Williams Syndrome Association Inc
- Assets
- $2.9m
- Revenue
- $2.4m
- Investments
- $0.0
- Employees
- 16
- Location
- Newark, NJ
- Founding
- 01/1995
- Data as of
- 12/2022
- EIN
- 22-3305007
Organization Overview
Williams Syndrome Association Inc is located in Newark, NJ. The organization was established in 1995. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, Williams Syndrome Association Inc employed 16 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Williams Syndrome Association Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Williams Syndrome Association Inc generated $2.4m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 12.4% each year . All expenses for the organization totaled $2.4m during the year ending 12/2022. While expenses have increased by 12.6% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Williams Syndrome Association Inc has awarded 18 individual grants totaling $2,453,053. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
ADVANCING THE INTERESTS OF INDIVIDUALS WITH WILLIAMS SYNDROME BY SUPPORTING RESEARCH, PROVIDING FAMILY SERVICES AND RAISING COMMUNITY AWARENESS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
WE SUPPORT OUR MISSION BY:- PROVIDING INFORMATION AND EMOTIONAL SUPPORT TO INDIVIDUALS WITH CHARACTERISTICS OF WILLIAMS SYNDROME, THEIR FAMILIES, AND THE PROFESSIONALS WHO WORK WITH THEM- DEVELOPING PROGRAMS AND SERVICES TO HELP BUILD STRENGTHS AND MEET CHALLENGES FROM EARLY CHILDHOOD THROUGH ADULTHOOD- INCREASING PUBLIC AWARENESS AND UNDERSTANDING OF WILLIAMS SYNDROME, AND- ENCOURAGING AND SUPPORTING RESEARCH INTO A WIDE RANGE OF ISSUES RELATED TO WILLIAMS SYNDROME
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Cyndra Cole President | OfficerTrustee | 5 | $0 |
Scott Ottenheimer Treasurer | OfficerTrustee | 5 | $0 |
Matt Bartow Secretary | OfficerTrustee | 5 | $0 |
Meredith Greene Vice President | OfficerTrustee | 5 | $0 |
Ryan Cordy Trustee | Trustee | 1 | $0 |
Kelly Wei Trustee | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $2,130 |
| Fundraising events | $373,461 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,548,937 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,924,528 |
| Total Program Service Revenue | $491,682 |
| Investment income | $54,144 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $3,402 |
| Net Income from Fundraising Events | -$58,818 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $6,564 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,421,502 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $491,484 |
| Grants and other assistance to domestic individuals. | $5,154 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $220,607 |
| Compensation of current officers, directors, key employees. | $44,121 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $531,464 |
| Pension plan accruals and contributions | $9,358 |
| Other employee benefits | $60,129 |
| Payroll taxes | $59,653 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $2,500 |
| Fees for services: Accounting | $53,401 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $14,763 |
| Fees for services: Other | $81,091 |
| Advertising and promotion | $12,856 |
| Office expenses | $16,495 |
| Information technology | $11,055 |
| Royalties | $0 |
| Occupancy | $29,031 |
| Travel | $47,756 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $560,936 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $4,124 |
| Insurance | $11,576 |
| All other expenses | $29,873 |
| Total functional expenses | $2,351,418 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $649,093 |
| Savings and temporary cash investments | $2,897 |
| Pledges and grants receivable | $25,225 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $17,929 |
| Net Land, buildings, and equipment | $13,783 |
| Investments—publicly traded securities | $2,149,956 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $33,270 |
| Total assets | $2,892,153 |
| Accounts payable and accrued expenses | $47,128 |
| Grants payable | $192,485 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $29,201 |
| Total liabilities | $268,814 |
| Net assets without donor restrictions | $2,014,109 |
| Net assets with donor restrictions | $609,230 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,892,153 |
Grants Awarded
Over the last fiscal year, Williams Syndrome Association Inc has awarded $491,484 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
COLUMBIA UNIVERSITY PURPOSE: WILLIAMS SYNDROME RESEARCH | $146,484 |
MASSACHUSETTS GENERAL HOSPITAL PURPOSE: WILLIAMS SYNDROME RESEARCH | $7,500 |
PURDUE UNIVERSITY PURPOSE: WILLIAMS SYNDROME RESEARCH | $37,500 |
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION PURPOSE: WILLIAMS SYNDROME RESEARCH | $300,000 |