Rare Sisters Batten Foundation Inc

Organization Overview

Rare Sisters Batten Foundation Inc is located in Arvada, CO. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Rare Sisters Batten Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Rare Sisters Batten Foundation Inc generated $258.8k in total revenue. All expenses for the organization totaled $144.1k during the year ending 12/2021. While expenses have increased by 71.7% per year over the past 2 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

THE RARE SISTERS BATTEN FOUNDATION AIMS TO HELP FURTHER THE DEVELOPMENT OF MEDICAL RESEARCH FOR TREATMENTS AND CURES FOR CLN3 BATTEN DISEASE, AND PROVIDE MONETARY ASSISTANCE TO FAMILIES WITH CHILDREN DIAGNOSED WITH BATTEN DISEASE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

ADVOCATED AND RAISED AWARENESS FOR BATTEN DISEASE AND OTHER RARE DISEASES WITH THREE EVENTS, REACHING OVER 1500 PEOPLE.GRANTS PAID TO HELP BATTEN FAMILIES PURCHASE ACCESSIBLE VEHICLES, OR COMPLETE HOME MODIFICATIONS. FOUR FAMILIES BENEFITED FROM RSBF GRANTS THIS YEAR. GRANT PAID TO FUND THE BATTEN AND NEURODEGENERATIVE CLINIC AT CHILDRENS HOSPITAL COLORADO IN CONJUNCTION WITH MILAS MIRACLE FOUNDATION.


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Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$180,107
Related organizations$0
Government grants $77,114
All other contributions, gifts, grants, and similar amounts not included above$0
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$257,221
Total Program Service Revenue$0
Investment income $0
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $1,542
Miscellaneous Revenue$0
Total Revenue $258,763

Grants Recieved

Over the last fiscal year, we have identified 3 grants that Rare Sisters Batten Foundation Inc has recieved totaling $37,673.

Awarding OrganizationAmount
Fore Batten Foundation

Chapel Hill, NC

PURPOSE: TO SUPPORT THE DEVELOPMENT OF MEDICAL RESEARCH FOR TREATMENTS AND CURES FOR CLN3 BATTEN DISEASE, AND PROVIDE MONETARY ASSISTANCE TO FAMILIES WITH CHILDREN DIAGNOSED WITH BATTEN DISEASE

$25,000
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$11,162
Rk Foundation

Wilmington, DE

PURPOSE: GENERAL & UNRESTRICTED

$1,511
View Grant Recipient Profile

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