Lyme Disease Biobank Foundation
- Assets
- $77.4k
- Revenue
- $829.1k
- Investments
- $0.0
- Employees
- 0
- Location
- Portland, OR
- Founding
- 08/2016
- Data as of
- 12/2023
- EIN
- 47-3975911
Organization Overview
Lyme Disease Biobank Foundation is located in Portland, OR. The organization was established in 2016. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Lyme Disease Biobank Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Lyme Disease Biobank Foundation generated $829.1k in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 1.1% each year. All expenses for the organization totaled $729.2k during the year ending 12/2023. While expenses have increased by 7.3% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO ADVANCE KNOWLEDGE AND FACILITATE RESEARCH OF THE PATHOGENESIS, DIAGNOSIS AND TREATMENT OF LYME DISEASE AND OTHER TICK-BORNE INFECTIONS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE LYME DISEASE BIOBANK, SPONSORED BY BAY AREA LYME FOUNDATION, COLLECTS AND CHARACTERIZE VITAL BLOOD, URINE AND TISSUE SAMPLES FOR RESEARCHERS. BY COLLECTING BLOOD AND URINE FROM UNTREATED PATIENTS WITH EARLY-STAGE LYME DISEASE AND PATIENTS WITH CHRONIC DISEASE AS WELL AS TISSUE SAMPLES FROM LATE-STAGE LYME PATIENTS, THIS IMPORTANT PROGRAM WILL HELP DRAMATICALLY IMPROVE RESEARCH EFFORTS TO ACCELERATE MEDICAL BREAKTHROUGHS IN THE UNDERSTANDING, DIAGNOSIS AND TREATMENT OF LYME DISEASE AND OTHER TICK-BORNE INFECTIONS. THE LYME DISEASE BIOBANK IS A COLLECTION OF HUMAN BIOLOGICAL SAMPLES THAT FACILITATES RESEARCH OF LYME DISEASE AND OTHER TICK-BORNE INFECTIONS. CURRENTLY, THERE ARE 97 RESEARCH PROJECTS RELYING ON BIOBANK SAMPLES. THESE PROJECTS ARE HELPING TO PAVE THE WAY FOR NEW DIAGNOSTICS AND THERAPEUTICS, AS WELL AS MAKING STRIDES TO IMPROVE OUR UNDERSTANDING OF LYME AND OTHER TICK-BORNE DISEASES AND CO-INFECTIONS. THE LYME DISEASE BIOBANK IS WORKING WITH COLLECTION SITES THROUGHOUT THE COUNTRY. THROUGH THE END OF 2023, MORE THAN 19,500 SAMPLES WERE SHIPPED TO RESEARCHERS. WE COLLECTED SAMPLES FROM 74 PARTICIPANTS IN 2023 BRINGING OUR TOTAL TO 1,258 PARTICIPANTS. OUR PERSISTENT LYME COHORT NOW INCLUDES 150 PARTICIPANTS. ADDITIONALLY, LYME DISEASE BIOBANK COLLABORATES WITH THE NATIONAL DISEASE RESEARCH INTERCHANGE (NDRI) FOR THE COLLECTION OF SURGICAL AND POST-MORTEM TISSUE SAMPLES, AND PARTNERS WITH MYLYMEDATA.ORG, A PROJECT OF LYMEDISEASE.ORG, TO PAIR SAMPLES WITH CLINICAL INFORMATION THAT CAN FURTHER ENHANCE RESEARCH. IN 2023, TISSUE WAS COLLECTED FROM 5 DONORS: 3 POST-MORTEM DONORS AND 2 SURGERIES. SINCE 2019, TISSUE HAS BEEN COLLECTED FROM 15 POST-MORTEM DONORS AND 13 SURGICAL DONORS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Linda Giampa Director | Trustee | 3 | $0 |
Wendy Adams Director, Treasurer | OfficerTrustee | 13.4 | $0 |
Liz Horn President | Officer | 17.4 | $166,728 |
Bonnie Crater Director, Secretary | OfficerTrustee | 0.08 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $813,495 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $124 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $813,619 |
| Total Program Service Revenue | $15,498 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $829,117 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $164,135 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $1,723 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $3,400 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $2,331 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $10,624 |
| All other expenses | $0 |
| Total functional expenses | $729,222 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $63,785 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $13,618 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $77,403 |
| Accounts payable and accrued expenses | $63,091 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $63,091 |
| Net assets without donor restrictions | $14,312 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $77,403 |