Central Florida Down Syndrome Association Inc

Organization Overview

Central Florida Down Syndrome Association Inc, operating under the name Down Syndrome Association Of Central Florida, is located in Winter Park, FL. The organization was established in 1998. According to its NTEE Classification (P20) the organization is classified as: Human Service Organizations, under the broad grouping of Human Services and related organizations. As of 07/2022, Down Syndrome Association Of Central Florida employed 6 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Down Syndrome Association Of Central Florida is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 07/2022, Down Syndrome Association Of Central Florida generated $775.9k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 10.5% each year . All expenses for the organization totaled $428.0k during the year ending 07/2022. While expenses have increased by 0.9% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

TO CHANGE WHAT IS POSSIBLE FOR PEOPLE WITH DOWN SYNDROME THROUGH PROGRAMS, RESOURCES, AND ADVOCACY.

Describe the Organization's Program Activity:

Part 3 - Line 4a

ADVOCACY AND OUTREACH1. LOW DOWN ON LAW: IN PARTNERSHIP WITH DAVEY LAW GROUP, THE DOWN SYNDROME ASSOCIATION OF CENTRAL FLORIDA IS ABLE TO PROVIDE TWO LOW DOWN ON LAW DAY WORKSHOPS EACH YEAR. EXPERT LAWYERS, JUDGES, AND OFFICIALS IN THE CENTRAL FLORIDA COMMUNITY COME TOGETHER TO BREAK DOWN THE LEGAL COMPLEXITIES FAMILIES WITH SPECIAL NEEDS MUST NAVIGATE FOR THEIR LOVED ONES.2. STEP UP FOR DOWN SYNDROME WALK: A DAY OF COMMUNITY CELEBRATION, FAMILIES GET TOGETHER AND CELEBRATE THEIR LOVED ONE WITH DOWN SYNDROME. FAMILIES SET UP WALK TEAMS, RAISE FUNDS, FOR THE ORGANIZATION, AND ON THE DAY OF THE WALK, COME OUT TO WALK AND CELEBRATE THE ABILITIES OF THEIR LOVED ONE. COMMUNITY MEMBERS LEARN ABOUT DOWN SYNDROME AND COMMUNITY PARTNERS CAN SHOWCASE THEIR SERVICES, WARES, ETC. 3. FAMILY FUN DAY: IN PARTNERSHIP WITH OUR LOCAL THEME PARKS, DSACF IS PERIODICALLY ABLE TO PROVIDE COMPLIMENTARY TICKETS TO THEME PARKS SO THAT FAMILIES CAN ENJOY A DAY OF CAMARADERIE AND PAMPERING, WHILE CELEBRATING THEIR FAMILY MEMBERS WITH DOWN SYNDROME. TICKETS ARE RESERVED FOR MEMBERS WHO HAVE AN ACTIVE, PAID MEMBERSHIP AND CAPACITY LIMITS ARE DICTATED BY EACH THEME PARK. IN FY22 FAMILIES ENJPYED A FAMILY FUN DAY AT LEGOLAND FLORIDA, COURTESY OF THE MERLINS MAGIC WAND FOUNDATION.4. WORLD DOWN SYNDROME DAY CELEBRATIOIN: A COMMUNITY EVENT CELEBRATING ALL THAT MAKES THE DOWN SYNDROME COMMUNITY SPECIAL5. UF & UCF MEDICAL SCHOOL PRESENTATIONS: A SESSION WHERE DSACF BRINGS MULTIPLE FAMILIES TO PRESENT TO EMERGING MEDICAL STUDENTS ON THE IMPORTANCE OF HOW THEY DELIVER A DOWN SYNDROME DIAGNOSIS AFFECTS FAMILIES. STUDENTS ALSO HEAR FROM FAMILIES ON THE GOOD, BAD AND UGLY ABOUT BEING A PARENT AND NAVIGATING A WORLD THAT LARGELY DOESN'T KNOW A LOT ABOUT DOWN SYNDROME.


