Neuroendocrine Tumor Research Foundation
- Assets
- $20.6m
- Revenue
- $3.2m
- Investments
- $0.0
- Employees
- 8
- Location
- Boston, MA
- Founding
- 03/2005
- Data as of
- 12/2023
- EIN
- 20-1945347
Organization Overview
Neuroendocrine Tumor Research Foundation is located in Boston, MA. The organization was established in 2005. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Neuroendocrine Tumor Research Foundation employed 8 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Neuroendocrine Tumor Research Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Neuroendocrine Tumor Research Foundation generated $3.2m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 5 years, the organization has seen revenues fall by an average of (9.4%) each year. All expenses for the organization totaled $3.6m during the year ending 12/2023. As we would expect to see with falling revenues, expenses have declined by (9.8%) per year over the past 5 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2019, Neuroendocrine Tumor Research Foundation has awarded 45 individual grants totaling $10,304,757. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO FUND RESEARCH TO DISCOVER CURES & MORE EFFECTIVE TREATMENTS FOR NEUROENDOCRINE CANCERS. THE NET RESEARCH FOUNDATION IS COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY NEURENDOCRINE CANCER BY PROVIDING INFORMATION & EDUCATIONAL RESOURCES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
NEUROENDOCRINE TUMOR RESEARCH FOUNDATION, INC (NETRF) FUNDS RESEARCH INTO THE CAUSES OF NEUROENDOCRINE TUMORS IN ORDER TO FIND CURES FOR THESE CANCERS.
NETRF PROVIDES EDUCATION AND INFORMATION FOR NET PATIENTS AND FAMILIES THROUGH A VARIETY OF FORMATS. THROUGH ITS EDUCATIONAL CONFERENCES, NETRF PRESENTS THE LATEST IN RESEARCH AND TREATMENT FROM NET PHYSICIANS AND CLINICIANS. ON ITS WEBSITE, NETRF OFFERS EDUCATIONAL ARTICLES, VIDEOS, PODCASTS, AND A PATIENT GUIDE TO HELP PATIENTS LEARN ABOUT THEIR DIAGNOSIS AND TREATMENT OPTIONS.
NETRF CONDUCTS OUTREACH TO OTHER NET-RELATED ORGANIZATIONS IN THE UNITED STATES AND BEYOND TO CONVENE RESEARCHERS AND FACILITATE SCIENTIFIC COLLABORATION. THROUGH ITS WORK AND LEADERSHIP WITH THESE OTHER GROUPS, NETRF ADVANCES UNDERSTANDING OF NEUROENDOCRINE TUMORS AND THE NEEDS OF NET PATIENTS. NETRF ALSO WORKS WITH PATIENT SUPPORT GROUPS TO CONNECT TO THE LARGER NET COMMUNITY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Mark Lewis MD Director | Trustee | 4 | $0 |
Jonathan Soroff Director | Trustee | 4 | $0 |
Julie Shaffer Mebane Vice President | OfficerTrustee | 4 | $0 |
Laurie Rains Director | Trustee | 4 | $0 |
Anthony Detre Director | Trustee | 4 | $0 |
Stephen Blackwood Director | Trustee | 4 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,558,610 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,558,610 |
| Total Program Service Revenue | $0 |
| Investment income | $533,005 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $104,642 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,196,257 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,100,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $1,010,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $197,380 |
| Compensation of current officers, directors, key employees. | $78,952 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $717,959 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $35,893 |
| Payroll taxes | $73,553 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $2,310 |
| Fees for services: Accounting | $43,748 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $116,268 |
| Advertising and promotion | $2,830 |
| Office expenses | $26,259 |
| Information technology | $41,688 |
| Royalties | $0 |
| Occupancy | $86,709 |
| Travel | $28,067 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $147,860 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $7,566 |
| All other expenses | $0 |
| Total functional expenses | $3,580,473 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,352,806 |
| Savings and temporary cash investments | $203,802 |
| Pledges and grants receivable | $513,268 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $17,417 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $18,457,571 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $88,379 |
| Total assets | $20,633,243 |
| Accounts payable and accrued expenses | $217,211 |
| Grants payable | $4,799,915 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $83,363 |
| Total liabilities | $5,100,489 |
| Net assets without donor restrictions | $2,848,405 |
| Net assets with donor restrictions | $12,684,349 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $20,633,243 |
Grants Awarded
Over the last fiscal year, Neuroendocrine Tumor Research Foundation has awarded $1,100,000 in support to 6 organizations.
| Grant Recipient | Amount |
|---|---|
NORTH AMER NEUROENDOCRINE TUMOR SOCIETY PURPOSE: RESEARCH | $100,000 |
UNIVERSITY OF PITTSBURG PURPOSE: RESEARCH | $100,000 |
MD ANDERSON CANCER CENTER PURPOSE: RESEARCH | $90,000 |
UTHEALTH HOUSTON PURPOSE: RESEARCH | $270,000 |
THE REGENTS OF THE UNIVERSITY OF CA SAN FRANCISCO PURPOSE: RESEARCH | $270,000 |
THE REGENTS OF THE UNIVERSITY OF MICHIGAN PURPOSE: RESEARCH | $270,000 |