christa Gognon Director | Trustee | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $33,328 |
| All other contributions, gifts, grants, and similar amounts not included above | $85,312 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $118,640 |
| Total Program Service Revenue | $0 |
| Investment income | $20,999 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$2,661 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $6,718,842 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $109,755 |
| Grants and other assistance to domestic individuals. | $53,023 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $111,954 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $38,103 |
| Payroll taxes | $8,894 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $29,574 |
| Fees for services: Accounting | $6,000 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $2,310 |
| Fees for services: Other | $2,350 |
| Advertising and promotion | $0 |
| Office expenses | $1,786 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $2,332 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $114 |
| Total functional expenses | $368,597 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $165,012 |
| Savings and temporary cash investments | $4,833,006 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $4,894,126 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $9,892,144 |
| Accounts payable and accrued expenses | $2,293 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $2,293 |
| Net assets without donor restrictions | $9,889,851 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $9,892,144 |
Grants Awarded
Over the last fiscal year, Hannahs Hope For Giant Axonal Neuropathy Inc has awarded $109,755 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF NORTH CAROLINA STATE PURPOSE: RESEARCH | $48,258 |
Chapel Hill, NC PURPOSE: RESEARCH | $43,788 |
UNIVERSITY OF MISSOURI PURPOSE: RESEARCH | $17,709 |
Grants Recieved
Over the last fiscal year, we have identified 5 grants that Hannahs Hope For Giant Axonal Neuropathy Inc has recieved totaling $8,377.
| Awarding Organization | Amount |
|---|---|
Paypal Charitable Giving Fund Washington, DC PURPOSE: General Support | $6,087 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,127 |
Shell Oil Company Foundation Houston, TX PURPOSE: MG | $625 |
Ge Foundation Norwalk, CT PURPOSE: MATCHING GIFTS | $338 |
Jp Morgan Chase Foundation New York, NY PURPOSE: GENERAL OPERATING SUPPORT | $200 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Pan-Massachusetts Challenge Inc Needham, MA | $4,238,156 | $66,009,480 |
Health Effects Institute Boston, MA | $12,526,721 | $12,481,645 |
The Association For Frontotemporal Degeneration King Of Prussia, PA | $44,796,969 | $12,057,958 |
Childrens Oncology Group Foundation Philadelphia, PA | $22,837,173 | $7,487,855 |
Hope For Depression Research Foundation New York, NY | $59,831,359 | $6,866,948 |
Israel Cancer Research Fund Inc New York, NY | $17,015,756 | $7,146,502 |
Life Science Cares Inc Cambridge, MA | $8,104,702 | $8,289,428 |
Haymakers For Hope Inc Wellesley, MA | $644,411 | $4,070,620 |
Fox Chase Cancer Center Foundation Philadelphia, PA | $63,333,365 | $6,307,847 |
The Progeria Research Foundation Inc Peabody, MA | $53,690,802 | $49,219,762 |
Improvecarenow Inc Essex, VT | $802,029 | $3,120,134 |
Dubai Harvard Foundation For Medical Research Inc Boston, MA | $15,096,309 | $431,547 |