Kcnt1 Slack Epilepsy Foundation Inc
- Assets
- $505.1k
- Revenue
- $364.3k
- Investments
- $0.0
- Employees
- 0
- Location
- Scottsdale, AZ
- Founding
- Data as of
- 12/2023
- EIN
- 84-2748218
Organization Overview
Kcnt1 Slack Epilepsy Foundation Inc, operating under the name Kcnt1 Slack Epilepsy Foundatio, is located in Scottsdale, AZ. According to its NTEE Classification (G54) the organization is classified as: Epilepsy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Kcnt1 Slack Epilepsy Foundatio is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Kcnt1 Slack Epilepsy Foundatio generated $364.3k in total revenue. This organization has experienced exceptional growth, as over the past 2 years, it has increased revenue by an average of 43.7% each year . All expenses for the organization totaled $121.5k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
MISSION: KCNT1 EPILEPSY FOUNDATION ACCELERATES THE DEVELOPMENT OF BETTER TREATMENTS FOR KCNT1-RELATED EPILEPSY AND A CURE BY AWARDING PILOT GRANTS, FUNDING RESEARCH, MAKING RESEARCH ASSETS AVAILABLE TO QUALIFIED SCIENTISTS AND CLINICIANS AND ORGANIZING THE COMMUNITY
Describe the Organization's Program Activity:
Part 3 - Line 4a
LAUNCHED A LONGITUDINAL PATIENT REGISTRY STUDY; RECRUITED PARTICIPANTS FOR A STUDY USING THE CITIZEN HEALTH PLATFORM; LAUNCHED BIOBANK WITH BLOOD AND TISSUE SAMPLES AND DEVELOPED AN IPSC LINE; DESIGNED AND OBTAINED IRB APPROVAL FOR AN OBSERVATIONAL STUDY ON A REPURPOSED DRUG; CO-FUNDED A GRANT WITH ANOTHER NONPROFIT AT THE UNIVERSITY OF VERMONT; GRANTED SUPPORT TO THE UNIVERSITY OF SOUTH AUSTRALIA FOR AN ALLELE-SPECIFIC DRUG REPURPOSING STUDY; HIRED PART-TIME CONTRACTORS: ONE MANAGED OUR BIOBANK, CONDUCTED CONCEPTUAL MODEL STUDIES, AND PERFORMED LANDSCAPE ANALYSES; THE OTHER, WITH EXPERTISE IN NEUROBIOLOGY AND CLINICAL TRIALS, OVERSEEING RESEARCH COLLABORATIONS, ESTABLISHING GRANT PROCESSES, AND EXPLORING NEW RESEARCH AVENUES. ALSO, WE EXPANDED PATIENT SUPPORT INITIATIVES, ORGANIZING SMALL FAMILY MEETUPS AT BLOOD COLLECTION SITES AND EPILEPSY CONFERENCES, GIVING FAMILIES THE OPPORTUNITY TO ENGAGE DIRECTLY WITH KCNT1 DRUG DEVELOPERS FOR THE FIRST TIME. . WE ALSO LAUNCHED A PARENT SUPPORT NETWORK, OFFERING SCHOLARSHIPS FOR PARENT TRAINING ON PEER SUPPORT.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jason J Kaufman Director | Trustee | 0.25 | $0 |
Owen Billman Chairman | Trustee | 3 | $0 |
Morrisette Royster Director | Trustee | 0.25 | $0 |
Sarah Drislane Executive Director | Trustee | 20 | $0 |
Joseph Riculli Director | Trustee | 0.25 | $0 |
Margot Goodkin Secretary | Officer | 0.25 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $357,578 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $357,578 |
| Total Program Service Revenue | $0 |
| Investment income | $6,679 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $364,257 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $12,500 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $8,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $599 |
| Fees for services: Accounting | $1,850 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $4,440 |
| Advertising and promotion | $11,698 |
| Office expenses | $2,211 |
| Information technology | $4,147 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $11,612 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $11,705 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,595 |
| All other expenses | $11,517 |
| Total functional expenses | $121,548 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $505,139 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $505,139 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $505,139 |
| Total liabilities and net assets/fund balances | $505,139 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Epilepsy Foundation Of Colorado Greenwood Village, CO | $1,466,803 | $1,066,821 |
Psc Partners Seeking A Cure Englewood, CO | $4,595,672 | $2,207,381 |
Epilepsy Foundation Of Greater Los Angelesr Los Angeles, CA | $5,732,060 | $1,736,089 |
Epilepsy Society Of San Diego County San Diego, CA | $1,846,012 | $593,773 |
Epilepsy Foundation Of Northern California Alameda, CA | $222,639 | $517,445 |
Cameron Boyce Foundation Sherman Oaks, CA | $242,759 | $246,762 |
Chelsea Hutchison Foundation Aurora, CO | $190,330 | $402,834 |
Epilepsy Support Network Of Orange County Costa Mesa, CA | $418,964 | $359,228 |
Charlie Foundation For Ketogenic Therapies Santa Monica, CA | $345,256 | $0 |
Kcnt1 Slack Epilepsy Foundation Inc Scottsdale, AZ | $505,139 | $364,257 |
Vickis Cure Charity Organization Phoenix, AZ | $0 | $0 |
The Pace Family Foundation Montebello, CA | $92,047 | $22,325 |
Buie Major Cure Corporation Castle Rock, CO | $0 | $0 |
Smc1a Foundation San Francisco, CA | $1,870 | $0 |