Alpha-1 Foundation Inc
- Assets
- $35.5m
- Revenue
- $10.9m
- Investments
- $0.0
- Employees
- 19
- Location
- Miami, FL
- Founding
- 03/1996
- Data as of
- 06/2022
- EIN
- 65-0585415
Organization Overview
Alpha-1 Foundation Inc, operating under the name Alpha One Foundation, is located in Miami, FL. The organization was established in 1996. According to its NTEE Classification (E70) the organization is classified as: Public Health, under the broad grouping of Health Care and related organizations. As of 06/2023, Alpha One Foundation employed 19 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Alpha One Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Alpha One Foundation generated $10.9m in total revenue. This represents relatively stable growth, over the past 3 years the organization has increased revenue by an average of 0.8% each year. All expenses for the organization totaled $6.4m during the year ending 06/2022. You can explore the organizations financials more deeply in the financial statements section below.
Since 2021, Alpha One Foundation has awarded 46 individual grants totaling $5,292,923. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE ALPHA1 FOUNDATION IS COMMITTED TO FINDING A CURE FOR ALPHA1 ANTITRYPSIN DEFICIENCY AND TO IMPROVING THE LIVES OF ALPHAS WORLDWIDE
Describe the Organization's Program Activity:
Part 3 - Line 4a
ALPHA-1 RESEARCH NETWORK: THE ALPHA-1 RESEARCH INFRASTRUCTURE PROVIDES SUPPORT FOR A NETWORK OF ALPHA-1 INVESTIGATORS WORLDWIDE. IT IS ONE OF THE FOUNDATION'S MOST VALUABLE ASSETS AND INCLUDES THE DNA & TISSUE BANK, THERAPEUTIC DEVELOPMENT NETWORK, AND CLINICAL REOURCE CENTERS. THE FOUNDATION'S MISSION IS SERVED BY SCIENTIFIC MEETINGS THAT BRING TOGETHER STAKEHOLDERS WITH THE INTENT TO PROMOTE SCIENTIFIC DISCOVERY, IDENTIFY NEW APPROACHES TO THE DETECTION OF ALPHA-1, AND EDUCATE PHYSICIANS AND PATIENTS ON ALPHA-1. THE ALPHA-1 GRANTS AND AWARDS PROGRAM IS THE HEART OF THE FOUNDATION'S RESEARCH ACTIVITIES AND HAS ESTABLISHED ITSELF AS THE WORLDWIDE LEADER OF ALPHA-1 RESEARCH SUPPORT.
ALPHA-1 REGISTRY AND ACT STUDY: THE RESEARCH REGISTRY IS A CONFIDENTIAL DATABASE OF DIAGNOSED ALPHAS AND CARRIERS WILLING AND ABLE TO PARTICIPATE IN RESEARCH STUDIES AND CLINICAL TRIALS FOR NEW THERAPIES. IT IS COMPRISED OF BOTH PATIENT-SUPPORTED AND CLINICAL DATA. THE REGISTRY REPRESENTS THE LARGEST COHORT OF ALPHAS IN THE WORLD. THE GOAL OF THE ALPHA-1 CODED TESTING (ACT) STUDY IS TO PROVIDE A WAY FOR THOSE AT RISK, INCLUDING FAMILY MEMBERS OF DIAGNOSED ALPHAS, TO LEARN THEIR GENOTYPE. THE STUDY INCLUDES A RESEARCH QUESTIONNAIRE, A FINGER-STICK TESTING KIT, AND IS FREE AND CONFIDENTIAL.
