International 22q11 2 Deletion Syndrome Foundation Inc
- Assets
- $116.6k
- Revenue
- $282.5k
- Investments
- $0.0
- Employees
- 0
- Location
- Moorestown, NJ
- Founding
- 02/2004
- Data as of
- 12/2019
- EIN
- 36-4540878
Organization Overview
International 22q11 2 Deletion Syndrome Foundation Inc is located in Moorestown, NJ. The organization was established in 2004. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. International 22q11 2 Deletion Syndrome Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2019, International 22q11 2 Deletion Syndrome Foundation Inc generated $282.5k in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 27.2% each year . All expenses for the organization totaled $260.9k during the year ending 12/2019. While expenses have increased by 19.1% per year over the past 5 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2019
Describe the Organization's Mission:
Part 3 - Line 1
TO EDUCATE AND INCREASE AWARENESS REGARDING THE 22Q11.2 DELETION SYNDROME, ASSIST CLINICAL CARE CENTERS THAT PROVIDE SERVICES TO INDIVIDUALS AFFECTED BY THIS SYNDROME, AND PROVIDE FAMILY SUPPORT AND A HOTLINE FOR FAMILIES WITH MEMBERS AFFECTED BY THE SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FINANCIAL SUPPORT FOR MEDICAL CONFERENCES AND AWARENESS BOOTHS AT KEY VENUES FOR MEDICAL PROFESSIONALS. BIENNIAL CONFERENCE HELD IN CONJUNCTION WITH CHOP AND OTHER SPONSORS FOR AWARENESS AND EDUCATION OF THE SYNDROME. FINANCIAL SUPPORT FOR RESEARCH RELATED TO CHROMOSOME 22Q11.2 DIFFERENCES.
ORGANIZATION OF ANNUAL 22Q AT THE ZOO! WORLDWIDE AWARENESS DAY.
RAISING AWARENESS OF THE SYNDROME AND DISTRIBUTION OF RESOURCES. DISTRIBUTION OF "PARENT BINDER" FOR NEWLY DIAGNOSED FAMILIES WITH INFORMATION AND RESOURCES. RAISING AWARENESS OF THE 22Q11.2 DELETION SYNDROME THROUGH MAILINGS, ANNUAL CALENDAR CAMPAIGN, NEWSLETTERS, MAGNETS AND BRACELETS. MAINTENANCE OF A "HOTLINE" THROUGH EMAIL/WEBSITE/TOLL-FREE NUMBER FOR PARENTS AND MEDICAL PROFESSIONALS TO OBTAIN INFORMATION, REFERRALS AND OTHER SUPPORT.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Marc Weinberg ESQ Chairperson | Officer | 1 | $0 |
Missy Disibio Vice-Chairperson | Officer | 1 | $0 |
Suzanne Dicamillo Treasurer | Officer | 1 | $0 |
Melissa Maisenbacher Ms Cgc Secretary | Officer | 1 | $0 |
Arora Manish Trustee | Trustee | 1 | $0 |
Donna Mcdonald-Mcginn Ms Cgc Trustee | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $253,410 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $253,410 |
| Total Program Service Revenue | $21,451 |
| Investment income | $76 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $7,569 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $282,506 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $182,338 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $5,624 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $36,873 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $2,031 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,227 |
| All other expenses | $0 |
| Total functional expenses | $260,907 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $113,061 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $3,563 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $116,624 |
| Accounts payable and accrued expenses | $5,794 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $5,794 |
| Net assets without donor restrictions | $100,779 |
| Net assets with donor restrictions | $10,051 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $116,624 |
Grants Awarded
Over the last fiscal year, International 22q11 2 Deletion Syndrome Foundation Inc has awarded $157,719 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
Philadelphia, PA PURPOSE: MEDICAL RESEARCH STUDY | $80,035 |
New York, NY PURPOSE: MEDICAL RESEARCH STUDY | $77,684 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that International 22q11 2 Deletion Syndrome Foundation Inc has recieved totaling $7,279.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $7,279 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Center For Disability Services Inc Albany, NY | $69,306,939 | $100,152,127 |
United Cerebral Palsy Association Of Greater Suffolk Inc Hauppauge, NY | $39,831,296 | $49,482,663 |
New Jersey Institute For Disabilities Inc Edison, NJ | $27,487,880 | $40,761,204 |
United Cerebral Palsy Of Cental Pennsylvania Inc Camp Hill, PA | $23,326,722 | $39,610,119 |
United Cerebral Palsy Association Of Nassau County Inc Roosevelt, NY | $29,125,772 | $39,914,178 |
Cerebral Palsy Of North Jersey Inc Livingston, NJ | $20,638,795 | $38,220,966 |
United Cerebral Palsy Of Queens Jamaica, NY | $21,409,669 | $30,225,069 |
Children And Adult Disability And Educational Services Swarthmore, PA | $30,621,281 | $35,402,318 |
Ladacin Network Inc Wanamassa, NJ | $18,550,993 | $28,683,732 |
United Cerebral Palsy Association Of The North Country Inc Canton, NY | $24,646,021 | $25,661,057 |
Cerebral Palsy Of Westchester Inc Rye Brook, NY | $30,519,949 | $26,619,533 |
Enable Inc Princeton, NJ | $15,406,135 | $22,111,061 |