Champ Foundation is located in Durham, NC. The organization was established in 2016. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Champ Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Champ Foundation generated $120.6k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 8 years, the organization has seen revenues fall by an average of (5.1%) each year. All expenses for the organization totaled $338.3k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Since 2020, Champ Foundation has awarded 18 individual grants totaling $652,414. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE CHAMP FOUNDATION SUPPORTS RESEARCH TOWARD BETTER TREATMENTS AND A CURE FOR DISEASES CASUED BY MITOCHONDRIAL DNA DELETIONS, SUCH AS PEARSON SYNDROME. THESE DISEASES ARE RARE. FOR EXAMPLE, THERE HAVE ONLY BEEN AROUND 100 REPORTED CASES OF PEARSON SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
IN 2023, THE CHAMP FOUNDATION CONTINUED TO SUPPORT A MULTI-SITE NATURAL HISTORY STUDY AT THE CLEVELAND CLINIC AND CHILDREN'S HOSPITAL OF PHILADELPHIA AND THE CHAMP FOUNDATION REGISTRY, A RESEARCH STUDY OF INDIVIDUALS WITH SINGLE LARGE-SCALE MITOCHONDRIAL DNA DELETIONS (SLSMDS). WE SUPPORT PATIENT TRAVEL TO PARTICIPATE IN THE NATURAL HISTORY STUDY. WE CONTINUED TO FUND RESEARCH PROJECTS AT CHOP, UNIVERSITY OF CAMBRIDGE, UNIVERSITY OF PITTSBURGH, AND UNIVERSITY COLLEGE OF LONDON. WE DISSEMINATED FINDINGS FROM OUR REGISTRY DATA THROUGH PEER REVIEWED MANUSCRIPTS AND MITOCHONDRIAL DISEASE CONFERENCES.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Walker Cole Arledge Director | Trustee | 1 | $0 |
Jeffrey Reynolds President | Officer | 5 | $0 |
Elizabeth Reynolds Vice President | Officer | 10 | $0 |
Elizabeth Haviland Secretary | Officer | 1 | $0 |
Tyler Albright Treasurer | Officer | 1 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $0 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $119,379 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $119,379 |
Total Program Service Revenue | $0 |
Investment income | $1,249 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $120,628 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $87,742 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $218,978 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $0 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $0 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $843 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $1,051 |
Advertising and promotion | $0 |
Office expenses | $5,248 |
Information technology | $0 |
Royalties | $0 |
Occupancy | $0 |
Travel | $12,234 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $0 |
All other expenses | $0 |
Total functional expenses | $338,317 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $301,316 |
Savings and temporary cash investments | $0 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $0 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $301,316 |
Accounts payable and accrued expenses | $0 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $0 |
Net assets without donor restrictions | $301,316 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $301,316 |
Over the last fiscal year, Champ Foundation has awarded $87,742 in support to 2 organizations.
Grant Recipient | Amount |
---|---|
CHILDREN'S HOSPITAL OF PHILADELPHIA PURPOSE: Research; Natural History Study | $37,742 |
UNIVERSITY OF PITTSBURGH PURPOSE: Research | $50,000 |