Patients Rising Inc

Organization Overview

Patients Rising Inc is located in Washington, DC. The organization was established in 2016. According to its NTEE Classification (E60) the organization is classified as: Health Support, under the broad grouping of Health Care and related organizations. As of 12/2022, Patients Rising Inc employed 9 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Patients Rising Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2022, Patients Rising Inc generated $872.3k in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (2.1%) each year. All expenses for the organization totaled $1.6m during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH CHRONIC AND LIFE-THREATENING ILLNESSES AND ADVOCATE FOR ACCESS TO TREATMENTS, INNOVATIONS, AND CARE PATIENTS NEED.

Describe the Organization's Program Activity:

Part 3 - Line 4a

VOICES OF VALUE IS A MULTI-MEDIA HUB BY PATIENTS FOR PATIENTS TO SHARE KNOWLEDGE AND ADVOCATE FOR THE NEEDS OF THEIR COMMUNITY. PATIENTS SHARE INSIGHTS AND PRESENT THE TRUE CHALLENGES OF LIVING WITH CHRONIC AND LIFE-THREATENING ILLNESSES.


PATIENTS RISING LEARNING IS A FREE ONLINE EDUCATIONAL PROGRAM DEVELOPED TO HELP PATIENTS AND CAREGIVERS BUILD SELF-ADVOCACY SKILLS, LEARN ABOUT THEIR CONDITIONS, NAVIGATE HEALTHCARE COVERAGE, AND ULTIMATELY GET ACCESS TO THE BEST CARE AND TREATMENT POSSIBLE.


PATIENT ACCESS AND AFFORDABILITY PROJECT: WE EVALUATE THE VARIOUS FRAMEWORKS THAT ASSESS AND DEMONSTRATE THE VALUE OF INNOVATIVE TREATMENTS. THESE TREATMENTS HELP PATIENTS WHO ARE LIVING WITH RARE AND CHRONIC DISEASES. AS THE MARKET BECOMES MORE INNOVATIVE, WE FOCUS ON WAYS TO PROMOTE ACCESS AND MAINTAIN AFFORDABILITY. WE LOOK BEYOND THE ONE-SIZE-FITS-ALL APPROACH, WHICH CAN DISCRIMINATE AGAINST PATIENTS. WE PROVIDE PATIENT-POWERED PATHWAYS TO HELP BOTH THE PAYERS AND GOVERNMENT AGENCIES AS THEY MAKE CRITICAL PAYMENT DECISIONS FOR THESE PAYMENTS.


PATIENTS RISING PROVIDES ONE ON ONE NAVIGATION SUPPORT SERVICES FOR PATIENTS THROUGH OUR CONCIERGE HELPLINE. WE DIRECTLY HELP PATIENTS WHO CALL AND EMAIL WITH DIRECT SUPPORT FROM ONE OF OUR STAFF MEMBERS. THIS CAN HELP THEM WITH ANYTHING FROM HOW TO FIND RESOURCES FOR FINANCIAL SUPPORT TO HOW TO WRITE A LETTER TO THEIR INSURER IF THEY HAVE BEEN DENIED COVERAGE FOR A NEEDED TREATMENT.


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Board, Officers & Key Employees

Name (title)Compensation
John Kabateck
Chairman
$0
Teressa Wilcox
Executive Director
$178,334
Darla S Bell
Director
$0
Jeffrey Oldham
Director
$0
Jonathan Wilcox
Director
$0

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Omni Health Media
Consulting
$136,900
Seven Twenty Strategies
Professional
$116,819
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$205,000
Fundraising events$0
Related organizations$0
Government grants $28,810
All other contributions, gifts, grants, and similar amounts not included above$638,441
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$872,251
Total Program Service Revenue$0
Investment income $0
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $872,251

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