Amyotrophic Lateral Sclerosis Association

Organization Overview

Amyotrophic Lateral Sclerosis Association is located in Woodland Hills, CA. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2022, Amyotrophic Lateral Sclerosis Association employed 47 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Amyotrophic Lateral Sclerosis Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 01/2022, Amyotrophic Lateral Sclerosis Association generated $10.5m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 13.6% each year . All expenses for the organization totaled $9.3m during the year ending 01/2022. While expenses have increased by 11.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2019, Amyotrophic Lateral Sclerosis Association has awarded 53 individual grants totaling $6,122,759. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

THE ALS ASSOCIATION GOLDEN WEST CHAPTER IS DEDICATED TO LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH ALS AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. THE GOLDEN WEST CHAPTER SUPPORTS PEOPLE LIVING WITH ALS AND THEIR LOVED ONES IN 31 COUNTIES THROUGHOUT CALIFORNIA AND THE ENTIRE STATE OF HAWAII.

Describe the Organization's Program Activity:

Part 3 - Line 4a

OUR MISSION CRITICAL PROGRAM PRIORITIES INCLUDE CARE SERVICES, RESEARCH, AND ADVOCACY. THESE PROGRAMS ARE PROVIDED TO PEOPLE WITH ALS AND THEIR FAMILIES AT NO CHARGE. OUR ACCOMPLISHMENTS FOR FISCAL YEAR ENDING 1/31/22 ARE AS FOLLOWS:CARE MANAGEMENT -STRATEGICALLY BASED IN AND NEAR PATIENTS' HOME COMMUNITIES, THE CHAPTER'S CARE MANAGERS (CMS) WORK DIRECTLY WITH PERSONS WITH ALS AND THEIR FAMILIES AND SERVE AS PART OF THE TREATMENT TEAM IN COLLABORATION WITH CLINICIANS FROM CERTIFIED CENTERS AND AFFILIATED CLINICS. CMS PROVIDE CRITICAL INFORMATION AND REFERRALS TO PATIENTS AND FAMILIES, HELP PATIENTS OBTAIN MEDICAL AND COMMUNICATION-RELATED EQUIPMENT, CONNECT THEM WITH ESSENTIAL RESOURCES, ADVOCATE FOR THE UNINSURED, EXPLAIN MEDICAL DIRECTIVES, AND OFFER PSYCHOSOCIAL SUPPORT. THIS PROGRAM IS AVAILABLE THROUGHOUT THE 31 COUNTIES WE SERVE IN THE STATE OF CALIFORNIA AND THE STATE OF HAWAII. THIS PROGRAM PROVIDED SERVICE TO 1,890 PERSONS WITH ALS. SERVICE WAS AVAILABLE FOR 365 DAYS.


NATIONAL ALS ASSOCIATION -AS ONE OF MANY CHAPTERS AFFILIATED WITH THE ALS ASSOCIATION, THE GOLDEN WEST CHAPTER PROVIDES ONGOING FINANCIAL SUPPORT TO THE ALS ASSOCIATION NATIONAL OFFICE TO SUPPORT FEDERAL PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF PATIENTS AND FAMILIES LIVING WITH ALS, AS WELL AS GLOBAL CUTTING-EDGE RESEARCH PROJECTS IN SEARCH OF ALS TREATMENTS AND CURES.


COMMUNITY OUTREACH & AWARENESS/PUBLIC POLICY -COMMUNITY OUTREACH EVENTS, INCLUDING OUR WALKS TO DEFEAT ALS, ARE OPPORTUNITIES TO BRING HOPE AND A SENSE OF COMMUNITY TO PERSONS WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER TO SHARE THEIR STORIES,PATIENTS AND THEIR FAMILIES, AS WELL AS THOSE WHO HAVE LOST LOVED ONES TO ALS, FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. WALKS TO DEFEAT ALS CREATE AN ENVIRONMENT OF EMPOWERMENT WHERE FAMILIES AND FRIENDS OF PERSONS WITH ALS ARE GIVEN AN OPPORTUNITY TO AFFECT PUBLIC POLICY BY SIGNING PETITIONS THAT ARE SENT TO THE LEGISLATORS REPRESENTING THEIR DISTRICTS. WALKS ALSO BRING AWARENESS TO LOCAL COMMUNITIES OF THOSE FIGHTING ALS AND OF THE SUPPORT AVAILABLE TO THEM THROUGH THE ALS ASSOCIATION GOLDEN WEST CHAPTER.THE GOLDEN WEST CHAPTER'S PUBLIC POLICY AND LEADERSHIP DEVELOPMENT PROGRAM IS INTENDED TO INCREASE UNDERSTANDING, EDUCATION AND AWARENESS OF THE DEVASTATING IMPACT OF ALS AND THE ROLE THAT THE ALS ASSOCIATION PLAYS IN ACHIEVING THE THREE CORE COMPONENTS OF OUR MISSION; CARE SERVICES FOR PATIENTS AND FAMILIES, GLOBAL RESEARCH FOR TREATMENTS AND CURES, AND IMPORTANT PUBLIC POLICY INITIATIVES. THROUGH THESE EFFORTS, WE ENGAGE VOLUNTEERS IN THE COMMUNITIES WE SERVE AND GIVE THEM THEOPPORTUNITY TO PARTICIPATE IN ADVANCING THE ACTIVITY OF THE ORGANIZATION AND THE ACHIEVEMENT OF OUR MISSION PRIORITIES.THIS PROGRAM ALSO ENCOMPASSES THE CALIFORNIA ALS RESEARCH SUMMIT, AN ANNUAL GATHERING OF RESEARCHERS, INVESTIGATORS, CLINICIANS, BIOTECH COMPANIES, GOVERNMENT REPRESENTATIVES AND PATIENT ADVOCATES IN ALS AND RELATED FIELDS IN THE STATE OF CALIFORNIA. THE PURPOSE OF THE SUMMIT IS TO HELP INCREASE, EXPEDITE AND PROMOTE THE AMOUNT AND LEVEL OF AMYOTROPHIC LATERAL SCLEROSIS AND RELATED RESEARCH DONE IN CALIFORNIA; AND TO FOSTER NETWORKING, COLLABORATION AND COOPERATION AMONG INVESTIGATORS, THEIR PEERS AND THEIR COLLEAGUES TO IDENTIFY, DEVELOP AND DELIVER NEW AND EFFECTIVE TREATMENTS, IDEAS AND, ULTIMATELY, CURES.


