National Brain Tumor Society Inc

Organization Overview

National Brain Tumor Society Inc is located in Newton, MA. The organization was established in 1994. According to its NTEE Classification (G48) the organization is classified as: Brain Disorders, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2020, National Brain Tumor Society Inc employed 46 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Brain Tumor Society Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2020, National Brain Tumor Society Inc generated $8.9m in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 3.5% each year. All expenses for the organization totaled $7.2m during the year ending 12/2020. You can explore the organizations financials more deeply in the financial statements section below.

Since 2014, National Brain Tumor Society Inc has awarded 106 individual grants totaling $19,926,736. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2020

Describe the Organization's Mission:

Part 3 - Line 1

NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, AND UNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS, AND ADVOCATE FOR PATIENTS AND CARE PARTNERS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

RESEARCH: NATIONAL BRAIN TUMOR SOCIETY (NBTS) THROUGHOUT ITS HISTORY HAS FUNDED SOME OF THE MOST IMPORTANT DISCOVERIES THAT HAVE LED TO THE ADVANCEMENT OF BRAIN TUMOR RESEARCH. TODAY, NBTS IS FUNDING INNOVATIVE TEAM-SCIENCE INITIATIVES INCLUDING THE DEFEAT GBM RESEARCH COLLABORATIVE AND THE DEFEAT PEDIATRIC BRAIN TUMORS RESEARCH COLLABORATIVE. OUR "DEFEAT" PROGRAMS BRING TOGETHER WORLD-RENOWN INSTITUTIONS TO ACCELERATE THE PACE OF RESEARCH BY REQUIRING DATA SHARING AND THE RAPID MOVEMENT OF DISCOVERIES TO BE TRANSLATED INTO POTENTIAL NEW TREATMENTS. IN JUST THREE YEARS DEFEAT GBM DISCOVERED FOUR POTENTIAL NEW TREATMENTS FOR GBM AND HAS SCREENED THOUSANDS OF EXISTING DRUGS FOR POTENTIAL BENEFIT. NBTS IS ALSO FUNDING OUTSTANDING LOW-GRADE BRAIN TUMOR RESEARCH. IT ALSO HOSTS A UNIQUE RESEARCH ROUNDTABLE OF RESEARCH LEADERS COMMITTED TO ELIMINATING THE BARRIERS TO PROGRESS.


PUBLIC POLICY & ADVOCACY: NBTS IS WELL-RECOGNIZED AS A LEADER IN PUBLIC POLICY RELATED TO BRAIN TUMORS AND CANCER GENERALLY. EACH YEAR WE ADVANCE A SPECIFIC POLICY AGENDA WITH CONGRESS AND THE EXECUTIVE BRANCH TO IMPROVE PATIENTS LIVES AND THE LIKELIHOOD OF THE DEVELOPMENT OF NEW TREATMENTS. NBTS ADVOCACY EFFORTS HAVE LED TO GREATER FEDERAL INVESTMENT IN BRAIN TUMOR RESEARCH AND IMPROVED POLICIES THAT SPEED THE RESEARCH PROCESS. THROUGH ADVOCACY PATIENTS AND THEIR FAMILIES, AND RESEARCHERS ALSO HAVE A VOICE AND CAN COME TO WASHINGTON DC FOR OUR SIGNATURE HEAD TO THE HILL HELD ANNUALLY.


INFORMATION, AWARENESS AND REMEMBRANCE: NBTS IS COMMITTED TO HELPING PATIENTS AND CARE PARTNERS OBTAIN ESSENTIAL INFORMATION FROM THE TIME OF DIAGNOSIS INCLUDING INFORMATION ABOUT TREATMENT OPTIONS AND CLINICAL TRIALS. THROUGH ITS BRAIN TUMOR EXPERIENCE WEBSITE, NBTS PROVIDES, TO MANY ACROSS THE U.S. AND GLOBALLY, TIMELY INFORMATION AND IS AVAILABLE BY PHONE TO HELP CONNECT TO TREATMENTS CENTERS AND SUPPORT SERVICES. IT ALSO HELPS PATIENTS FIND CLINICAL TRIALS THROUGH THE NBTS CLINICAL TRIALS FINDER ON OUR WEBSITE AND THROUGH THE REGULAR NBTS CLINICAL TRIALS REPORT. NBTS ALSO CONNECTS PATIENTS TO EACH OTHER THROUGH REGIONAL EVENTS AND HELPS FAMILIES HONOR THEIR LOVED ONES. THE EVENTS PROVIDE ACCESS TO TREATMENT PROVIDERS FOR FAMILIES AND FRIENDS, AND HELP MAKE THE BROADER PUBLIC MORE AWARE OF OUR CAUSE THROUGH COMMUNICATIONS PROGRAMS.


