Mitoaction Inc

Organization Overview

Mitoaction Inc is located in Novi, MI. The organization was established in 2005. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, Mitoaction Inc employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Mitoaction Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2022, Mitoaction Inc generated $415.0k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 8 years, the organization has seen revenues fall by an average of (3.5%) each year. All expenses for the organization totaled $478.8k during the year ending 12/2022. As we would expect to see with falling revenues, expenses have declined by (2.4%) per year over the past 8 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

TO IMPROVE THE QUALITY OF LIFE TODAY FOR PEOPLE AFFECTED BY MITOCHONDRIAL DISEASE THROUGH SUPPORT, EDUCATION, EMPOWERMENT, AND ADVOCACY INITIATIVES AND TO ENGAGE THE COMMUNITY FOR BETTER CARE AND AWARENESS ABOUT THE DISEASE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

OUTREACH AND EDUCATION PROGRAMS WHICH IMPROVE THE PATIENT OR FAMILY'S UNDERSTANDING OF MITOCHONDRIAL DISEASE AND WHCIH EDUCATE BOTH THE GENERAL AND THE MEDICAL COMMUNITY, IMPROVE THE PATIENT'S QUALITY OF LIFE AND EMPOWER THE PATIENT / PARENT TO BE AN ADVOCATE IN THEIR CASE. MITOACTION'S INITIATIVES IN THIS AREA INCLUDE AN AWARENESS WALK, FREE EDUCATIONAL DVD'S AND SCHOOL ADVOCACY RESOURCES, WEEKLY SUPPORT GROUPS, MONTHLY EDUCATIONAL LECTURE SERIES.


PATIENT & FAMILY SUPPPORT - MITOACTION STRIVES TO OFFER SUPPORT & PRACTICAL RESOURCES AT NO COST TO EVERY INDIVIDUAL OR CAREGIVER AFFECTED BY MITOCHONDRIAL DISEASE. THESE INITIATIVES HELP PATIENTS AND FAMILIES DEAL WITH DIAGNOSIS OF MITOCHONDRIAL DISEASE TODAY AND OFFER ASSISTANCE IN NAVIGATING THE MEDICAL SYSTEM, SCHOOL, COMMUNITY OR WORKPLACE. MITOACTION'S RESOURCES INCLUDE "MITO 411" A TOLL-FREE PEER SUPPORT HOTLINE; MONTHLY INTERNATIONAL TELECONFERENCES, FAMILY SOCIALS AND SUPPORT GROUPS; ACCESS TO EXPERT INFORMATION VIA WEB AND TELECONFERENCING, PODCASTS AND VIDEOS, DEDICATED ONLINE SUPPORT TOOLS AND FORUMS FOR PARENTS, TEENS AND ADULTS IN ORDER TO REDUCE ISOLATION AND FEAR OF LIVING WITH THE DISEASE.


MITOACTION HAS CREATED SPECIAL PARTNERSHIPS WITH THREE US CAMPS AS PART OF OUR MISSION TO MAKE SUMMER CAMP A POSSIBILITY FOR EVERY CHILD WHO SUFFERS FROM MITOCHONDRIAL DISEASE. EACH OF THESE CAMPS IS PART OF THE NATIONALLY ACCREDITED SERIOUSFUN CAMP NETWORK, AND OFFERS A SAFE, MEDICALLY SUPERVISED PROGRAM THAT ALLOWS MITO KIDS TO BE FREE AND SAFE, MEET NEW FRIEDNS, HAVE FUN, FORGET ABOUT THEIR TUBES AND MEDS, AND "JUST BE KIDS". THROUGH OUR PARTNERSHIPS, THESE CAMPS ARE WELL-EQUIPPED TO SHAPE A PROGRAM FOR OUR MITO KIDS BY UNDERSTANDING THE UNIQUE CHALLENGES OF MITOCHONRIAL DISEASE. THE MATTHEW HARTY CAMP FUND HELPS ENSURE THESE KIDS AND FAMILIES CAN HAVE THIS INCREDIBLE CAMP EXPERIENCE COMPLETELY FREE OF CHARGE.


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Board, Officers & Key Employees

Name (title)Compensation
Kira Mann
CEO
$99,988
Philip Borden
Former Presi
$0
Natashia Cheatham
Member
$0
Saad Dinno
Member
$0
Jessie Fein
Member
$0
Paul Harty
President
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$284,894
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$284,894
Total Program Service Revenue$0
Investment income $21,616
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $108,490
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $415,000

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