Care Beyond Diagnosis
- Assets
- $325.9k
- Revenue
- $162.1k
- Investments
- $0.0
- Employees
- 2
- Location
- Garner, NC
- Founding
- 01/2018
- Data as of
- 12/2020
- EIN
- 38-4040391
Organization Overview
Care Beyond Diagnosis is located in Garner, NC. The organization was established in 2018. According to its NTEE Classification (E12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Health Care and related organizations. As of 12/2020, Care Beyond Diagnosis employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Care Beyond Diagnosis is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2020, Care Beyond Diagnosis generated $162.1k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 3 years, the organization has seen revenues fall by an average of (48.1%) each year. All expenses for the organization totaled $386.7k during the year ending 12/2020. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
CARE BEYOND DIAGNOSIS SUPPORTS PATIENTS, FAMILIES, AND COMMUNITIES AFTER A RARE DISORDER DIAGNOSIS THROUGH INNOVATIVE AND UNIQUE PROGRAMS. CARE BEYOND DIAGNOSIS (CBD) UNDERSTANDS THE ISSUES FACED BY PATIENTS AND FAMILIES BEYOND THEIR DIAGNOSIS AND MEDICAL TREATMENT. THROUGH TAILORED PROGRAMS THAT ASSIST IN FINANCIAL SUPPORT, LOGISTICS, EMPLOYMENT OPPORTUNITIES, AND GENERAL WELLBEING CBD HOPES TO UPLIFT AND EMPOWER THOSE DEALING WITH A RARE DISORDER IN THEIR LIFE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO DEVELOP INTERNATIONALLY RECOGNIZED CLINICAL GUIDELINES FOR RARE DISEASE IN EFFORTS TO BRING AWARENESS, FINANCIAL SUPPORT, TIMELY DIAGNOSIS, AND COMPREHENSIVE TREATMENT TO AFFLICTED INDIVIDUALS AND THEIR FAMILIES.
TO PARTNER WITH EXISTING PATIENT ADVOCACY GROUPS TO PROMOTE EDUCATION, EMPOWERMENT, AND PROVIDE PATIENTS WITH NECESSARY MEDICAL EQUIPMENT. CARE BEYOND DIAGNOSIS (CBD) FUNDED TWO WHEELCHAIRS FOR A RARE DISEASE PATIENTS IN BOTSWANA AND PAKISTAN. CBD ALSO FUNDED THE START-UP OF A PATIENT ORGANIZATION CALLED RARE DISEASE AND DISABILITIES AFRICA.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jeffrey Donohue Co-Ceo | Officer | 40 | $0 |
Yanique Donohue Co-Ceo | Officer | 40 | $0 |
Justin Marks Board Member | Trustee | 40 | $0 |
Sierra Myrick Board Member | Trustee | 40 | $0 |
Dele Oyebande Vice Chair | Officer | 52 | $0 |
Rebecca Southall Chair | Officer | 60 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $162,033 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $162,033 |
| Total Program Service Revenue | $0 |
| Investment income | $92 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $162,125 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $160,000 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $27,575 |
| Payroll taxes | $12,240 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $141,376 |
| Advertising and promotion | $0 |
| Office expenses | $3,791 |
| Information technology | $3,219 |
| Royalties | $0 |
| Occupancy | $606 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $386,688 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $157,147 |
| Savings and temporary cash investments | $168,771 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $325,918 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $325,918 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $325,918 |