Diamond Blackfan Anemia Foundation
- Assets
- $1.6m
- Revenue
- $664.1k
- Investments
- $0.0
- Employees
- 1
- Location
- West Seneca, NY
- Founding
- 11/1994
- Data as of
- 12/2023
- EIN
- 16-1459422
Organization Overview
Diamond Blackfan Anemia Foundation is located in West Seneca, NY. The organization was established in 1994. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Diamond Blackfan Anemia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Diamond Blackfan Anemia Foundation generated $664.1k in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 5.6% each year. All expenses for the organization totaled $720.4k during the year ending 12/2023. While expenses have increased by 9.3% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO GENERATE FUNDS FOR THE CHARITABLE AND SCIENTIFIC PURPOSE OF PROVIDING SUPPORT FOR DIAMOND BLACKFAN ANEMIA PATIENTS, FAMILIES AND RESEARCH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
(RESEARCH) SUPPORT OF PEER-REVIEWED RESEARCH PROJECTS INVESTIGATING THE CAUSE AND POTENTIAL TREATMENT OPTIONS AND A CURE FOR DIAMOND BLACKFAN ANEMIA.
(ASH) EXHIBITION AT THE AMERICAN SOCIETY OF HEMATOLOGY ANNUAL MEETING (ASH) ATTENDED BY APPROXIMATELY 20,000 WORLDWIDE HEMATOLOGISTS TO PROVIDE THE LATEST CLINICAL AND RESEARCH INFORMATION PERTAINING TO DIAMOND BLACKFAN ANEMIA.
(DBA ICC) A CONFERENCE ORGANIZED TO PROVIDE A VENUE FOR THE EXCHANGE OF IDEAS AND FOSTER NEW COLLABORATIONS AMONG DBA CLINICIANS AND SCIENTISTS, DOCUMENT RESULTS FROM ONGOING CLINICAL TRIALS AND COORDINATE EFFORTS FOR NEW TRIALS, BRIDGE THE GAP BETWEEN CLINICIANS AND SCIENTISTS WORKING ON DBA TO PROMOTE TRANSLATIONAL RESEARCH, AND ENCOURAGE YOUNG CLINICIANS AND SCIENTISTS TO ENTER INTO DBA AS INDEPENDENT INVESTIGATORS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Dawn Baumgardner Executive Director | OfficerTrustee | 40 | $58,500 |
Kathi Vroman Vice President | OfficerTrustee | 10 | $0 |
Peter Baumgardner Treasurer | OfficerTrustee | 10 | $0 |
Carol Mancuso Secretary | OfficerTrustee | 10 | $0 |
Lauren Brady Director | Trustee | 10 | $0 |
Cara Breidster Director | Trustee | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $7,222 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $617,631 |
| Noncash contributions included in lines 1a–1f | $26,793 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $624,853 |
| Total Program Service Revenue | $0 |
| Investment income | $39,292 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $664,145 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $345,722 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $116,573 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $58,498 |
| Compensation of current officers, directors, key employees. | $11,700 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $1,209 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $4,200 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $186,260 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $218 |
| Insurance | $0 |
| All other expenses | $7,703 |
| Total functional expenses | $720,383 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $65,969 |
| Savings and temporary cash investments | $493,372 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $534 |
| Net Land, buildings, and equipment | $326 |
| Investments—publicly traded securities | $1,089,567 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,649,768 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $1,649,768 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,649,768 |
Grants Awarded
Over the last fiscal year, Diamond Blackfan Anemia Foundation has awarded $345,722 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
ST JUDE CHILDREN'S RESEARCH HOSPITAL- DR WEISS AND BHOOPALAN PURPOSE: RESEARCH PROPOSAL | $70,000 |
JOSLIN DIABETES CENTER- DR LAURA PAULETTE FERNANDEZ- CARDENAS PURPOSE: RESEARCH PROPOSAL | $67,314 |
BOSTON CHILDREN'S HOSPITAL- DR TIMOTHY YU PURPOSE: RESEARCH PROPOSAL | $138,408 |
BOSTON CHILDREN'S HOSPITAL- DRS VIJAY SANKARAN AND RICHARD VOIT PURPOSE: RESEARCH PROPOSAL | $70,000 |