RESEARCH: NATIONAL BRAIN TUMOR SOCIETY (NBTS) THROUGHOUT ITS HISTORY HAS FUNDED SOME OF THE MOST IMPORTANT DISCOVERIES THAT HAVE LED TO THE ADVANCEMENT OF BRAIN TUMOR RESEARCH. TODAY, NBTS IS FUNDING INNOVATIVE TEAM-SCIENCE INITIATIVES INCLUDING THE DEFEAT GBM RESEARCH COLLABORATIVE AND THE DEFEAT PEDIATRIC BRAIN TUMORS RESEARCH COLLABORATIVE. OUR "DEFEAT" PROGRAMS BRING TOGETHER WORLD-RENOWN INSTITUTIONS TO ACCELERATE THE PACE OF RESEARCH BY REQUIRING DATA SHARING AND THE RAPID MOVEMENT OF DISCOVERIES TO BE TRANSLATED INTO POTENTIAL NEW TREATMENTS. IN JUST THREE YEARS DEFEAT GBM DISCOVERED FOUR POTENTIAL NEW TREATMENTS FOR GBM AND HAS SCREENED THOUSANDS OF EXISTING DRUGS FOR POTENTIAL BENEFIT. NBTS IS ALSO FUNDING OUTSTANDING LOW-GRADE BRAIN TUMOR RESEARCH. IT ALSO HOSTS A UNIQUE RESEARCH ROUNDTABLE OF RESEARCH LEADERS COMMITTED TO ELIMINATING THE BARRIERS TO PROGRESS.


PUBLIC POLICY & ADVOCACY: NBTS IS WELL-RECOGNIZED AS A LEADER IN PUBLIC POLICY RELATED TO BRAIN TUMORS AND CANCER GENERALLY. EACH YEAR WE ADVANCE A SPECIFIC POLICY AGENDA WITH CONGRESS AND THE EXECUTIVE BRANCH TO IMPROVE PATIENTS LIVES AND THE LIKELIHOOD OF THE DEVELOPMENT OF NEW TREATMENTS. NBTS ADVOCACY EFFORTS HAVE LED TO GREATER FEDERAL INVESTMENT IN BRAIN TUMOR RESEARCH AND IMPROVED POLICIES THAT SPEED THE RESEARCH PROCESS. THROUGH ADVOCACY PATIENTS AND THEIR FAMILIES, AND RESEARCHERS ALSO HAVE A VOICE AND CAN COME TO WASHINGTON DC FOR OUR SIGNATURE HEAD TO THE HILL HELD ANNUALLY.


INFORMATION, AWARENESS AND REMEMBRANCE: NBTS IS COMMITTED TO HELPING PATIENTS AND CARE PARTNERS OBTAIN ESSENTIAL INFORMATION FROM THE TIME OF DIAGNOSIS INCLUDING INFORMATION ABOUT TREATMENT OPTIONS AND CLINICAL TRIALS. THROUGH ITS BRAIN TUMOR EXPERIENCE WEBSITE, NBTS PROVIDES, TO MANY ACROSS THE U.S. AND GLOBALLY, TIMELY INFORMATION AND IS AVAILABLE BY PHONE TO HELP CONNECT TO TREATMENTS CENTERS AND SUPPORT SERVICES. IT ALSO HELPS PATIENTS FIND CLINICAL TRIALS THROUGH THE NBTS CLINICAL TRIALS FINDER ON OUR WEBSITE AND THROUGH THE REGULAR NBTS CLINICAL TRIALS REPORT. NBTS ALSO CONNECTS PATIENTS TO EACH OTHER THROUGH REGIONAL EVENTS AND HELPS FAMILIES HONOR THEIR LOVED ONES. THE EVENTS PROVIDE ACCESS TO TREATMENT PROVIDERS FOR FAMILIES AND FRIENDS, AND HELP MAKE THE BROADER PUBLIC MORE AWARE OF OUR CAUSE THROUGH COMMUNICATIONS PROGRAMS.


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Board, Officers & Key Employees

Name (title)Compensation
David Arons
CEO
$253,346
Lauren Hall
Cdo
$228,403
Kirk Tanner
Cso
$201,152
Kevin Jeans
Assistant Cdo
$181,265
Danielle Leach
Chief Of Comm. And Gov. Relations
$151,951
Steve Gallucci
CFO
$151,928

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Morgan Lewis & Bockius Llp
Legal
$115,473
Pricewaterhousecoopers Llc
Consultant
$635,000
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$4,498,244
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$4,357,464
Noncash contributions included in lines 1a–1f $18,743
Total Revenue from Contributions, Gifts, Grants & Similar$8,855,708
Total Program Service Revenue$0
Investment income $68,697
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $6,820
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $8,931,225

Grants Awarded

Over the last fiscal year, National Brain Tumor Society Inc has awarded $1,880,000 in support to 28 organizations.

Grant RecipientAmount

ONCOCEUTICS INC

PURPOSE: RESEARCH

$200,000

ONCOCEUTICS INC

PURPOSE: RESEARCH

$200,000

UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL

Org PageRecipient Profile

Chapel Hill, NC

PURPOSE: RESEARCH

$150,000

UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL

Org PageRecipient Profile

Chapel Hill, NC

PURPOSE: RESEARCH

$150,000

New Haven, CT

PURPOSE: RESEARCH

$125,000

New Haven, CT

PURPOSE: RESEARCH

$125,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 4 grants that National Brain Tumor Society Inc has recieved totaling $3,908.

Awarding OrganizationAmount
Scott & Kathryn Happ Foundation Inc

Thiensville, WI

PURPOSE: GENERAL PURPOSE

$1,854
The Bowers Foundation

Wilmington, DE

PURPOSE: GENERAL & UNRESTRICTED

$1,000
The Andover Companies Charitable Foundation

Wilmington, DE

PURPOSE: GENERAL & UNRESTRICTED

$554
Yardeni Family Foundation

New York, NY

PURPOSE: CHARITABLE

$500
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$565,448
Ending Balance$565,448

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