Fore Batten Foundation is located in Chapel Hill, NC. The organization was established in 2018. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Fore Batten Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Fore Batten Foundation generated $1.6m in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 46.4% each year . All expenses for the organization totaled $961.7k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Since 2018, Fore Batten Foundation has awarded 20 individual grants totaling $1,732,879. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THIS ORGANIZATION IS ORGANIZED EXCLUSIVELY FOR EDUCATIONAL AND CHARITABLE PURPOSES, INCLUDING TO EDUCATE THE PUBLIC ABOUT AND TO OBTAIN FUNDING FOR RESEARCH TO CURE RARE DISEASES, INCLUDING SPECIFICALLY JUVENILE BATTEN DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THIS ORGANIZATION MADE GRANTS TO SEVERAL TAX-EXEMPT 501(C)(3) ORGANIZATIONS THAT ADVANCE THE OBJECTIVES OF THIS ORGANIZATION TO PROMOTE AWARENESS OF BATTEN DISEASE AS WELL AS TO PROMOTE OPPORTUNITIES FOR SCIENTISTS TO COME TOGETHER TO CREATE AND FUND INNOVATIVE RESEARCH PROPOSALS TO WORK TOWARD A CURE FOR BATTEN DISEASE.
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Name (title) | Role | Hours | Compensation |
---|---|---|---|
Karen Kahn President/ceo | OfficerTrustee | 7.5 | $0 |
Marlena Kahn Secretary | Officer | 1 | $0 |
David Kahn Director | Trustee | 4 | $0 |
Jennifer Mcginn Director | Trustee | 2 | $0 |
Kathryn Niederer Director | Trustee | 2 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $1,117,034 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $507,641 |
Noncash contributions included in lines 1a–1f | $507,641 |
Total Revenue from Contributions, Gifts, Grants & Similar | $1,624,675 |
Total Program Service Revenue | $120 |
Investment income | $177 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | -$54,630 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $1,570,342 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $882,899 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $47,917 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $3,975 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $10,094 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $1,547 |
Advertising and promotion | $0 |
Office expenses | $5,629 |
Information technology | $0 |
Royalties | $0 |
Occupancy | $0 |
Travel | $8,972 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $0 |
All other expenses | $0 |
Total functional expenses | $961,714 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $259,015 |
Savings and temporary cash investments | $1,621,359 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $0 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $1,880,374 |
Accounts payable and accrued expenses | $0 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $0 |
Net assets without donor restrictions | $0 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $1,880,374 |
Total liabilities and net assets/fund balances | $1,880,374 |
Over the last fiscal year, Fore Batten Foundation has awarded $811,355 in support to 8 organizations.
Grant Recipient | Amount |
---|---|
Sioux Falls, SD PURPOSE: TO SUPPORT AND PROMOTE THE PURSUIT OF THE HIGHEST CALIBER, PUBLISHABLE RESEARCH (1) RELATING TO THE DEVELOPMENT/DELIVERY OF QUALITY MEDICAL AND HEALTH CARE SERVICES, (2) ADVANCING MEDICAL OR SCIENTIFIC KNOWLEDGE AND SKILLS, AND/OR (3) BENEFITING THE EDUCATION OF HEALTH SCIENCE STUDENTS, RESIDENTS, HEALTH PROFESSIONALS AND THE GENERAL PUBLIC | $331,807 |
North Chicago, IL PURPOSE: TO FUND RESEARCH OF ADVANCING KNOWLEDGE AND CREATING KNOWLEDGE THAT CAN BE TRANSLATED INTO IMPROVING THE HEALTH OF THE POPULATION | $211,745 |
UNIVERSITY OF ARIZONA PURPOSE: TO SUPPORT THE RESEARCH FOR THE PURPOSE OF IDENTIFYING POTENTIAL SMALL MOLECULE THERAPIES FOR THE TREATMENT OF CLN3 BATTEN DISEASE | $96,927 |
Rochester, NY PURPOSE: TO SUPPORT THE RESEARCH FOR THE PURPOSE OF THE EVALUATION OF PHOTORECEPTOR OUTER SEGMENT PHAGOCYTOSIS FUNCTION IN THE RETINA/RETINAL CELLS OBTAINED FROM A PORCINE MODEL OF CLN3-BATTEN DISEASE | $76,881 |
Saint Louis, MO PURPOSE: TO SUPPORT THE RESEARCH FOR THE PURPOSE OF DISCOVERING AND MAKING AVAILABLE TO THE PUBLIC NEW AND IMPROVED MEDICAL PROCEDURES AND INFORMATION | $55,495 |
Arvada, CO PURPOSE: TO SUPPORT THE DEVELOPMENT OF MEDICAL RESEARCH FOR TREATMENTS AND CURES FOR CLN3 BATTEN DISEASE, AND PROVIDE MONETARY ASSISTANCE TO FAMILIES WITH CHILDREN DIAGNOSED WITH BATTEN DISEASE | $25,000 |
Over the last fiscal year, we have identified 1 grants that Fore Batten Foundation has recieved totaling $3,000.
Awarding Organization | Amount |
---|---|
Fred J Maloof Family Foundation St Clair Shores, MI PURPOSE: CHARITABLE DONATION | $3,000 |
Organization Name | Assets | Revenue |
---|---|---|
Commonwealth Foundation For Cancer Research Foundation Richmond, VA | $31,990,703 | $16,751,552 |
Research Triangle Foundation Of North Carolina Research Triangle Park, NC | $210,917,305 | $40,089,804 |
Nashville Wine Auction Nashville, TN | $1,455,016 | $3,050,154 |
South Carolina Medical Association Foundation Columbia, SC | $2,934,149 | $977,722 |
Regenmed Development Organization Winstonsalem, NC | $1,918,667 | $1,082,279 |
T J Martell Foundation Nashville, TN | $1,696,815 | $381,037 |
Fore Batten Foundation Chapel Hill, NC | $1,880,374 | $1,570,342 |
Isakson Initiative Inc Atlanta, GA | $1,622,312 | $1,140,837 |
Paula Takacs Foundation For Sarcoma Research Weddington, NC | $577,201 | $617,474 |
A Cure In Sight Raleigh, NC | $90,213 | $324,456 |
Herbert Kosten Pancreatic Cancer Charitable Fund Memphis, TN | $314,081 | $160,097 |
Challenge To Conquer Cancer Greenville, SC | $15,012 | $206,385 |