Epilepsy Support Network Of Orange County

Organization Overview

Epilepsy Support Network Of Orange County is located in Costa Mesa, CA. The organization was established in 2009. According to its NTEE Classification (G54) the organization is classified as: Epilepsy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Epilepsy Support Network Of Orange County employed 7 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Epilepsy Support Network Of Orange County is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Epilepsy Support Network Of Orange County generated $344.0k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 8.5% each year. All expenses for the organization totaled $217.4k during the year ending 12/2021. While expenses have increased by 2.4% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

COMMITTED TO BUILDING A COMMUNITY OF SUPPORT FOR THOSE AFFECTED BY EPILEPSY THROUGH EDUCATIONAL PROGRAMS, SUPPORT GROUPS AND COMMUNITY ADVOCACY. OUR GOAL IS TO HELP THOSE AFFECTED WITH EPILEPSY CONTROL THE FREQUENCY AND INTENSITY OF EPILEPTIC SEIZURE AND PROVIDE A SAFE AND SUPPORTIVE ENVIRONMENT TO SORT THROUGH THE MEDICAL, EDUCATIONAL, SOCIAL AND EMOTIONAL ASPECTS OF THIS COMPLEX NEUROLOGICAL CONDITION.

Describe the Organization's Program Activity:

Part 3 - Line 4a

PROGRAM NIGHT - EPILEPSY EXPERT SERIES: EVERY SECOND FRIDAY OF THE MONTH, OUR COMMUNITY OF SUPPORT MEETS TO OFFER OUR 10 PROGRAMS. MEMBERS CONNECT WITH ONE ANOTHER AND LEARN FROM OUR EXPERT GUEST SPEAKERS WHO SPECIALIZE IN EPILEPSY AND OTHER RELATED FIELDS FROM CHOC, HOAG, UCI, AND OTHER COMMUNITY PARTNERS.


COMMUNITY EDUCATION PRESENTATIONS: FREE COMMUNITY PRESENTATIONS FOR EPILEPSY EDUCATION TO CREATE SEIZURE SAFE ZONES AROUND THE COUNTY. WE PARTICIPATED IN HEALTH FAIRS, CONFERENCES AND COMMUNITY EVENTS FOR EPILEPSY AWARENESS AND ADVOCACY. PRESENTATIONS INCLUDE: SEIZURE RECOGNITION AND FIRST AID, BUILDING A HEALTHY BRAIN, EPILEPSY 101, ESN PROGRAMS.


INTAKE AND REFERRAL PROGRAM: IMMEDIATE SUPPORT PROVIDED TO FIRST TIME CALLERS THROUGH INDIVIDUALIZED ATTENTION FOR BEST POSSIBLE SEIZURE AND SYMPTOM CONTROL. CALLERS ARE CONNECTED TO OUR MOST APPROPRIATE PROGRAMS AND REFERRED TO EPILEPSY SPECIALISTS. PROGRAM ACCOMPLISHMENT: PROVIDED INFORMATION, REFERRALS AND SUPPORT TO NEWLY DIAGNOSED INDIVIDUALS WITH EPILEPSY AND THOSE EXPERIENCING A REOCCURRENCE OF SEIZURES TO GET THEM TO LOCAL EPILEPSY CENTERS FOR BEST OUTCOMES.


EMOTIONAL SUPPORT GROUPS FOR PARENTS: AN ENCOURAGING AND UPLIFTING SUPPORT GROUP FACILITATED BY A LICENSED, CLINICAL PSYCHOLOGIST WHO SPECIALIZES IN EPILEPSY. PARENTS MET MONTHLY TO DISCUSS ALL AREAS OF LIFE AFFECTED BY EPILEPSY. ADULT SOCIAL: THIS MONTHLY SOCIAL GROUP PROVIDES THE OPPROTUNITY TO MEET OTHER ADULTS WITH EPILEPSY TO SHARE EXPERIENCES, ANSWER QUESTIONS AND MEET NEW FRIENDS; ENABLES ADULTS WITH EPILEPSY TO CONNECT, SHARE RESOURCES AND CHALLENGES WITH ONE ANOTHER AS THEY ARE USUALLY SOCIALLY ISOLATED. FRIDAY FRIENDS CLUB: WHILE PARENTS OF CHILDREN WITH EPILEPSY AND ADULTS WITH EPILEPSY ATTEND OUR PROGRAMS, FFC PROVIDES PLAY AND SOCIAL SKILLS TIME FOR DEVELOPING FRIENDSHIPS IN A SAFE, ACCEPTING, PLAYFUL AND PURPOSEFUL ENVIRONMENT FOR BOTH SPECIAL NEEDS AND TYPICAL CHILDREN. SIBLINGS OF AFFECTED CHILDREN ATTEND TO SERVE AS NEUROTYPICAL ROLE MODELS. TEEN CLUB: SOCIAL SKILLS GROUP HELPING TEENS WITH EPILEPSY TO BUILD SELF ESTEEM, FRIENDSHIP SKILLS AND STAY SOCIALLY CONNECTED IN A SAFE AND SUPPORTIVE ENVIRONMENT. TYPICAL TEENS SERVE AS PEER ROLE MODELS TO TEACH APPROPRIATE SOCIAL BEHAVIORS. ONLINE SUPPORT GROUP FOR PARENTS: PROVIDED 7-DAYS A WEEK, 24 HOUR ONLINE ACCESS TO PARENTS WITH DIVERSE EXPERIENCE IN PEDIATRIC EPILEPSY. ADULT EDUCATIONAL EXPERT SERIES: AN EDUCATIONAL SUPPORT GROUP FOR ADULTS DIAGNOSED WITH EPILEPSY TO LEARN ABOUT THE MOST UP TO DATE INFORMATION, TREATMENTS AND RESEARCH IN THE FIELD OF EPILEPSY. PARENT EDUCATIONAL EXPERT SERIES - SPANISH AN EDUCATIONAL SUPPORT GROUP FOR PARENTS WITH A CHILD OR TEEN DIAGNOSED WITH EPILEPSY TO LEARN ABOUT THE MOST UP TO DATE INFORMATION, TREATMENTS AND RESEARCH IN THE FIELD OF EPILEPSY WITH SPANISH TRANSLATION TO MEET THE NEEDS OF OUR SPANISH SPEAKING FAMILIES IN THE COMMUNITY. PARENT EDUCATIONAL EXPERT SERIES: AN EDUCATIONAL SUPPORT GROUP FOR PARENTS WITH A CHILD OR TEEN DIAGNOSED WITH EPILEPSY TO LEARN ABOUT THE MOST UP TO DATE INFORMATION, TREATMENTS AND RESEARCH IN THE FIELD OF EPILEPSY.


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Board, Officers & Key Employees

Name (title)Compensation
Janna Moore
Executive Director
$61,712
Kathy Nichols
President
$0
Scott Jensen
Treasurer
$0
Malena Clements
Secretary
$0
Debbie Merced
Board Member
$0
Kristy Kendle
Board Member
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$97,705
Related organizations$0
Government grants $65,000
All other contributions, gifts, grants, and similar amounts not included above$190,330
Noncash contributions included in lines 1a–1f $18,804
Total Revenue from Contributions, Gifts, Grants & Similar$353,035
Total Program Service Revenue$0
Investment income $23
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events -$9,080
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $343,978

Grants Recieved

Over the last fiscal year, we have identified 2 grants that Epilepsy Support Network Of Orange County has recieved totaling $35,388.

Awarding OrganizationAmount
$35,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$388
View Grant Recipient Profile

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