Julian Chang Family Foundation For Dravet
- Assets
- $95.8k
- Revenue
- $100.0k
- Investments
- $0.0
- Employees
- 0
- Location
- San Francisco, CA
- Founding
- 11/2019
- Data as of
- 12/2021
- EIN
- 83-3636526
Organization Overview
Julian Chang Family Foundation For Dravet is located in San Francisco, CA. The organization was established in 2019. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Julian Chang Family Foundation For Dravet is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Julian Chang Family Foundation For Dravet generated $100.0k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 3 years, the organization has seen revenues fall by an average of (27.3%) each year. All expenses for the organization totaled $55.8k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (39.5%) per year over the past 3 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990PF
Mission & Program ActivityExcerpts From the 990PF Filing
TAX YEAR
2021
Describe the Organization's Program Activity:
Part 3 - Line 4a
ADMINISTRATIVE OPERATION COSTS FOR PROGRAM TO PROVIDE THE PUBLIC WITH EDUCATIONAL RESOURCES IN THE FORM OF INFORMATION ONLINE RELATED TO DRAVET SYNDROME THAT MAY BE OF USE TO INDIVIDUAL FAMILIES WHO ARE IMPACTED BY THE CONDITION AS WELL AS INDIVIDUAL RESEARCHERS WHO ARE STUDYING THE CONDITION.
CO-SPONSORSHIP OF TWO RESEARCH PROJECTS IN CONJUNCTION WITH DRAVET SYNDROME FOUNDATION. PROJECT 1: TWO-YEAR RESEARCH GRANT ON KETOGENIC DIET MODULATED BRAIN ENERGY METABOLISM IN DRAVET SYNDROME- A MOUSE MODEL STUDY OF METABOLISM AND WHY KETOGENIC DIET WORKS, LEADING TO POTENTIAL MEDICATION OPTIONS RATHER THAN RESTRICTIVE DIET FOR KIDS. DMI BRAIN IMAGING OF MICE AND THEN KIDS, SO A NON-INVASIVE PROCEDURE. PROJECT 2: OPTIMIZING THE REGINAL ADMINISTRATION OF SCN8A-TARGETING RNAI THERAPY- A POST-DOCTORAL RESEARCH PROJECT TO STUDY THE SCN8A GENE, RNA BASED, AAV VECTORS FOR ONE TREATMENT.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Zac Maufe Treasurer | 7 | $0 | |
Joseph Sullivan Director | 7 | $0 | |
Deborah Chang Secretary | 25 | $0 | |
Daniel Chang President | 25 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Contributions, Gifts, Grants & Similar | $100,000 |
| Interest on Savings | $0 |
| Dividends & Interest | $0 |
| Net Rental Income | $0 |
| Net Gain on Sale of Assets | $0 |
| Capital Gain Net Income | $0 |
| Net ST Capital Gain | $0 |
| Income Modifications | $0 |
| Profit on Inventory Sales | $0 |
| Other Income | $0 |
| Total Revenue | $100,000 |
| Statement of Expenses | |
|---|---|
| Compensation of officers, directors, trustees, etc | $0 |
| Other employee salaries and wages | $0 |
| Pension plans, employee benefits | $0 |
| Interest | $0 |
| Taxes | $0 |
| Depreciation | $0 |
| Occupancy | $0 |
| Travel, conferences, and meetings | $0 |
| Printing and publications | $0 |
| Other expenses | $2,409 |
| Total operating and administrative expenses | $5,751 |
| Contributions, gifts, grants paid | $50,000 |
| Total expenses and disbursements | $55,751 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $95,756 |
| Savings and temporary cash investments | $0 |
| Net Accounts receivable | $0 |
| Net Pledges Receivable | $0 |
| Grants receivable | $0 |
| Receivables from Officers, Directors, or Controlling Persons | $0 |
| Net other notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Investments - land, buildings, equipment | $0 |
| Investments—mortgage loans | $0 |
| Investments—other | $0 |
| Net Land, buildings, and equipment | $0 |
| Other assets | $0 |
| Total assets | $95,756 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Mortgages and other notes payable | $0 |
| Other liabilities | $13 |
| Total liabilities | $13 |
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