Foundation For Prader Willi Research
- Assets
- $6.7m
- Revenue
- $3.8m
- Investments
- $0.0
- Employees
- 11
- Location
- Walnut, CA
- Founding
- 05/2001
- Data as of
- 12/2021
- EIN
- 31-1763110
Organization Overview
Foundation For Prader Willi Research is located in Walnut, CA. The organization was established in 2001. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Foundation For Prader Willi Research employed 11 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Foundation For Prader Willi Research is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Foundation For Prader Willi Research generated $3.8m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 3.6% each year. All expenses for the organization totaled $3.1m during the year ending 12/2021. While expenses have increased by 1.4% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Foundation For Prader Willi Research has awarded 91 individual grants totaling $8,535,489. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
SUPPORTS RESEARCH TO ADVANCE THE UNDERSTANDING AND TREATMENT OF PRADER-WILLI SYNDROME
Describe the Organization's Program Activity:
Part 3 - Line 4a
THROUGH THE IMPLEMENTATION OF TRANSLATIONAL RESEARCH PROGRAMS, THE MANAGEMENT OF A WORLD-CLASS GRANTS PROGRAM, AND THE DEVELOPMENT OF PRADER WILLI SYNDROME (PWS) RESEARCH TOOLS, THE FOUNDATION FOR PRADER-WILL RESEARCH (FPWR) ADVANCES RESEARCH IN ORDER TO DEVELOP NEW TREATMENTS FOR PWS AND IMPROVE THE HEALTH AND WELL-BEING OF THOSE WITH PWS. UNDER THE GUIDANCE OF OUR SCIENTIFIC ADVISORY BOARD THROUGH A CAREFULLY MANAGED GRANTS PROCESS, FPWR SELECTS RESEARCH PROJECTS BASED ON THE COLLABORATIVE INPUT OF RESEARCHERS AND PARENTS, CHOOSING PROJECTS THAT ARE BOTH SCIENTIFICALLY MERITORIOUS AND HIGHLY RELEVANT FOR INDIVIDUALS WITH PWS AND THEIR FAMILIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
John Walter CEO Thru 12/17/21 | Officer | 40 | $242,434 |
Theresa Strong Director Of Research Programs | 40 | $146,847 | |
Susan Hedstrom Executive Director | Officer | 35 | $64,433 |
Jeannine Kowal President | OfficerTrustee | 0.5 | $0 |
Drew Harman Vice President Eff. 3/21 | OfficerTrustee | 0.5 | $0 |
Brent Snyder Director, Vice Pres Thru 3/21 | OfficerTrustee | 0.5 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Medical Research Council (Mrc) Uk Sbs Ac Research Services | 12/30/19 | $294,810 |
Doubletree New Orleans Conference Services | 12/30/19 | $107,614 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $292,163 |
| Related organizations | $0 |
| Government grants | $290,010 |
| All other contributions, gifts, grants, and similar amounts not included above | $3,029,947 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $3,612,120 |
| Total Program Service Revenue | $235,036 |
| Investment income | $16,677 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$92 |
| Net Income from Fundraising Events | -$24,782 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,838,959 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,108,251 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $649,205 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $351,240 |
| Compensation of current officers, directors, key employees. | $55,928 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $520,803 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $5,611 |
| Payroll taxes | $62,022 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $1,200 |
| Fees for services: Accounting | $71,311 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $149,866 |
| Advertising and promotion | $5,653 |
| Office expenses | $97,720 |
| Information technology | $30,696 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $2,665 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $2,322 |
| Insurance | $13,202 |
| All other expenses | $0 |
| Total functional expenses | $3,149,610 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $416 |
| Savings and temporary cash investments | $5,717,225 |
| Pledges and grants receivable | $459,250 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $130,629 |
| Net Land, buildings, and equipment | $1,548 |
| Investments—publicly traded securities | $5,542 |
| Investments—other securities | $0 |
| Investments—program-related | $430,000 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $6,744,610 |
| Accounts payable and accrued expenses | $61,609 |
| Grants payable | $1,409,874 |
| Deferred revenue | $1,750 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $1,473,233 |
| Net assets without donor restrictions | $4,990,690 |
| Net assets with donor restrictions | $280,687 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $6,744,610 |
Grants Awarded
Over the last fiscal year, Foundation For Prader Willi Research has awarded $1,037,551 in support to 12 organizations.
| Grant Recipient | Amount |
|---|---|
Aurora, IL PURPOSE: RESEARCH | $154,000 |
Houston, TX PURPOSE: RESEARCH | $108,000 |
St Louis, MO PURPOSE: RESEARCH | $108,000 |
Columbus, OH PURPOSE: RESEARCH | $107,950 |
UNIVERSITY OF TENNESSE PURPOSE: RESEARCH | $102,600 |
La Jolla, CA PURPOSE: RESEARCH | $100,000 |
Grants Recieved
Over the last fiscal year, we have identified 15 grants that Foundation For Prader Willi Research has recieved totaling $338,944.
| Awarding Organization | Amount |
|---|---|
Arant Family Charitable Trust Dunwoody, GA PURPOSE: CHARITABLE | $160,500 |
Goldman Sachs Charitable Gift Fund New York, NY PURPOSE: MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS | $50,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $26,312 |
A R Tony And Maria J Sanchez Family Foundation Houston, TX PURPOSE: PROGRAM SUPPORT | $25,000 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $16,850 |
Communities Of Coastal Georgia Foundation Inc St Simons Island, GA PURPOSE: GENERAL SUPPORT | $15,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Fritz B Burns Foundation Woodland Hills, CA | $180,854,841 | $52,854,889 |
Central Valley Recovery Services Inc Visalia, CA | $3,599,081 | $4,507,938 |
Foundation For Prader Willi Research Walnut, CA | $6,744,610 | $3,838,959 |
Taking Control Of Your Diabetes Solana Beach, CA | $2,888,686 | $2,832,970 |
Create Cures Foundation Santa Monica, CA | $2,110,360 | $1,248,713 |
Lyme Disease Biobank Foundation Portland, OR | $99,221 | $737,856 |
Diabetes Technology Society Burlingame, CA | $1,434,867 | $1,063,604 |
Lgs Foundation San Diego, CA | $1,489,428 | $785,563 |
Kern County Hispanic Commission On Alcohol And Drug Abuse Services Bakersfield, CA | $100,045 | $666,769 |
Lymedisease Org San Ramon, CA | $1,816,385 | $619,817 |
Brian Grant Foundation Portland, OR | $885,481 | $441,444 |
Project Sleep Los Angeles, CA | $385,708 | $460,177 |