RESOURCES1. SCHOLARSHIPS AND EMERGENCY ASSISTANCE: DSACF OFFERS A WIDE VARIETY OF SCHOLARSHIPS TO COVER EXPENSES THAT TRADITIONAL INSURANCE MY NOT COVER, INCLUDING: SWIM LESSONS, THERAPIES, SPECIAL ASSESSMENTS, MEDICAL BILLS, ADAPTIVE EQUIPMENT, ETC. DSACF ALSO OFFERS EMERGENCY ASSISTANCE TO FAMILIES THAT HAVE AN UN-PLANNED NEED THAT CANNOT BE MET. FOR THE 2020-2021 FISCAL YEAR, DSACF PROVIDED OVER $20,000 IN SCHOLARSHIPS.2. EDUCATIONAL TRAININGS & SEMINARS: IT STARTS WITH HELLO (SOCIAL SKILLS TRAINING); LUNCH & LEARN MONTHLY SERIES; SPECIAL READS FOR SPECIAL NEEDS; FND PATHWAYS, FND EDUCACION ESPECIAL (FOR SPANISH SPEAKING FAMILIES), COFFE TALKS (SPANISH SPEAKING), NEW BABY WELCOME & BASKETS AND NEW FAMILY CELEBRATION (TWICE PER YEAR); SUPER SIBS (SIBLING SUPPORT GROUP WERIES THAT TAKES PLACE TWICE PER YEAR)3. SOCIAL GROUPS, OUTINGS AND EVENTS: D.A.D.S (DADS APPRECIATING DOWN SYNDROME) SUPPORT GROUP; MOM'S NIGHT OUT SUPPORT GROUP; ; FRIENDSHIP CLUB (FOR ADULTS LOOKING TO MINGLE AND INTERACT IN THE COMMUNITY WITH OTHER MEMBERS WITH DOWN SYNDROME): TRUNK OR TREAT; HOLIDAY MOVIE UNDER THE STARS, 3 KINGS DAY EVENT; SUMMER MOVIE


PROGRAMS1. PROGRAMS FOR AGES 0 - 5 YEARS OLD: NEW FAMILY CELEBRATION; NEW PARENT WELCOME KIT AND VISITS; MUSIC WITH MRS. RACHEL, PRE-K READINESS CAMP2. PROGRAMS FOR AGES 5 YEARS OLD - 18 YEARS OLD: IT STARTS WITH HELLO (SOCIAL SKILLS TRAINING); BUDDY UP TENNIS; UP BEAT JR.!; SUMMER SMILES CAMP3. PROGRAMS FOR ADULTS: BUDDY UP TENNIS; FRIENDSHIP CLUB; ENTREPRENEUR ACADEMY; UP BEAT!; READY SET SIGN; 4. PROGRAMS FOR PARENTS: READY SET SIGN; POTTY TRAINING; SPECIAL READS FOR SPECIAL NEEDS; LOW DOWN ON LAW (TWICE PER YEAR)


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Board, Officers & Key Employees

Name (title)Compensation
Heather Barnes
Executive Director
$84,031
Diane Levine
Board Chair
$0
Catherine Davey
Vice Chair
$0
Troy Culley
Treasurer
$0
Jeff Goodman
Director
$0
Patricia Lewis
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$3,741
Fundraising events$507,981
Related organizations$0
Government grants $29,615
All other contributions, gifts, grants, and similar amounts not included above$179,784
Noncash contributions included in lines 1a–1f $61,477
Total Revenue from Contributions, Gifts, Grants & Similar$721,121
Total Program Service Revenue$0
Investment income $21,646
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $29,917
Net Income from Fundraising Events -$46,147
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $775,933

Grants Recieved

Over the last fiscal year, we have identified 8 grants that Central Florida Down Syndrome Association Inc has recieved totaling $88,460.

Awarding OrganizationAmount
Victory Cup Initiative Inc

Winter Park, FL

PURPOSE: CHARITABLE PURPOSE

$55,900
Talk Of The Town Restaurant Group Foundation Inc

Orlando, FL

PURPOSE: Medical research

$13,687
Chesley Magruder Foundation

Orlando, FL

PURPOSE: GENERAL OPERATING

$10,000
The Dr P Phillips Foundation

Orlando, FL

PURPOSE: PROGRAM SUPPORT - SOCIAL SERVICES

$5,000
James And Gayle Halperin Foundation

Dallas, TX

PURPOSE: GENERAL SUPPORT

$1,500
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$1,073
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$990,276
Earnings$18,976
Ending Balance$971,300

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