Fighting Duchenne Foundation
- Assets
- $348.1k
- Revenue
- $48.8k
- Investments
- $0.0
- Employees
- 0
- Location
- Dickson, TN
- Founding
- 06/2010
- Data as of
- 12/2023
- EIN
- 27-2236164
Organization Overview
Fighting Duchenne Foundation is located in Dickson, TN. The organization was established in 2010. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Fighting Duchenne Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Fighting Duchenne Foundation generated $48.8k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 9 years, the organization has seen revenues fall by an average of (14.6%) each year. All expenses for the organization totaled $62.5k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO RAISE THE AWARENESS OF DUCHENNE MUSCULAR DYSTROPHY AFFECTING 1 IN 3500 MALE BIRTHS AS AN X-LINKED HEREDITARY DISEASE THAT CAUSES DEGENERATION AND NECROSIS OF THE SKELETAL MUSCLE FIBRES AND TO RAISE FUNDS TO ESTABLISH AN ENDOWMENT AT THE MONROE CARELL JR CHILDRENS HOSPITAL-VANDERBILT, NASHVILLE, TENNESSEE TO FUND RESEARCH FOR A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FROM THE ENTITY'S INHOUSE FUNDRAISING EFFORTS, A RESEARCH FUND GRANT OF $62,500 WAS GIVEN TO CURE RARE DISEASE - VANDERBILT CHILDERNS HOSPITAL OF RESEARCH, TO FURTHER RESEARCH FOR DEVELOPING A CURE OF DUCHENNES DISEASE THROUGH GENE THERAPY STUDIES AND RESEARCH.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Terry Marlin President | OfficerTrustee | 3 | $0 |
Jamie Mullican Director | Trustee | 1 | $0 |
Wendell Brown Director | Trustee | 1 | $0 |
Larry Gilbow Director | Trustee | 1 | $0 |
Joe Deweese Director | Trustee | 1 | $0 |
Spook Spann Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $0 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $0 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $48,758 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $48,758 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $62,500 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $62,500 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $348,098 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $348,098 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $348,098 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $348,098 |
Grants Awarded
Over the last fiscal year, Fighting Duchenne Foundation has awarded $150,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
CURE DUCHENNE - DMD RESEARCH PURPOSE: RESEARCH CURE FOR DUCHENNES DISEASE | $100,000 |
SOLID BIOSCIENCES PURPOSE: RESEARCH CURE FOR DUCHENNES DISEASE | $50,000 |