1p36 Deletion Support & Awareness
- Assets
- $242.4k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Bend, OR
- Founding
- 11/2009
- Data as of
- 12/2022
- EIN
- 26-4411797
Organization Overview
1p36 Deletion Support & Awareness is located in Bend, OR. The organization was established in 2009. According to its NTEE Classification (P80) the organization is classified as: Centers to Support the Independence of Specific Populations, under the broad grouping of Human Services and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. 1p36 Deletion Support & Awareness is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, 1p36 Deletion Support & Awareness generated $42.8k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (5.9%) each year. All expenses for the organization totaled $88.9k during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2022
Describe the Organization's Program Activity:
Part 3
1P36 DSA HOLDS A CONFERENCE ONCE A YEAR. THIS YEAR IT WAS IN BALTIMORE MD. THE CONFERENCE BRINGS FAMILIES, DOCTORS AND OTHER INTERESTED PARTIES TOGETHER TO LEARN AND DISCUSS 1P36 DELETION SYNDROME. THIS IS OUR MAIN ACTIVITY EACH YEAR AND 300-350 ARE IN ATTENDENCE. THE COST FOR THE CONFERENCE IS SIGNIFICANT FOR THE SMALL NON-PROFIT AS WE PICK UP THE CHARGES FOR THE SPEAKERS, CONFERENCE HALL, SHIRTS, EVENTS AND SOME MEAL EXPENSE. THE INDIVIDUAL WITH 1P36 DELETION SYNDROME WHO ATTENDS, ATTENDS FOR FREE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kenneth Shirtcliff President | 10 | $0 | |
Karen Bess Treasurer | 5 | $0 | |
Jennifer Winiecki Secretary | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $27,037 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $23 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $14,012 |
| Total Revenue | $42,769 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $0 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $319 |
| Other expenses | $88,578 |
| Total expenses | $88,897 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $242,365 |
| Other assets | $0 |
| Total assets | $242,365 |
| Total liabilities | $0 |
| Net assets or fund balances | $242,365 |