Fore Batten Foundation

Organization Overview

Fore Batten Foundation is located in Chapel Hill, NC. The organization was established in 2018. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Fore Batten Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2022, Fore Batten Foundation generated $1.5m in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 35.6% each year . All expenses for the organization totaled $1.2m during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.

Since 2018, Fore Batten Foundation has awarded 26 individual grants totaling $2,724,043. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

THIS ORGANIZATION IS ORGANIZED EXCLUSIVELY FOR EDUCATIONAL AND CHARITABLE PURPOSES, INCLUDING TO EDUCATE THE PUBLIC ABOUT AND TO OBTAIN FUNDING FOR RESEARCH TO CURE RARE DISEASES, INCLUDING SPECIFICALLY JUVENILE BATTEN DISEASE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THIS ORGANIZATION MADE GRANTS TO SEVERAL TAX-EXEMPT 501(C)(3) ORGANIZATIONS THAT ADVANCE THE OBJECTIVES OF THIS ORGANIZATION TO PROMOTE AWARENESS OF BATTEN DISEASE AS WELL AS TO PROMOTE OPPORTUNITIES FOR SCIENTISTS TO COME TOGETHER TO CREATE AND FUND INNOVATIVE RESEARCH PROPOSALS TO WORK TOWARD A CURE FOR BATTEN DISEASE.


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Board, Officers & Key Employees

Name (title)Compensation
David Kahn
Director
$0
Karen Kahn
President/ceo
$0
Kathryn Niederer
Director
$0
Jennifer Mcginn
Director
$0
Marlena Kahn
Secretary
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$932,177
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$644,489
Noncash contributions included in lines 1a–1f $644,489
Total Revenue from Contributions, Gifts, Grants & Similar$1,576,666
Total Program Service Revenue$96
Investment income $2,876
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events -$127,035
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,452,603

Grants Awarded

Over the last fiscal year, Fore Batten Foundation has awarded $991,164 in support to 6 organizations.

Grant RecipientAmount

SANFORD RESEARCH

PURPOSE: TO SUPPORT AND PROMOTE THE PURSUIT OF THE HIGHEST CALIBER, PUBLISHABLE RESEARCH (1) RELATING TO THE DEVELOPMENT/DELIVERY OF QUALITY MEDICAL AND HEALTH CARE SERVICES, (2) ADVANCING MEDICAL OR SCIENTIFIC KNOWLEDGE AND SKILLS, AND/OR (3) BENEFITING THE EDUCATION OF HEALTH SCIENCE STUDENTS, RESIDENTS, HEALTH PROFESSIONALS AND THE GENERAL PUBLIC

$334,500

THE WASHINGTON UNIVERSITY

PURPOSE: TO SUPPORT THE RESEARCH FOR THE PURPOSE OF DISCOVERING AND MAKING AVAILABLE TO THE PUBLIC NEW AND IMPROVED MEDICAL PROCEDURES AND INFORMATION

$135,653

ROSALIND FRANKLIN UNIVERSITY OF MEDICINE & SCIENCE

PURPOSE: TO FUND RESEARCH OF ADVANCING KNOWLEDGE AND CREATING KNOWLEDGE THAT CAN BE TRANSLATED INTO IMPROVING THE HEALTH OF THE POPULATION

$259,258

BDSRA

PURPOSE: TO FUND RESEARCH FOR A CURE FOR AND TO PROMOTE AWARENESS OF BATTEN DISEASE.

$65,000

OUR PROMISE TO NICK FOUNDATION

PURPOSE: TO PURCHASE HOLIDAY CARE PACKAGES TO SUPPORT CHILDREN

$10,000

UNIVERSITY OF ROCHESTER

PURPOSE: TO SUPPORT THE RESEARCH FOR THE PURPOSE OF THE EVALUATION OF PHOTORECEPTOR OUTER SEGMENT PHAGOCYTOSIS FUNCTION IN THE RETINA/RETINAL CELLS OBTAINED FROM A PORCINE MODEL OF CLN3-BATTEN DISEASE

$186,753
View Grant Profile

Peer Organizations

Organization NameAssets
Research Triangle Foundation Of North Carolina
Research Triangle Park, NC
$10,751,923
Nashville Wine Auction
Nashville, TN
$3,838,079
South Carolina Medical Association Foundation
Columbia, SC
$1,075,181
Fore Batten Foundation
Chapel Hill, NC
$1,452,603
T J Martell Foundation
Nashville, TN
$2,568,721
Regenmed Development Organization
Winstonsalem, NC
$985,996
A Cure In Sight
Raleigh, NC
$408,550
Knox Martin Foundation For Brain Cancer Research Inc
Gainesville, GA
$488,266
Paula Takacs Foundation For Sarcoma Research
Weddington, NC
$617,474
Champ Foundation
Durham, NC
$120,628
Megs Smile Foundation Inc
Holly Springs, NC
$327,710
Isakson Initiative Inc
Atlanta, GA
$110,145
Peter Hopkins Foundation Inc
Atlanta, GA
$176,293
Live Like Madison Inc
Laurinburg, NC
$0
Challenge To Conquer Cancer
Greenville, SC
$154,932
David M Carmines Memorial Foundation
Hilton Head Island, SC
$200,119
Jiselle Lauren Foundation
Franklin, TN
$0
Macy Easom Cancer Research Foundation Inc
Perry, GA
$101,150
Cancer Active Inc
Black Mountain, NC
$0
Alexs Army Childhood Cancer Foundation Inc
Haymarket, VA
$85,247
Aiken Womens Heart Board
Aiken, SC
$0
Herbert Kosten Pancreatic Cancer Charitable Fund
Memphis, TN
$260,644
For Love Of Molly
Richmond, VA
$0
Cpm Billfish Tournament
Morehead City, NC
$0
Chapel Hill Breast Cancer Research Foundation
Chapel Hill, NC
$0

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