Necrotizing Enterocolitis Society
- Assets
- $955.4k
- Revenue
- $351.3k
- Investments
- $0.0
- Employees
- 5
- Location
- Davis, CA
- Founding
- 08/2014
- Data as of
- 12/2023
- EIN
- 46-4426455
Organization Overview
Necrotizing Enterocolitis Society is located in Davis, CA. The organization was established in 2014. According to its NTEE Classification (F19) the organization is classified as: Support N.E.C., under the broad grouping of Mental Health & Crisis Intervention and related organizations. As of 12/2023, Necrotizing Enterocolitis Society employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Necrotizing Enterocolitis Society is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Necrotizing Enterocolitis Society generated $351.3k in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 30.0% each year . All expenses for the organization totaled $399.9k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE NEC SOCIETY IS A CLINICIAN-FAMILY COLLABORATIVE ORGANIZATION SPECIFICALLY FOCUSED ON THE UNDERSTANDING, PREVENTION AND TREATMENT OF NECROTIZING ENTEROCOLITIS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
IN 2023, THE NEC SOCIETY REACHED MORE PATIENT-FAMILIES AFFECTED BY NECROTIZING ENTEROCOLITIS (NEC) THAN EVER BEFORE. WE ALSO HOSTED NORTH AMERICAS ONLY CONFERENCE ON NEC, WHICH BROUGHT TOGETHER MORE THAN 200 PARTICIPANTS FROM 9 COUNTIRES AND 35 US STATES. IN PARTNERSHIP WITH OUR SCIENTIFIC ADVISORY COUNCIL AND BOARD OF DIRECTORS, WE PUBLISHED MORE THAN 200 RESEARCH ARTICLES ON NEC. WE ALSO RELEASED A STORYBOOK FOR BEREAVED FAMILIES, TITLED FOREVER OUR LITTLE ONE. OUR COMMUNITYS STRENGTH INSPIRES US TO WORK TIRELESSLY TOWARD A WORLD WITHOUT THE DEVASTATION OF NEC. WE INVITE YOU TO LEARN MORE HERE: HTTPS://NECSOCIETY.ORG/WP-CONTENT/UPLOADS/2023/12/NEC-SOCIETY-CASE-STATEMENT-2024.PDF
THE NEC SYMPOSIUM IS THE ONLY CONFERENCE IN NORTH AMERICA FOCUSED ON NECROTIZING ENTEROCOLITIS AND THE ONLY NEC MEETING IN THE WORLD THAT UNITIES THE PATIENT-FAMILY AND CLINICIAN-SCIENTIST COMMUNITY. THE NEC SYMPOSIUM, HOSTED IN PARTNERSHIP WITH CINCINNATI CHILDRENS HOSPITAL, PRESENTED 20 EDUCATIONAL SESSIONS TO MORE THAN 200 PARTICIPANTS FROM 9 COUNTRIES AND 35 US STATES. THE CONFERENCE AIMED TO TRANSFORM OUR NEWLY ESTABLISHED NEC RESEARCH PRIORITIES INTO ACTIONABLE RESEARCH PROJECTS. THE COLLABORATIONS, RESEARCH, AND ADVOCACY STEMMING FROM THE 2023 NEC SYMPOSIUM WILL REVERBERATE IN THE NICU COMMUNITY FOR YEARS. WE INVITE YOU TO LEARN MORE HERE: HTTPS://NECSOCIETY.ORG/2023-NEC-SYMPOSIUM/
THE NEC SOCIETY PROVIDED EDUCATIONAL RESOURCERS OF EMPOWERMENT AND COMFORT, INCLUDING STORYBOOKS, TO MORE THAN 500 FAMILIES WITH A CHILD RECENTLY DIAGNOSED WITH NEC OR WHO RECENTLY LOST THEIR CHILD TO NEC. THE NEC BIOREPOSITORY ENROLLED MORE THAN 300 INFANTS, BRINGING US CLOSER TO UNDERSTANDING HOW AND WHY THIS DISEASE OCCURS SO WE CAN LEARN HOW TO PREVENT THE DISEASE. THE NEC SOCIETY ALSO PRESENTED AT AND PARTICIPATED IN THE PEDIATRIC ACADEMIC SOCIEITIES MEETING, THE AMERICAN ACADEMY OF PEDIATRICS MEETING, AND CONFERNECES AROUND NORTH AMERICA THROUGOUT THE YEAR TO ADVANCE THE SCIENCE OF NEC AND URGENCY OF OUR WORK. WE ALSO CONTINUED TO EXPAND OUR PATIENT-FAMILY AND CLINICIAN-SCIENTIST COMMUNITIES THROUGH THE NEC RESEARCH INCUBATOR.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jennifer Canvasser Executive Director | Officer | 40 | $56,319 |
Kari Gregerson Director | Trustee | 1 | $0 |
Jenny Quinn Director | Trustee | 1 | $0 |
Noelle Sechrest Director | Trustee | 1 | $0 |
Stephanie Ruidiaz Director | Trustee | 1 | $0 |
Nicola Juri Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $1,648 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $307,357 |
| Noncash contributions included in lines 1a–1f | $16,445 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $309,005 |
| Total Program Service Revenue | $0 |
| Investment income | $34,417 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $351,309 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $21,050 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $56,500 |
| Compensation of current officers, directors, key employees. | $3,593 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $152,585 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $19,516 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $9,658 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $18,042 |
| Advertising and promotion | $7,009 |
| Office expenses | $39,677 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $12,252 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $60,920 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,730 |
| All other expenses | $0 |
| Total functional expenses | $399,939 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $946,695 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $8,737 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $955,432 |
| Accounts payable and accrued expenses | $18,002 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $18,002 |
| Net assets without donor restrictions | $928,693 |
| Net assets with donor restrictions | $8,737 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $955,432 |
Grants Awarded
Over the last fiscal year, Necrotizing Enterocolitis Society has awarded $15,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
OREGON HEALTH & SCIENCE UNIVERSITY | | | $5,000 |
MEDICAL UNIVERSITY OF SOUTH CAROLIN | | | $5,000 |
REGENTS OF UC | | | $5,000 |