Hereditary Angioedema Association Inc

Organization Overview

Hereditary Angioedema Association Inc is located in Fairfax, VA. The organization was established in 2007. According to its NTEE Classification (E99) the organization is classified as: Health Care N.E.C., under the broad grouping of Health Care and related organizations. As of 12/2021, Hereditary Angioedema Association Inc employed 20 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hereditary Angioedema Association Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Hereditary Angioedema Association Inc generated $7.2m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 4.2% each year. All expenses for the organization totaled $4.7m during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

SEE SCHEDULE O COMMENT.

Describe the Organization's Program Activity:

Part 3 - Line 4a

TO INCREASE AWARENESS OF HEREDITARY ANGIOEDEMA AND PROVIDE PATIENTS AND PHYSICIANS WITH INFORMATION ON BEST PRACTICES FOR HAE DIAGNOSIS AND TREATMENT THROUGH EDUCATIONAL PROGRAMS, AN HAE WEBSITE AND PRINTED MATERIALS. THE HAEA IS A STAUNCH ADVOCATE FOR (1) PATIENT ACCESS AND SUFFICIENT INSURANCE REIMBURSEMENT FOR CURRENTLY AVAILABLE THERAPIES, AND (2) RESEARCH DIRECTED TOWARDS HELPING PATIENTS LEAD A NORMAL LIFE AND, ULTIMATELY, FINDING A CURE. THE HAEA ALSO CONDUCTS NATIONAL AND REGIONAL PATIENT MEETINGS AND OFFERS A VARIETY OF SERVICES TO INDIVIDUALS AND FAMILIES THAT INCLUDE PHYSICIAN AND CLINICAL TRIAL REFERRALS AND ASSISTANCE IN DEALING WITH DISEASE-RELATED EMERGENCIES.


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Outside Vendors & Contractors

Vendor Name (Service)Compensation
Global Patient Strategies Llc
Scientific Registe
$109,725
King Biologistics
Business Developme
$109,725
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$7,197,362
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$7,197,362
Total Program Service Revenue$0
Investment income $4,536
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $7,202,295

Grants Recieved

Over the last fiscal year, we have identified 2 grants that Hereditary Angioedema Association Inc has recieved totaling $10,480.

Awarding OrganizationAmount
Community Foundation Of Greater Memphis Inc

Memphis, TN

PURPOSE: GENERAL OPERATIONAL SUPPORT

$9,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$1,480
View Grant Recipient Profile

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