Diamond Blackfan Anemia Foundation

Organization Overview

Diamond Blackfan Anemia Foundation is located in West Seneca, NY. The organization was established in 1994. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Diamond Blackfan Anemia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2023, Diamond Blackfan Anemia Foundation generated $664.1k in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 5.6% each year. All expenses for the organization totaled $720.4k during the year ending 12/2023. While expenses have increased by 9.3% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2023

Describe the Organization's Mission:

Part 3 - Line 1

TO GENERATE FUNDS FOR THE CHARITABLE AND SCIENTIFIC PURPOSE OF PROVIDING SUPPORT FOR DIAMOND BLACKFAN ANEMIA PATIENTS, FAMILIES AND RESEARCH.

Describe the Organization's Program Activity:

Part 3 - Line 4a

(RESEARCH) SUPPORT OF PEER-REVIEWED RESEARCH PROJECTS INVESTIGATING THE CAUSE AND POTENTIAL TREATMENT OPTIONS AND A CURE FOR DIAMOND BLACKFAN ANEMIA.


(ASH) EXHIBITION AT THE AMERICAN SOCIETY OF HEMATOLOGY ANNUAL MEETING (ASH) ATTENDED BY APPROXIMATELY 20,000 WORLDWIDE HEMATOLOGISTS TO PROVIDE THE LATEST CLINICAL AND RESEARCH INFORMATION PERTAINING TO DIAMOND BLACKFAN ANEMIA.


(DBA ICC) A CONFERENCE ORGANIZED TO PROVIDE A VENUE FOR THE EXCHANGE OF IDEAS AND FOSTER NEW COLLABORATIONS AMONG DBA CLINICIANS AND SCIENTISTS, DOCUMENT RESULTS FROM ONGOING CLINICAL TRIALS AND COORDINATE EFFORTS FOR NEW TRIALS, BRIDGE THE GAP BETWEEN CLINICIANS AND SCIENTISTS WORKING ON DBA TO PROMOTE TRANSLATIONAL RESEARCH, AND ENCOURAGE YOUNG CLINICIANS AND SCIENTISTS TO ENTER INTO DBA AS INDEPENDENT INVESTIGATORS.


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Board, Officers & Key Employees

Name (title)Compensation
Dawn Baumgardner
Executive Director
$58,500
Kathi Vroman
Vice President
$0
Peter Baumgardner
Treasurer
$0
Carol Mancuso
Secretary
$0
Lauren Brady
Director
$0
Cara Breidster
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$7,222
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$617,631
Noncash contributions included in lines 1a–1f $26,793
Total Revenue from Contributions, Gifts, Grants & Similar$624,853
Total Program Service Revenue$0
Investment income $39,292
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $664,145

Grants Awarded

Over the last fiscal year, Diamond Blackfan Anemia Foundation has awarded $345,722 in support to 4 organizations.

Grant RecipientAmount

ST JUDE CHILDREN'S RESEARCH HOSPITAL- DR WEISS AND BHOOPALAN

PURPOSE: RESEARCH PROPOSAL

$70,000

JOSLIN DIABETES CENTER- DR LAURA PAULETTE FERNANDEZ- CARDENAS

PURPOSE: RESEARCH PROPOSAL

$67,314

BOSTON CHILDREN'S HOSPITAL- DR TIMOTHY YU

PURPOSE: RESEARCH PROPOSAL

$138,408

BOSTON CHILDREN'S HOSPITAL- DRS VIJAY SANKARAN AND RICHARD VOIT

PURPOSE: RESEARCH PROPOSAL

$70,000
View Grant Profile

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Sharpe-Strumia Research Foundation Of The Bryn Mawr Hospital
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Coalition To Cure Calpain 3
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$711,922
Diamond Blackfan Anemia Foundation
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$664,145
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