ALPHA-1 NATIONAL CONFERENCE: THE 32ND ANNUAL ALPHA-1 NATIONAL EDUCATIONAL CONFERENCE WAS A HYBRID CONFERENCE HELD ON JUNE 9-11, 2023. AS THE LARGEST ANNUAL GATHERING OF THE ALPHA-1 COMMUNITY, THE NATIONAL CONFERENCE PROVIDES IMPORTANT OPPORTUNITIES FOR NETWORKING, EDUCATION, AND ADVOCACY. THE SPEAKERS INCLUDED SOME OF THE LEADING CLINICIANS AND RESEARCHERS IN THE ALPHA-1 FIELD TO BRING INCREDIBLE SUBJECT MATTER EXPERTISE AND EDUCATION TO THE COMMUNITY. THE PROGRAM COVERED A WIDE RANGE OF MEDICAL EDUCATION AND SUPPORTIVE TOPICS TO INFORM, EMPOWER AND MOTIVATE PATIENTS TO TAKE CHARGE OF THEIR HEALTH. THE LAST SIX YEARS OF PRESENTATIONS ARE AVAILABLE ON THE FOUNDATION'S WEBSITE AT WWW.ALPHA1.ORG.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Linda Rodriguez Development Director | 40 | $113,589 | |
Randel H Plant Sen Dir Research Progs | 40 | $134,428 | |
Angela T Mcbride Sen Dir Corp Relations | 40 | $120,202 | |
Scott Santarella President And CEO | Officer | 40 | $315,753 |
Mark B Delvaux CFO | Officer | 10 | $0 |
Darrell Kotton Director | Trustee | 4 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Alphanet Inc Management Services | 6/29/23 | $250,000 |
Moses & Singer Llp Legal Services | 6/29/23 | $153,349 |
Original Impressions Llc Printing And Publication | 6/29/23 | $169,118 |
Speaking Of Science Website Design | 6/29/23 | $102,500 |
Stephen Rennard Consultant | 6/29/23 | $115,000 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $9,050,130 |
| Noncash contributions included in lines 1a–1f | $216,394 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $9,050,130 |
| Total Program Service Revenue | $366,000 |
| Investment income | $465,635 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $8,788 |
| Net Gain/Loss on Asset Sales | $994,568 |
| Net Income from Fundraising Events | $4,963 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $10,890,084 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,723,851 |
| Grants and other assistance to domestic individuals. | $53,500 |
| Grants and other assistance to Foreign Orgs/Individuals | $806,117 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,369,894 |
| Pension plan accruals and contributions | $18,789 |
| Other employee benefits | $200,345 |
| Payroll taxes | $103,484 |
| Fees for services: Management | $220,000 |
| Fees for services: Legal | $115,164 |
| Fees for services: Accounting | $63,779 |
| Fees for services: Lobbying | $10,000 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $146,362 |
| Fees for services: Other | $358,316 |
| Advertising and promotion | $0 |
| Office expenses | $419,293 |
| Information technology | $79,249 |
| Royalties | $0 |
| Occupancy | $219,483 |
| Travel | $36,102 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $153,092 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $8,766 |
| Insurance | $36,235 |
| All other expenses | $0 |
| Total functional expenses | $6,364,206 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $7,943,740 |
| Savings and temporary cash investments | $4,433,622 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $675,118 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $167,500 |
| Net Land, buildings, and equipment | $12,982 |
| Investments—publicly traded securities | $21,875,585 |
| Investments—other securities | $0 |
| Investments—program-related | $363,069 |
| Intangible assets | $0 |
| Other assets | $25,000 |
| Total assets | $35,496,616 |
| Accounts payable and accrued expenses | $1,889,700 |
| Grants payable | $0 |
| Deferred revenue | $715,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $19,020 |
| Total liabilities | $2,623,720 |
| Net assets without donor restrictions | $29,569,884 |
| Net assets with donor restrictions | $3,303,012 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $35,496,616 |
Grants Awarded
Over the last fiscal year, Alpha-1 Foundation Inc has awarded $1,637,134 in support to 14 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF FLORIDA PURPOSE: Research | $457,398 |
BOSTON MEDICAL CENTER PURPOSE: Research | $99,500 |
BRIGHAM & WOMEN'S HOSPITAL PURPOSE: Research | $199,000 |
BOSTON UNIVERSITY PURPOSE: Research | $146,433 |
UNIVERSITY OF ALABAMA PURPOSE: Research | $74,500 |
COLUMBIA UNIVERSITY PURPOSE: Research | $141,167 |