Spina Bifida Association Of Kentucky Inc
- Assets
- $171.9k
- Revenue
- $216.6k
- Investments
- $0.0
- Employees
- 3
- Location
- Louisville, KY
- Founding
- 03/1984
- Data as of
- 12/2023
- EIN
- 31-1081176
Organization Overview
Spina Bifida Association Of Kentucky Inc is located in Louisville, KY. The organization was established in 1984. As of 12/2023, Spina Bifida Association Of Kentucky Inc employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Spina Bifida Association Of Kentucky Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Spina Bifida Association Of Kentucky Inc generated $216.6k in total revenue. The organization has seen a slow decline revenue. Over the past 9 years, revenues have fallen by an average of (0.7%) each year. All expenses for the organization totaled $227.7k during the year ending 12/2023. As we would expect to see with falling revenues, expenses have declined by (3.3%) per year over the past 9 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO BUILD A BETTER AND BRIGHTER FUTURE FOR ALL THOSE IMPACTED BY SPINA BIFIDA
Describe the Organization's Program Activity:
Part 3 - Line 4a
SPINA BIFIDA FAMILY CAMP ONE OF SBAK'S MOST POPULAR PROGRAMS IS THE ANNUAL FAMILY CAMP WEEKEND AT THE CENTER FOR COURAGEOUS KIDS IN SCOTTSVILLE KY. THIS CAMP ALLOWS CHILDREN WITH SPINA BIFIDA AND THEIR FAMILIES TO ATTEND AN ACCESSIBLE, MEDICALLY STAFFED SLEEP-AWAY CAMP WHERE FAMILIES PARTICIPATE IN FISHING, ARCHERY, SWIMMING, AND MORE. IN 2023, 29 FAMILIES ATTENDED THIS THREE-DAY CAMP.
SPINA BIFIDA FAMILY CAMP ONE OF SBAK'S MOST POPULAR PROGRAMS IS THE ANNUAL FAMILY CAMP WEEKEND AT THE CENTER FOR COURAGEOUS KIDS IN SCOTTSVILLE KY. THIS CAMP ALLOWS CHILDREN WITH SPINA BIFIDA AND THEIR FAMILIES TO ATTEND AN ACCESSIBLE, MEDICALLY STAFFED SLEEP-AWAY CAMP WHERE FAMILIES PARTICIPATE IN FISHING, ARCHERY, SWIMMING, AND MORE. IN 2023, 29 FAMILIES ATTENDED THIS THREE-DAY CAMP.
CHILDREN'S PROGRAMS FROM NEWBORN TO TEEN, SBAK PROVIDES SOCIAL AND EDUCATIONAL PROGRAMMING TO HELP KIDS WITH SPINA BIFIDA AND THEIR PARENTS/GUARDIANS LEARN TO NAVIGATE THEIR EVER-CHANGING WORLD. THESE PROGRAMS PROVIDE A CHANCE FOR KIDS TO INTERACT WITH OTHERS WHO HAVE SIMILAR CHALLENGES AND, AS THEY GROW, TEACHES THEM HOW TO ADVOCATE FOR THEMSELVES AND MANGE THEIR OWN MEDICAL CARE. PARENTS/GUARDIANS ARE PROVIDED WITH EDUCATIONAL MATERIALS AND A CHANCE TO GET INFORMATION AND ADVICE FROM EXPERTS AND OTHER PARENTS WHO FACE SIMILAR ISSUES.
CHILDREN'S PROGRAMS FROM NEWBORN TO TEEN, SBAK PROVIDES SOCIAL AND EDUCATIONAL PROGRAMMING TO HELP KIDS WITH SPINA BIFIDA AND THEIR PARENTS/GUARDIANS LEARN TO NAVIGATE THEIR EVER-CHANGING WORLD. THESE PROGRAMS PROVIDE A CHANCE FOR KIDS TO INTERACT WITH OTHERS WHO HAVE SIMILAR CHALLENGES AND, AS THEY GROW, TEACHES THEM HOW TO ADVOCATE FOR THEMSELVES AND MANGE THEIR OWN MEDICAL CARE. PARENTS/GUARDIANS ARE PROVIDED WITH EDUCATIONAL MATERIALS AND A CHANCE TO GET INFORMATION AND ADVICE FROM EXPERTS AND OTHER PARENTS WHO FACE SIMILAR ISSUES.
