Angelman Syndrome Foundation Inc

Organization Overview

Angelman Syndrome Foundation Inc is located in Aurora, IL. The organization was established in 2001. According to its NTEE Classification (H90) the organization is classified as: Medical Disciplines Research, under the broad grouping of Medical Research and related organizations. As of 09/2023, Angelman Syndrome Foundation Inc employed 6 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes. Angelman Syndrome Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 09/2023, Angelman Syndrome Foundation Inc generated $3.6m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 9.4% each year. All expenses for the organization totaled $3.6m during the year ending 09/2023. While expenses have increased by 8.3% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Angelman Syndrome Foundation Inc has awarded 64 individual grants totaling $5,965,998. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2023

Describe the Organization's Mission:

Part 3 - Line 1

THE FOUNDATION PROVIDES EDUCATIONAL TOOLS, INFORMATION AND SUPPORT TO INDIVIDUALS CONCERNED WITH THOSE AFFECTED BY ANGELMAN SYNDROME. THE FOUNDATION SUPPORTS AND FUNDS BASIC SCIENCE RESEARCH AND CLINICAL TRIALS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE FOUNDATION PROVIDES EDUCATIONAL TOOLS, INFORMATION AND SUPPORT TO INDIVIDUALS CONCERNED WITH THOSE AFFECTED BY ANGELMAN SYNDROME. THE FOUNDATION SUPPORTS AND FUNDS AS-SPECIFIC RESEARCH TO FIND VIABLE THERAPEUTICS AND A CURE FOR AS.


CONFERENCE AND GRANT PROGRAM


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Board, Officers & Key Employees

Name (title)Compensation
Amanda Moore
CEO
$123,212
Marianne Benet
Director
$0
Anna Blanding
Director
$0
Rebecca Burdine
Sac Chair
$0
Michael Cecere
Treasurer
$0
Peter England
Secretary
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$2,516,563
Noncash contributions included in lines 1a–1f $177,827
Total Revenue from Contributions, Gifts, Grants & Similar$2,516,563
Total Program Service Revenue$1,017,496
Investment income $100,472
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $3,638,325

Grants Awarded

Over the last fiscal year, Angelman Syndrome Foundation Inc has awarded $344,012 in support to 3 organizations.

Grant RecipientAmount

UNIVERSITY OF NORTH CAROLINACHAPEL HILL

PURPOSE: RESEARCH

$100,970

FOUNDATION FOR ANGELMAN SYNDROMETHERAPEUTICS

PURPOSE: RESEARCH

$143,155

CHILDREN'S MERCY - KANSAS CITY

PURPOSE: RESEARCH

$99,887
View Grant Profile

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$3,638,325
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