Epilepsy Support Network Of Orange County
- Assets
- $419.0k
- Revenue
- $359.2k
- Investments
- $0.0
- Employees
- 8
- Location
- Costa Mesa, CA
- Founding
- 11/2009
- Data as of
- 12/2023
- EIN
- 27-0681680
Organization Overview
Epilepsy Support Network Of Orange County is located in Costa Mesa, CA. The organization was established in 2009. According to its NTEE Classification (G54) the organization is classified as: Epilepsy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Epilepsy Support Network Of Orange County employed 8 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Epilepsy Support Network Of Orange County is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Epilepsy Support Network Of Orange County generated $359.2k in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 7.0% each year. All expenses for the organization totaled $283.7k during the year ending 12/2023. While expenses have increased by 4.9% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
COMMITTED TO BUILDING A COMMUNITY OF SUPPORT FOR THOSE AFFECTED BY EPILEPSY THROUGH EDUCATIONAL PROGRAMS, SUPPORT GROUPS AND COMMUNITY ADVOCACY. OUR GOAL IS TO HELP THOSE AFFECTED WITH EPILEPSY CONTROL THE FREQUENCY AND INTENSITY OF EPILEPTIC SEIZURE AND PROVIDE A SAFE AND SUPPORTIVE ENVIRONMENT TO SORT THROUGH THE MEDICAL, EDUCATIONAL, SOCIAL AND EMOTIONAL ASPECTS OF THIS COMPLEX NEUROLOGICAL CONDITION.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROGRAM NIGHT - EPILEPSY EXPERT SERIES: EVERY SECOND FRIDAY OF THE MONTH, OUR COMMUNITY OF SUPPORT MEETS TO OFFER OUR 10 PROGRAMS. MEMBERS CONNECT WITH ONE ANOTHER AND LEARN FROM OUR EXPERT GUEST SPEAKERS WHO SPECIALIZE IN EPILEPSY AND OTHER RELATED FIELDS FROM CHOC, HOAG, UCI, AND OTHER COMMUNITY PARTNERS. IN 2023 WE OFFERED 19 SUCCESSFUL PROGRAM NIGHTS SERVING 3138 ATTENDEES.
EMOTIONAL SUPPORT GROUPS FOR PARENTS: AN ENCOURAGING AND UPLIFTING SUPPORT GROUP FACILITATED BY A LICENSED, CLINICAL PSYCHOLOGIST WHO SPECIALIZES IN EPILEPSY. PARENTS MET MONTHLY TO DISCUSS ALL AREAS OF LIFE AFFECTED BY EPILEPSY. PROGRAM ACCOMPLISHMENTS: COUNSELED 55 PARENTS.ADULT SOCIAL: THIS MONTHLY SOCIAL GROUP PROVIDES THE OPPROTUNITY TO MEET OTHER ADULTS WITH EPILEPSY TO SHARE EXPERIENCES, ANSWER QUESTIONS AND MEET NEW FRIENDS; ENABLES ADULTS WITH EPILEPSY TO CONNECT, SHARE RESOURCES AND CHALLENGES WITH ONE ANOTHER AS THEY ARE USUALLY SOCIALLY ISOLATED. PROGRAM ACCOMPLISHMENT: CONNECTED 129 ADULTS THROUGHOUT THE YEAR TO MEANINGUL RELATIONSHIPS.FRIDAY FRIENDS CLUB: WHILE PARENTS OF CHILDREN WITH EPILEPSY AND ADULTS WITH EPILEPSY ATTEND OUR PROGRAMS, FFC PROVIDES PLAY AND SOCIAL SKILLS TIME FOR DEVELOPING FRIENDSHIPS IN A SAFE, ACCEPTING, PLAYFUL AND PURPOSEFUL ENVIRONMENT FOR BOTH SPECIAL NEEDS AND TYPICAL CHILDREN. SIBLINGS OF AFFECTED CHILDREN ATTEND TO SERVE AS NEUROTYPICAL ROLE MODELS. PROGRAM ACCOMPLISHMENT: EXPANDED LESSON PLANS WITH THEMES, CHARACTER BUILDING, ENRICHMENT ACTIVITIES; SERVED 1,551 CHILDREN.TEEN CLUB: SOCIAL SKILLS GROUP HELPING TEENS WITH EPILEPSY TO BUILD SELF ESTEEM, FRIENDSHIP SKILLS AND STAY SOCIALLY CONNECTED IN A SAFE AND SUPPORTIVE ENVIRONMENT. TYPICAL TEENS SERVE AS PEER ROLE MODELS TO TEACH APPROPRIATE SOCIAL BEHAVIORS. PROGRAM ACCOMPLISHMENTS: FACILITATED SUCCESSFUL TEEN OUTING, SERVED 174 TEENS.ONLINE SUPPORT GROUP FOR PARENTS: PROVIDED 7-DAYS A WEEK, 24 HOUR ONLINE ACCESS TO PARENTS WITH DIVERSE EXPERIENCE IN PEDIATRIC EPILEPSY. PROGRAM ACCOMPLISHMENT: NEWLY DIAGNOSED PARENTS QUICKLY CONNECTED WITH ONLINE SUPPORT.ADULT EDUCATIONAL EXPERT SERIES: AN EDUCATIONAL SUPPORT GROUP FOR ADULTS DIAGNOSED WITH EPILEPSY TO LEARN ABOUT THE MOST UP TO DATE INFORMATION, TREATMENTS AND RESEARCH IN THE FIELD OF EPILEPSY. PROGRAM ACCOMPLISHMENT: EDUCATED 356 PARENT EDUCATIONAL EXPERT SERIES - SPANISH AN EDUCATIONAL SUPPORT GROUP FOR PARENTS WITH A CHILD OR TEEN DIAGNOSED WITH EPILEPSY TO LEARN ABOUT THE MOST UP TO DATE INFORMATION, TREATMENTS AND RESEARCH IN THE FIELD OF EPILEPSY WITH SPANISH TRANSLATION TO MEET THE NEEDS OF OUR SPANISH SPEAKING FAMILIES IN THE COMMUNITY. PROGRAM ACCOMPLISHMENTS: EXPANDED GROUP; EDUCATED 88 PARENTS.PARENT EDUCATIONAL EXPERT SERIES: AN EDUCATIONAL SUPPORT GROUP FOR PARENTS WITH A CHILD OR TEEN DIAGNOSED WITH EPILEPSY TO LEARN ABOUT THE MOST UP TO DATE INFORMATION, TREATMENTS AND RESEARCH IN THE FIELD OF EPILEPSY. PROGRAM ACCOMPLISHMENTS: EDUCATED 445 PARENTS.
