World Federation Of Hemophilia Usa

AFFILIATED TO THE WORLD FEDERATION OF HEMOPHILIA AN INTERNATIONAL CHARITABLE ORGANIZATION BASED IN MONTREAL THE MISSION OF THE WORLD FEDERATION OF HEMOPHILIA USA IS TO ADVANCE THE GLOBAL MISSION OF WFH WITHIN THE US TO IMPROVE AND SUSTAIN CARE FOR PEOPLE WITH INHERITED BLEEDING DISORDERS AROUND THE WORLD

THE WFH HUMANITARIAN AID PROGRAM IMPROVES THE LACK OF ACCESS TO CARE AND TREATMENT BY PROVIDING SUPPORT TO NATIONAL MEMBER ORGANIZATIONS HEMOPHILIA TREATMENT CENTRES AND HEALTHCARE PRACTITIONERS IN EMERGING COUNTRIES. THIS SUPPORT COMES IN THE FORM OF EDUCATION TRAINING AND DONATED FACTOR AND NON-FACTOR REPLACEMENT THERAPY. NOTABLY THE MAJORITY OF THE ORGANIZATIONS NET SURPLUS $60,410K OF $60,424K IS TIED TO DONATED PHARMACEUTICAL PRODUCTS AWAITING TO BE DISTRIBUTED TO RECIPIENTS IN EMERGING COUNTRIES AS PART OF THE PROGRAM. WFH USA PROVIDES TENS OF THOUSANDS OF PEOPLE WITH HEMOPHILIA RELIABLE ACCESS TO CARE ENABLING PROPHYLAXIS AND ELECTIVE SURGERIES IN OVER SIXTY COUNTRIES WORLDWIDE. PER THE COLLABORATION AGREEMENT WITH THE WFH WFH USA IS EXCLUSIVELY RESPONSIBLE FOR SOLICITING IN-KIND CONTRIBUTIONS OF PHARMACEUTICAL PRODUCTS AND MONETARY DONATIONS FOR THE PROGRAM. WFH USA PERIODICALLY GRANTS THE RECEIVED CONTRIBUTIONS TO THE WFH AS NEEDED TO CARRY OUT THE PROGRAM.

OTHER PROGRAMS INCLUDING THE SOLIDARITY PROGRAM AND AWARENESS BUILDING SUPPORT THE DEVELOPMENT OF WFHS NATIONAL MEMBER ORGANIZATIONS ENSURE WFHS TIMELY RESPONSE TO EMERGING NEEDS PROVIDE RELIEF DURING CRISES AND RAISE AWARENESS OF BLEEDING DISORDERS IN THE USA AND WORLDWIDE.

THE WFH TRAINING AND EDUCATION PROGRAM PROVIDES THE GLOBAL BLEEDING DISORDERS COMMUNITY WITH THE INFORMATION AND TOOLS REQUIRED TO IMPROVE ACCESS TO DIAGNOSIS AND ENSURE RELIABLE ACCESS TO SAFE TREATMENT AND CARE. TRAINING AND EDUCATION MAY BE DELIVERED THROUGH HEALTHCARE DEVELOPMENT PROGRAMS IN-PERSON AND VIRTUAL WORKSHOPS AND EDUCATIONAL EVENTS AND THE DEVELOPMENT AND DISTRIBUTION OF EDUCATIONAL RESOURCES THAT ARE AVAILABLE IN PRINTED AND ELECTRONIC FORMAT. IN ACCORDANCE WITH THE COLLABORATION AGREEMENT BETWEEN WFH USA AND THE WFH WFH USA PERIODICALLY GRANTS CONTRIBUTIONS RECEIVED TO SUPPORT THE WFH TRAINING AND EDUCATION PROGRAMS TO THE WFH AS NEEDED TO CARRY OUT THE WFHS RESPONSIBILITIES WITH RESPECT TO THE WFH TRAINING AND EDUCATION PROGRAM.

THE WFH RESEARCH AND DATA COLLECTION PROGRAM INCLUDES THE ANNUAL GLOBAL SURVEY THE WORLD BLEEDING DISORDER REGISTRY THE GENE THERAPY REGISTRY AND THEIR ACCOMPANYING EDUCATION AND CAPACITY-BUILDING PROGRAMS. THE OBJECTIVE OF THIS PROGRAM IS TO PROVIDE NATIONAL MEMBER ORGANIZATIONS NMOS AND HEMOPHILIA TREATMENT CENTERS HTCS WITH THE TOOLS TO INCREASE THEIR CAPACITY THE FRAMEWORK TO COLLECT DATA ON PEOPLE WITH BLEEDING DISORDERS AND THE EDUCATION AND TRAINING TO USE THAT DATA TO CONDUCT RESEARCH AND ADVOCATE FOR BETTER CARE. IN ACCORDANCE WITH THE COLLABORATION AGREEMENT BETWEEN THE WFH USA AND THE WFH WFH USA PERIODICALLY GRANTS CONTRIBUTIONS RECEIVED TO SUPPORT THE WFH RESEARCH PROGRAM TO THE WFH AS NEEDED TO CARRY OUT THE WFHS RESPONSIBILITIES WITH RESPECT TO THE WFH RESEARCH PROGRAM.