Sturge-Weber Foundation

Organization Overview

Sturge-Weber Foundation is located in Houston, TX. The organization was established in 1988. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2022, Sturge-Weber Foundation employed 4 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sturge-Weber Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 06/2022, Sturge-Weber Foundation generated $376.0k in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (2.7%) each year. All expenses for the organization totaled $502.7k during the year ending 06/2022. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

TO PROVIDE ASSISTANCE TO FAMILIES AFFECTED BY STURGE-WEBER SYNDROME AND PORT WINE BIRTHMARK CONDITIONS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE FOUNDATION DRIVES PATIENT ENGAGEMENT THROUGH DIVERSE AND ROBUST PROJECTS, CONFERENCES AND ONLINE SUPPORT. THE WEBSITE IS A RICH RESOURCE OF LEARNING AND UPLIFTING STORIES OF INSPIRATIONAL HOPE TO COPE WITH THE DIAGNOSIS. THE FOUNDATION SPONSORS AN INTERNATIONAL CONFERENCE EVERY TWO YEARS MOVING THE LOCATION TO ALLOW FAIR ACCESS TO ALL MINIMIZING FINANCIAL IMPACT TO ATTEND. THE FOUNDATION ALSO SPONSORS REGIONAL EDUCATIONAL CONFERENCES TO BUILD COMMUNITY IN PARTNERSHIP WITH VARIOUS CLINICAL CARE NETWORK (CCN) INSTITUIONS. THE CCN'S FACILITATE CLINICAL STUDIES AND TRIALS AND ANNUALLY ESTABLISH GOALS WHICH DRIVE PATIENT CARE AND IMPROVE TREATMENT. THE FOUNDATION RECENTLY LAUNCHED A TASK FORCE INITIATIVE TO BUILD A RICH VOLUNTEER NETWORK OF KNOWLEDGE AND SUPPORT AROUND KEY AREAS IMPACTING DAILY LIVING AND CARE. THE HOUSTON HOME OFFICE STAFF AND REMOTE OFFICE STAFF SUPPORT ALL THE ABOVE PROGRAMS AND PROJECTS AND REGULARLY MEET TO ENSURE STRATEGIC GOALS ARE MET.


THE FOUNDATION'S RESEARCH PROGRAM IS LEAD BY A GLOBAL TEAM OF RESEARCHERS THAT COMPRISE THE STURGE-WEBER FOUNDATION INTERNATIONAL RESEARCH NETWORK TO FACILITATE INNOVATIVE AND COLLABERATIVE RESEARCH INVESTIGATIONS. THE RESEARCH PROGRAM FUNDS A 50,000 LISA'S RESEARCH FELLOWSHIP, MULTIPLE TRAVEL GRANTS TO YOUNG INVESTIGATORS, MAINTAINS AN ONLINE 25,000 PATIENT REGISTRY FOR MAPPING CLINICAL DATA WITH DATA IN A BIO-RESPOSITORY. THE FOUNDATION ATTENDS NATIONAL CONFERENCES FOCUSED ON RESEARCH IN THE EYE, BRAIN, SKIN AND GENETIC EXPRESSIONS OF THE SYNDROME TO GENERATE AWARENESS AND ENGAGE YOUNG INVESTIGATORS TO JOIN THEIR CAUSE.


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Board, Officers & Key Employees

Name (title)Compensation
Karen L Ball
President/ce
$88,200
Steve Emmons
Treasurer
$0
Curt Stanton
Chairman
$0
Molly Speer
Vice Chair/s
$0
Witney Arch
Director
$0
Woodrow Crouch
Emeritus
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$18,816
Related organizations$0
Government grants $44,017
All other contributions, gifts, grants, and similar amounts not included above$259,624
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$322,457
Total Program Service Revenue$10,000
Investment income $12,510
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $26,276
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $376,017

Grants Awarded

Over the last fiscal year, Sturge-Weber Foundation has awarded $44,623 in support to 3 organizations.

Grant RecipientAmount

MAYO CLINIC

|

|

$20,000

UNIVERSITY OF MIAMIOFFICE OF RESEARCH ADMINISTRATION

|

|

$15,000

UNIVERSITY OF WISCONSIN

|

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$9,623
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 3 grants that Sturge-Weber Foundation has recieved totaling $30,604.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$18,723
Abbvie Foundation

North Chicago, IL

PURPOSE: GENERAL MISSION

$10,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$1,881
View Grant Recipient Profile

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