INTAKE AND REFERRAL PROGRAM: IMMEDIATE SUPPORT PROVIDED TO FIRST TIME CALLERS THROUGH INDIVIDUALIZED ATTENTION FOR BEST POSSIBLE SEIZURE AND SYMPTOM CONTROL. CALLERS ARE CONNECTED TO OUR MOST APPROPRIATE PROGRAMS AND REFERRED TO EPILEPSY SPECIALISTS. PROGRAM ACCOMPLISHMENT: PROVIDED INFORMATION, REFERRALS AND SUPPORT TO NEWLY DIAGNOSED INDIVIDUALS WITH EPILEPSY AND THOSE EXPERIENCING A REOCCURRENCE OF SEIZURES TO GET THEM TO LOCAL EPILEPSY CENTERS FOR BEST OUTCOMES TO 135 FAMILIES.
COMMUNITY EDUCATION PRESENTATIONS: FREE COMMUNITY PRESENTATIONS FOR EPILEPSY EDUCATION TO CREATE SEIZURE SAFE ZONES AROUND THE COUNTY. WE PARTICIPATED IN HEALTH FAIRS, CONFERENCES AND COMMUNITY EVENTS FOR EPILEPSY AWARENESS AND ADVOCACY. PRESENTATIONS INCLUDE: SEIZURE RECOGNITION AND FIRST AID, BUILDING A HEALTHY BRAIN, EPILEPSY 101, ESN PROGRAMS. PROGRAM ACCOMPLISHMENTS: EDUCATED 6,123 COMMUNITY MEMBERS THROUGH OUR PRESENTATIONS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kathy Nichols President | OfficerTrustee | 3 | $0 |
Scott Jensen Treasurer | OfficerTrustee | 1 | $0 |
Malena Clements Secretary | OfficerTrustee | 2 | $0 |
Debbie Merced Board Member | Trustee | 2 | $0 |
Meghan Metzger Board Member | Trustee | 2 | $0 |
Dawn O'conner Board Member | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $146,852 |
| Related organizations | $0 |
| Government grants | $42,299 |
| All other contributions, gifts, grants, and similar amounts not included above | $165,657 |
| Noncash contributions included in lines 1a–1f | $35,932 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $354,808 |
| Total Program Service Revenue | $0 |
| Investment income | $496 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $3,924 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $359,228 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $63,786 |
| Compensation of current officers, directors, key employees. | $4,465 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $102,672 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $12,694 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $11,171 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $1,865 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $3,400 |
| Advertising and promotion | $4,506 |
| Office expenses | $10,188 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $12,617 |
| Travel | $2,090 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,994 |
| All other expenses | $0 |
| Total functional expenses | $283,741 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $13,731 |
| Savings and temporary cash investments | $405,024 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $209 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $418,964 |
| Accounts payable and accrued expenses | $28,143 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $28,143 |
| Net assets without donor restrictions | $390,821 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $418,964 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Epilepsy Foundation Of Greater Los Angelesr Los Angeles, CA | $5,732,060 | $1,736,089 |
Epilepsy Society Of San Diego County San Diego, CA | $1,846,012 | $593,773 |
Epilepsy Foundation Of Northern California Alameda, CA | $222,639 | $517,445 |
Cameron Boyce Foundation Sherman Oaks, CA | $242,759 | $246,762 |
Epilepsy Support Network Of Orange County Costa Mesa, CA | $418,964 | $359,228 |
Charlie Foundation For Ketogenic Therapies Santa Monica, CA | $345,256 | $0 |
Kcnt1 Slack Epilepsy Foundation Inc Scottsdale, AZ | $505,139 | $364,257 |
Vickis Cure Charity Organization Phoenix, AZ | $0 | $0 |
The Pace Family Foundation Montebello, CA | $92,047 | $22,325 |
Smc1a Foundation San Francisco, CA | $1,870 | $0 |