Spastic Paraplegia Foundation Inc
- Assets
- $3.3m
- Revenue
- $1.3m
- Investments
- $1.5m
- Employees
- 0
- Location
- O Fallon, MO
- Founding
- 06/2002
- Data as of
- 12/2023
- EIN
- 04-3594491
Organization Overview
Spastic Paraplegia Foundation Inc, operating under the name Spastic Paraplegia Foundation, is located in O Fallon, MO. The organization was established in 2002. According to its NTEE Classification (G48) the organization is classified as: Brain Disorders, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Spastic Paraplegia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Spastic Paraplegia Foundation generated $1.3m in total revenue. This represents relatively stable growth, over the past 5 years the organization has increased revenue by an average of 6.1% each year. All expenses for the organization totaled $1.9m during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Since 2020, Spastic Paraplegia Foundation has awarded 14 individual grants totaling $2,435,659. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
1. TO FUND SCIENTIFIC RESEARCH TO DISCOVER THE CURES FOR HEREDITARY SPASTIC PARAPLEGIA AND PRIMARY LATERAL SCLEROSIS. 2. TO PROVIDE INFORMATION ABOUT THE DISORDERS TO PATIENTS AND THEIR LOVED ONES, AND TO THE GENERAL PUBLIC. 3. TO PROVIDE EMOTIONAL SUPPORT TO PATIENTS AND THEIR LOVED ONES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
SCIENTIFIC RESEARCH GRANTS WERE AWARDED TO ACADEMIC RESEARCHERS IN UNIVERSITIES BOTH IN THE UNITED STATES AND INTERNATIONALLY. A SCIENTIFIC ADVISORY BOARD REVIEWS AND RANKS ALL GRANT PROPOSALS RECEIVED EACH YEAR. THE FOUNDATION FUNDS ONLY THE TOP RANKED PROPOSALS. GRANTS ARE DIVIDED INTO UP TO FIVE INSTALLMENTS. THE FIRST INSTALLMENT IS ISSUED AFTER A COUNTERSIGNED RESEARCH GRANT AGREEMENT IS RETURNED TO THE FOUNDATION. EACH OF THE REMAINING INSTALLMENTS ARE ISSUED AFTER A SATISFACTORY PROGRESS REPORT OR FINAL REPORT FROM THE RESEARCHER. THE AMOUNT ABOVE REFLECTS THE AMOUNT OF GRANT PAYMENTS MADE IN 2023.
EDUCATIONAL EXPENSES TO CONDUCT AND PROMOTE SPF TALKS
THE FOUNDATION HOLDS AN ANNUAL CONFERENCE EACH YEAR FOR INDIVIDUALS SUFFERING FROM THE DISEASE, THEIR FAMILIES, AND CAREGIVERS. RESEARCHERS SPEAK ABOUT PRIMARY LATERAL SCLEROSIS AND HEREDITARY SPASTIC PARAPLEGIA, INCLUDING UPDATES ON THE CURRENT STATE OF THEIR RESEARCH. ATTENDEES MEET OTHERS AFFECTED BY THE DISORDERS, TYPICALLY THE FIRST TIME THESE INDIVIDUALS HAVE MET OTHERS WITH THE SAME CONDITION IN PERSON. ATTENDEES PAY A REGISTRATION FEE TO ATTEND.
THE FOUNDATION PRINTS AND DISTRIBUTES "SYNAPSE", A PERIODICAL ABOUT THE DISORDERS, ACTIVITIES OF THE FOUNDATION, AND ARTICLES ABOUT RESEARCH.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Corey Braastad Director | Trustee | 5 | $0 |
Hank Chiuppi Secretary/director | OfficerTrustee | 30 | $0 |
John Cobb Director | Trustee | 10 | $0 |
Tina Croghan Director | Trustee | 10 | $0 |
Frank Davis Director | Trustee | 5 | $0 |
Dina Landphair Director | Trustee | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $2,100 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,242,468 |
| Noncash contributions included in lines 1a–1f | $219,534 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,244,568 |
| Total Program Service Revenue | $49,773 |
| Investment income | $30,504 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,324,845 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,276,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $654,438 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $22,455 |
| Advertising and promotion | $0 |
| Office expenses | $31,135 |
| Information technology | $8,961 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $93,964 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $1,928,614 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,733,763 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $30,000 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $14,800 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $1,529,879 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $3,308,442 |
| Accounts payable and accrued expenses | $9,000 |
| Grants payable | $2,268,085 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $2,277,085 |
| Net assets without donor restrictions | $1,031,357 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,308,442 |
Grants Awarded
Over the last fiscal year, Spastic Paraplegia Foundation Inc has awarded $1,276,000 in support to 6 organizations.
| Grant Recipient | Amount |
|---|---|
MAYO CLINIC PURPOSE: medical research let by Dr. Blitterswijk. | $150,000 |
DREXEL UNIVERSITY PURPOSE: medical research led by Dr. Piermarini | $150,000 |
COLUMBIA UNIVERSITY PURPOSE: medical research - additional support for the previously awarded "Establishing the natural history of PLS for future clinical trials: Analyzing disease progress in patients with PLS to develop historical controls which can be used for the first clinical trial in PLS in the near future". Led by Dr. Mitsumoto. | $76,000 |
NORTHWESTERN UNIVERSITY PURPOSE: medical research led by Dr. Gautam. | $150,000 |
BOSTON CHILDREN'S HOSPITAL PURPOSE: research collaboration - Centers of Excellence - led by Dr. Fahkari. | $600,000 |
DREXEL UNIVERSITY PURPOSE: medical research led by Dr. Baas. | $150,000 |