Li Fraumeni Syndrome Association
- Assets
- $381.1k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Holliston, MA
- Founding
- 02/2014
- Data as of
- 12/2021
- EIN
- 45-2284811
Organization Overview
Li Fraumeni Syndrome Association is located in Holliston, MA. The organization was established in 2014. According to its NTEE Classification (E86) the organization is classified as: Patient & Family Support, under the broad grouping of Health Care and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Li Fraumeni Syndrome Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Li Fraumeni Syndrome Association generated $155.6k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 12.7% each year . All expenses for the organization totaled $216.5k during the year ending 12/2021. While expenses have increased by 19.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
LI-FRAUMENI SYNDROME ASSOCIATION, INC. PROVIDES A WIDE RANGE OF INFORMATION, ADVOCACY, AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES WITH LI FRAUMENI SYNDROME. WE SUPPORT A CONSORTIUM OF RESEARCHERS, MEDCIAL PROVIDERS AND CAREGIVERS TO FURTHER RESEARCH AND PROMOTE OPITAM CARE FOR THE LFS COMMUNITY.
Describe the Organization's Program Activity:
Part 3
LI-FRAUMENI SYNDROME ASSOCIATION, INC. PROVIDES A WIDE RANGE OF INFORMATION, ADVOCACY, AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES WITH LI FRAUMENI SYNDROME. WE SUPPORT A CONSORTIUM OF RESEARCHERS, MEDCIAL PROVIDERS AND CAREGIVERS TO FURTHER RESEARCH AND PROMOTE OPITAM CARE FOR THE LFS COMMUNITY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jennifer Perry President/co-Founder | 20 | $0 | |
Holly Fraumeni Vice President | 20 | $0 | |
Sandi Barrett Secretary | 4 | $0 | |
Michelle Giovenelli Treasurer | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $163,195 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $0 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | -$7,647 |
| Other Revenue | $34 |
| Total Revenue | $155,582 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $0 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $90 |
| Other expenses | $216,370 |
| Total expenses | $216,460 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $381,148 |
| Other assets | $0 |
| Total assets | $381,148 |
| Total liabilities | $732 |
| Net assets or fund balances | $380,416 |
Grants Awarded
Over the last fiscal year, Li Fraumeni Syndrome Association has awarded $125,500 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Salt Lake City, UT PURPOSE: SUPPLEMENTAL FUNDING IN ORIGINAL LSFA GRANT EXPLORING P53 THERAPY AND PREVENTION | $100,000 |
Boston, MA PURPOSE: CAMPER SCHOLARSHIP FOR CHILDREN TO ATTEND SUMMER CAMP | $20,000 |
New Haven, CT PURPOSE: CAMPER SCHOLARSHIP FOR CHILDREN TO ATTEND SUMMER CAMP | $5,500 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Li Fraumeni Syndrome Association has recieved totaling $6,708.
| Awarding Organization | Amount |
|---|---|
Leatherwood Foundation Denver, CO PURPOSE: CANCER SUPPORT | $6,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $658 |
Xcel Energy Foundation Minneapolis, MN PURPOSE: MATCHING EMPLOYEE DONATION | $50 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Care Design New York Llc Albany, NY | $58,406,708 | $119,726,125 |
Achieve Behavioral Health Airmont, NY | $24,875,232 | $34,586,608 |
Chai Lifeline Inc New York, NY | $26,757,379 | $32,449,986 |
Ronald Mcdonald House Of New York Inc New York, NY | $139,787,663 | $13,785,950 |
Parents Information Group For Exceptional Children Inc Syracuse, NY | $9,814,349 | $10,936,135 |
Make-A-Wish Foundation Of Metro New York And Western New York New York, NY | $22,644,379 | $8,717,890 |
The Hospital Cottages For Children Southborough, MA | $6,634,641 | $8,685,651 |
Make-A-Wish Foundation Of Massachusetts And Rhode Island Inc Boston, MA | $19,449,971 | $5,852,582 |
Ronald Mcdonald House Charities New York Metro Inc New Hyde Park, NY | $27,231,643 | $8,955,220 |
Healthcare Chaplaincy Inc New York, NY | $8,394,087 | $3,509,010 |
Make-A-Wish Foundation Of Ct Inc Trumbull, CT | $14,751,586 | $5,558,740 |
Childrens Health Home Of Wny Inc Buffalo, NY | $1,132,387 | $3,208,101 |