Illinois Spina Bifida Association
- Assets
- $385.7k
- Revenue
- $268.7k
- Investments
- $0.0
- Employees
- 12
- Location
- Chicago, IL
- Founding
- 03/1971
- Data as of
- 12/2023
- EIN
- 23-7062317
Organization Overview
Illinois Spina Bifida Association is located in Chicago, IL. The organization was established in 1971. As of 12/2023, Illinois Spina Bifida Association employed 12 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Illinois Spina Bifida Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Illinois Spina Bifida Association generated $268.7k in total revenue. The organization has seen a slow decline revenue. Over the past 9 years, revenues have fallen by an average of (1.7%) each year. All expenses for the organization totaled $295.0k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
WORKS TO IMPROVE THE QUALITY OF LIFE OF CHILDREN, ADULTS, AND FAMILIES LIVING WITH SPINA BIFIDA.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROMOTE SKILLS DEVELOPMENT AND INDEPENDENCE: THROUGH EXECUTIVE FUNCTIONING COACHING AND VOCATIONAL REHABILITATION PROGRAMS, ISBA HELPED 52 CHILDREN, TEENS, AND ADULTS WITH SKILLS, STRATEGIES, AND TOOLS NEEDED TO PURSUE THEIR ACADEMIC, DRIVING, AND EMPLOYMENT GOALS.SINCE 2016, ANNUAL GOBABYGO WORKSHOPS HAVE PROVIDED CUSTOM ELECTRIC RIDE-ON CARS TO 102 CHILDREN TO EMPOWER GREATER MOBILITY AND INDEPENDENCE.THE COMMUNITY-CLINIC CONNECTION PROGRAM HAS WORKED ON MORE THAN 1,425 INDIVIDUALIZED COACHING AND REFERRAL CASES SINCE 2017. ISBA HELPS PEOPLE FIND MEDICAL CARE, NAVIGATE BENEFITS, ACCESS COMMUNITY RESOURCES, AND MAINTAIN BASIC NEEDS.
SUPPORT INDIVIDUALS AND FAMILIES THROUGH OUTREACH, EDUCATION, AND ADVOCACY: ISBA HAS BUILT A STATEWIDE NETWORK OF MORE THAN 1000 PEOPLE LIVING WITH SPINA BIFIDA THROUGH COMMUNITY EVENTS, VIRTUAL GROUPS, AND OUTREACH AT HOSPITAL OUTPATIENT CLINICS.ISBA HAS PARTNERSHIPS WITH SHRINERS CHILDREN'S CHICAGO, WHERE ISBA IS CO-LOCATED, AS WELL AS WITH ANN & ROBERT H. LURIE CHILDREN'S HOSPITAL OF CHICAGO, LOYOLA MEDICINE, THE UCHICAGO MEDICINE MARGARET HACKETT FAMILY PROGRAM, AND OSF HEALTHCARE IN PEORIA.EDUCATION ADVOCACY AND LEGISLATIVE ADVOCACY HELP ENSURE THAT PEOPLE OF ALL AGES WITH SPINA BIFIDA RECEIVE THE SERVICES THEY NEED.
INVEST IN PEOPLE THROUGH TARGETED FINANCIAL ASSISTANCE: ISBA PROVIDED FINANCIAL ASSISTANCE FOR MEDICAL EXPENSES AND EQUIPMENT, SCHOLARSHIPS, CAMP, ADAPTIVE SPORTS, AND EMERGENCY NEEDS.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Rebecca Rupnick Chairperson | OfficerTrustee | 8 | $0 |
Kevin Dam Vice Chair | OfficerTrustee | 4 | $0 |
James Marks Treasurer | OfficerTrustee | 4 | $0 |
Paul Gerber Secretary | OfficerTrustee | 4 | $0 |
Jessica Barclay Director | Trustee | 2 | $0 |
Meredith Barnes Director Resigned 2023 | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $70,868 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $175,821 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $246,689 |
| Total Program Service Revenue | $3,971 |
| Investment income | $18,019 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $268,679 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $14,141 |
| Grants and other assistance to domestic individuals. | $27,402 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $88,556 |
| Compensation of current officers, directors, key employees. | $17,923 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $85,272 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $12,486 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $10,894 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $6,402 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $7,750 |
| Travel | $1,392 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $665 |
| Insurance | $6,131 |
| All other expenses | $975 |
| Total functional expenses | $294,975 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $48,809 |
| Savings and temporary cash investments | $24,273 |
| Pledges and grants receivable | $54,045 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $1,600 |
| Net Land, buildings, and equipment | $332 |
| Investments—publicly traded securities | $242,317 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $14,353 |
| Total assets | $385,729 |
| Accounts payable and accrued expenses | $15,738 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $6,243 |
| Total liabilities | $21,981 |
| Net assets without donor restrictions | $260,310 |
| Net assets with donor restrictions | $103,438 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $385,729 |