Sturge-Weber Foundation
- Assets
- $420.8k
- Revenue
- $427.4k
- Investments
- $0.0
- Employees
- 5
- Location
- Aurora, CO
- Founding
- 04/1988
- Data as of
- 06/2023
- EIN
- 74-2485813
Organization Overview
Sturge-Weber Foundation is located in Aurora, CO. The organization was established in 1988. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2023, Sturge-Weber Foundation employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sturge-Weber Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2023, Sturge-Weber Foundation generated $427.4k in total revenue. The organization has seen a slow decline revenue. Over the past 8 years, revenues have fallen by an average of (0.8%) each year. All expenses for the organization totaled $440.5k during the year ending 06/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE ASSISTANCE TO FAMILIES AFFECTED BY STURGE-WEBER SYNDROME AND PORT WINE BIRTHMARK CONDITIONS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE FOUNDATION DRIVES PATIENT ENGAGEMENT THROUGH DIVERSE AND ROBUST PROJECTS, CONFERENCES AND ONLINE SUPPORT. THE WEBSITE IS A RICH RESOURCE OF LEARNING AND UPLIFTING STORIES OF INSPIRATIONAL HOPE TO COPE WITH THE DIAGNOSIS. THE FOUNDATION SPONSORS AN INTERNATIONAL CONFERENCE EVERY TWO YEARS MOVING THE LOCATION TO ALLOW FAIR ACCESS TO ALL MINIMIZING FINANCIAL IMPACT TO ATTEND. THE FOUNDATION ALSO SPONSORS REGIONAL EDUCATIONAL CONFERENCES TO BUILD COMMUNITY IN PARTNERSHIP WITH VARIOUS CLINICAL CARE NETWORK (CCN) INSTITUIONS. THE CCN'S FACILITATE CLINICAL STUDIES AND TRIALS AND ANNUALLY ESTABLISH GOALS WHICH DRIVE PATIENT CARE AND IMPROVE TREATMENT. THE FOUNDATION RECENTLY LAUNCHED A TASK FORCE INITIATIVE TO BUILD A RICH VOLUNTEER NETWORK OF KNOWLEDGE AND SUPPORT AROUND KEY AREAS IMPACTING DAILY LIVING AND CARE. THE HOUSTON HOME OFFICE STAFF AND REMOTE OFFICE STAFF SUPPORT ALL THE ABOVE PROGRAMS AND PROJECTS AND REGULARLY MEET TO ENSURE STRATEGIC GOALS ARE MET.
THE FOUNDATION'S RESEARCH PROGRAM IS LEAD BY A GLOBAL TEAM OF RESEARCHERS THAT COMPRISE THE STURGE-WEBER FOUNDATION INTERNATIONAL RESEARCH NETWORK TO FACILITATE INNOVATIVE AND COLLABERATIVE RESEARCH INVESTIGATIONS. THE RESEARCH PROGRAM FUNDS A 50,000 LISA'S RESEARCH FELLOWSHIP, MULTIPLE TRAVEL GRANTS TO YOUNG INVESTIGATORS, MAINTAINS AN ONLINE 25,000 PATIENT REGISTRY FOR MAPPING CLINICAL DATA WITH DATA IN A BIO-RESPOSITORY. THE FOUNDATION ATTENDS NATIONAL CONFERENCES FOCUSED ON RESEARCH IN THE EYE, BRAIN, SKIN AND GENETIC EXPRESSIONS OF THE SYNDROME TO GENERATE AWARENESS AND ENGAGE YOUNG INVESTIGATORS TO JOIN THEIR CAUSE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Karen L Ball President/ce | OfficerTrustee | 50 | $88,750 |
Curt Stanton Chairman | OfficerTrustee | 2 | $0 |
Molly Speer Vice Chair/s | OfficerTrustee | 2 | $0 |
Steve Emmons Treasurer | OfficerTrustee | 2 | $0 |
Witney Arch Director | Trustee | 2 | $0 |
Crystal Elliers Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $322,660 |
| Noncash contributions included in lines 1a–1f | $43,332 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $322,660 |
| Total Program Service Revenue | $0 |
| Investment income | $15,706 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $41,194 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $427,359 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $88,750 |
| Compensation of current officers, directors, key employees. | $14,475 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $62,536 |
| Pension plan accruals and contributions | $3,565 |
| Other employee benefits | $7,597 |
| Payroll taxes | $13,226 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $10,800 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $15,497 |
| Advertising and promotion | $13,299 |
| Office expenses | $33,645 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $1,798 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $82,377 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $795 |
| Insurance | $2,919 |
| All other expenses | $0 |
| Total functional expenses | $440,475 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $70,127 |
| Savings and temporary cash investments | $346,522 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $101 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $3,257 |
| Net Land, buildings, and equipment | $804 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $420,811 |
| Accounts payable and accrued expenses | $27,463 |
| Grants payable | $3,000 |
| Deferred revenue | $16,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $25,000 |
| Total liabilities | $71,463 |
| Net assets without donor restrictions | $285,981 |
| Net assets with donor restrictions | $63,367 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $420,811 |
Grants Awarded
Over the last fiscal year, Sturge-Weber Foundation has awarded $44,623 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF MIAMIOFFICE OF RESEARCH ADMINISTRATION | | | $15,000 |
MAYO CLINIC | | | $20,000 |
UNIVERSITY OF WISCONSIN | | | $9,623 |