Spina Bifida Association Of America
- Assets
- $1.4m
- Revenue
- $2.2m
- Investments
- $0.0
- Employees
- 16
- Location
- Arlington, VA
- Founding
- 12/1973
- Data as of
- 12/2022
- EIN
- 58-1342181
Organization Overview
Spina Bifida Association Of America is located in Arlington, VA. The organization was established in 1973. As of 12/2022, Spina Bifida Association Of America employed 16 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Spina Bifida Association Of America is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Spina Bifida Association Of America generated $2.2m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 3.4% each year. All expenses for the organization totaled $2.3m during the year ending 12/2022. While expenses have increased by 1.3% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF THE SPINA BIFIDA ASSOCIATION IS TO BUILD A BETTER AND BRIGHTER FUTURE FOR ALL THOSE IMPACTED BY SPINA BIFIDA
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH AND CLINICAL CARE - THE SPINA BIFIDA ASSOCIATION (THE ASSOCIATION) DEVELOPED THE SPINA BIFIDA COLLABORATIVE CARE NETWORK (SBCCN) TO IMPROVE THE HEALTH CARE OF PEOPLE WITH SPINA BIFIDA, ENABLING THEM TO HAVE BETTER CARE. THE SBCCN, WHEN COMPLETED, WILL BUILD A SYSTEM THAT MONITORS, TRACKS, AND EVALUATES CARE PROVIDED IN SPINA BIFIDA CLINICS AND OTHER HEALTH CARE SETTINGS. THE SBCCN IS MADE UP OF PEOPLE OF DIFFERENT BACKGROUNDS AND EXPERIENCES: SPINA BIFIDA ASSOCIATION (SBA) STAFF, CHAPTER LEADERS, DOCTORS, NURSES, PSYCHOLOGISTS, THE CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC), PARENTS OF CHILDREN WITH SPINA BIFIDA, AND ADULTS WITH SPINA BIFIDA. THE ASSOCIATION WORKED IN CONJUNCTION WITH THE NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES TO CONTINUE RESEARCH THROUGH THE NATIONAL SPINA BIFIDA PATIENT REGISTRY (NSBPR). THE SPINA BIFIDA COLLABORATIVE CARE NETWORK PRODUCED GUIDELINES FOR THE CARE OF PEOPLE LIVING WITH SPINA BIFIDA WHICH INCLUDED RESEARCH FROM THE NSBPR.
EDUCATION - THE ASSOCIATION'S EDUCATION PROGRAMS PROVIDE PARENTS, CAREGIVERS AND PERSONS LIVING WITH SPINA BIFIDA WITH TOOLS AND RESOURCES AT CRITICAL POINTS IN DEVELOPMENT AND TRANSITION. EDUCATION AND INFORMATIONAL RESOURCES WERE PROVIDED TO OVER 325,000 PEOPLE WITH SPINA BIFIDA, PARENTS, AND CAREGIVERS AS WE CONTINUED TO EXPAND OUR REACH IN 2022 AS A RESULT OF INCORPORATING SOCIAL MEDIA.
CHAPTER DEVELOPMENT - THE ASSOCIATION PROMOTES THE GROWTH AND DEVELOPMENT OF ITS 11 CHAPTERS THROUGH TECHNICAL ASSISTANCE IN CAPACITY BUILDING, COMMUNICATIONS, PROGRAMMATIC RESOURCES AND GRANTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Maria Bournias ESQ CPA Chair | OfficerTrustee | 5 | $0 |
Michael Harty Jr Immediate Past Chair | OfficerTrustee | 2 | $0 |
Anshul Varma Treasurer/secretary | OfficerTrustee | 2 | $0 |
Nancy Gore Chair-Elect | OfficerTrustee | 2 | $0 |
Doug Burns Board Member | Trustee | 2 | $0 |
Dawne Widener Burrows Board Member | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $59,946 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $890,700 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,141,521 |
| Noncash contributions included in lines 1a–1f | $7,430 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,092,167 |
| Total Program Service Revenue | $67,671 |
| Investment income | $1,808 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $1,670 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,183,431 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $2,500 |
| Grants and other assistance to domestic individuals. | $34,927 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $461,815 |
| Compensation of current officers, directors, key employees. | $37,415 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $674,535 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $120,708 |
| Payroll taxes | $94,990 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $41,184 |
| Fees for services: Lobbying | $45,329 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $3,704 |
| Fees for services: Other | $394,543 |
| Advertising and promotion | $227 |
| Office expenses | $185,189 |
| Information technology | $4,551 |
| Royalties | $0 |
| Occupancy | $26,639 |
| Travel | $108,305 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $24,165 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $28,102 |
| Insurance | $11,577 |
| All other expenses | $1,419 |
| Total functional expenses | $2,305,814 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $297,686 |
| Savings and temporary cash investments | $292,412 |
| Pledges and grants receivable | $193,502 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $126,268 |
| Net Land, buildings, and equipment | $9,119 |
| Investments—publicly traded securities | $440,670 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $58,320 |
| Total assets | $1,417,977 |
| Accounts payable and accrued expenses | $73,910 |
| Grants payable | $0 |
| Deferred revenue | $151,928 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $177,914 |
| Total liabilities | $403,752 |
| Net assets without donor restrictions | $774,316 |
| Net assets with donor restrictions | $239,909 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,417,977 |
Grants Awarded
Over the last fiscal year, Spina Bifida Association Of America has awarded $84,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
VILLANOVA UNIVERSITY PURPOSE: NURSING GRANT | $40,000 |
LE BONHEUR CHILDREN'S HOSPITAL PURPOSE: SERVICE TO COMMUNITY | $44,000 |