MULTIGENERATIONAL PROGRAMS PROGRAMMING FOR ALL THOSE WITH SPINA BIFIDA AND THEIR FAMILIES. INCLUDES SOCIAL AND HOLIDAY ACTIVITIES AS WELL AS EDUCATIONAL PROGRAMS AND EVENTS AND THE THE SBAK FINANCIAL ASSISTANCE FUND. THE SBAK FINANCIAL ASSISTANCE FUND HELPED 3 FAMILIES WITH EMERGENCY PAYMENTS OF UTILITIES AND RENT DURING EXTENDED HOSPITAL STAYS FOR THEIR CHILD WITH SPINA BIFIDA. THE FUND ALSO HELPED AN ADULT WITH SPINA BIFIDA PAY FOR NEW LEG BRACES AND A CHILD WITH SPINA BIFIDA WHO IS A DOUBLE AMPUTEE ATTEND A SPECIALIZED CAMP.
MULTIGENERATIONAL PROGRAMS PROGRAMMING FOR ALL THOSE WITH SPINA BIFIDA AND THEIR FAMILIES. INCLUDES SOCIAL AND HOLIDAY ACTIVITIES AS WELL AS EDUCATIONAL PROGRAMS AND EVENTS AND THE THE SBAK FINANCIAL ASSISTANCE FUND. THE SBAK FINANCIAL ASSISTANCE FUND HELPED 3 FAMILIES WITH EMERGENCY PAYMENTS OF UTILITIES AND RENT DURING EXTENDED HOSPITAL STAYS FOR THEIR CHILD WITH SPINA BIFIDA. THE FUND ALSO HELPED AN ADULT WITH SPINA BIFIDA PAY FOR NEW LEG BRACES AND A CHILD WITH SPINA BIFIDA WHO IS A DOUBLE AMPUTEE ATTEND A SPECIALIZED CAMP.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Douglas Dressman Former Executive Director Thru 10/24/2024 | 40 | $50,085 | |
Sarah Richardson Executive Director | Officer | 40 | $43,016 |
Jonathan Evans Chariman | Officer | 3 | $0 |
Christi Mckim Secretary | Officer | 1 | $0 |
Samuel Oliver Treasurer | Officer | 2 | $0 |
Samantha Miller Chair Elect | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $42,387 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $173,705 |
| Noncash contributions included in lines 1a–1f | $38,593 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $216,092 |
| Total Program Service Revenue | $0 |
| Investment income | $308 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$1,836 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $216,564 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $5,271 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $57,777 |
| Compensation of current officers, directors, key employees. | $5,164 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $52,522 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $8,538 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $8,200 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,479 |
| Advertising and promotion | $2,685 |
| Office expenses | $8,344 |
| Information technology | $5,244 |
| Royalties | $0 |
| Occupancy | $29,520 |
| Travel | $3,250 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $847 |
| Interest | $0 |
| Payments to affiliates | $574 |
| Depreciation, depletion, and amortization | $2,417 |
| Insurance | $3,154 |
| All other expenses | $0 |
| Total functional expenses | $227,663 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $12,239 |
| Savings and temporary cash investments | $99,001 |
| Pledges and grants receivable | $54,361 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $115 |
| Net Land, buildings, and equipment | $6,138 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $171,854 |
| Accounts payable and accrued expenses | $2,075 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $2,075 |
| Net assets without donor restrictions | $108,974 |
| Net assets with donor restrictions | $60,805 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $171,854 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Spina Bifida Association Of America Arlington, VA | $1,417,977 | $2,183,431 |
American Spinal Injury Association Henrico, VA | $0 | $1,208,529 |
Academy Of Spinal Cord Injury Professionals Inc Springfield, IL | $526,584 | $479,142 |
Illinois Spina Bifida Association Chicago, IL | $385,729 | $268,679 |
Spina Bifida Association Of Kentucky Inc Louisville, KY | $171,854 | $216,564 |