ALS CLINIC SUPPORT -THE GOLDEN WEST CHAPTER IS COMMITTED TO MAKING SURE THAT PEOPLE LIVING WITH ALS HAVE ACCESS TO SPECIALIZED CARE THAT IS BASED ON BEST PRACTICES. PROVEN BY RESEARCH TO HELP PEOPLE WITH ALS LIVE LONGER AND BETTER LIVES, ACCESS TO MULTIDISCIPLINARY CLINICS IS ONE OF THE CORNERSTONES OF THE GOLDEN WEST CHAPTER'S WRAPAROUND MODEL OF CARE. CHAPTER CARE SERVICES STAFF MEMBERS ARE EMBEDDED IN EACH CLINIC, WHERE THEY ACT AS KEY MEMBERS OF THE MULTIDISCIPLINARY TEAM AND PROVIDE COMPREHENSIVE SUPPORT TO PERSONS WITH ALS AND THEIR FAMILY MEMBERS/CAREGIVERS. THIS MODEL OF CARE BRINGS TOGETHER A TEAM OF HEALTH CARE PROFESSIONALS SPECIALLY TRAINED TO ADDRESS THE NEEDS OF PEOPLE LIVING WITH ALS, ALLOWING THEM TO RECEIVE CARE FROM EACH DISCIPLINE DURING A SINGLE VISIT. THE CARE TEAM TYPICALLY INCLUDES A NEUROLOGIST, PHYSICAL THERAPIST, OCCUPATIONAL THERAPIST, RESPIRATORY THERAPIST, NURSE, DIETITIAN, SPEECH LANGUAGE PATHOLOGIST, SOCIAL WORKER, MENTAL HEALTH PROFESSIONAL, AND GOLDEN WEST CHAPTER CHAPTER LIAISON. THE ALS CLINICS SUPPORTED BY THE GOLDEN WEST CHAPTER PROVIDE COMPASSIONATE CARE IN A SUPPORTIVE, FAMILY-ORIENTED ATMOSPHERE. IN ADDITION TO SUPPORTING ESTABLISHED CLINICS, THE GOLDEN WEST CHAPTER SUPPORTS AND PROMOTES SATELLITE CLINICS THAT IMPROVE ACCESS TO CRITICALLY NEEDED SERVICES PROVIDED WITHIN THIS PROVEN MULTIDISCIPLINARY, WRAPAROUND MODEL OF CARE.COMMUNITY OUTREACH & AWARENESS/PUBLIC POLICY -COMMUNITY OUTREACH EVENTS, INCLUDING OUR WALKS TO DEFEAT ALS, ARE OPPORTUNITIES TO BRING HOPE AND A SENSE OF COMMUNITY TO PERSONS WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER TO SHARE THEIR STORIES, PATIENTS AND THEIR FAMILIES, AS WELL AS THOSE WHO HAVE LOST LOVED ONES TO ALS, FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. WALKS TO DEFEAT ALS CREATE AN ENVIRONMENT OF EMPOWERMENT WHERE FAMILIES AND FRIENDS OF PERSONS WITH ALS ARE GIVEN AN OPPORTUNITY TO AFFECT PUBLIC POLICY BY SIGNING PETITIONS THAT ARE SENT TO THE LEGISLATORS REPRESENTING THEIR DISTRICTS. WALKS ALSO BRING AWARENESS TO LOCAL COMMUNITIES OF THOSE FIGHTING ALS AND OF THE SUPPORT AVAILABLE TO THEM THROUGH THE ALS ASSOCIATION GOLDEN WEST CHAPTER.THE GOLDEN WEST CHAPTER'S PUBLIC POLICY AND LEADERSHIP DEVELOPMENT PROGRAM IS INTENDED TO INCREASE UNDERSTANDING, EDUCATION AND AWARENESS OF THE DEVASTATING IMPACT OF ALS AND THE ROLE THAT THE ALS ASSOCIATION PLAYS IN ACHIEVING THE THREE CORE COMPONENTS OF OUR MISSION; CARE SERVICES FOR PATIENTS AND FAMILIES, GLOBAL RESEARCH FOR TREATMENTS AND CURES, AND IMPORTANT PUBLIC POLICY INITIATIVES. THROUGH THESE EFFORTS, WE ENGAGE VOLUNTEERS IN THE COMMUNITIES WE SERVE AND GIVE THEM THE OPPORTUNITY TO PARTICIPATE IN ADVANCING THE ACTIVITY OF THE ORGANIZATION AND THE ACHIEVEMENT OF OUR MISSION PRIORITIES.


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Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$1,288,704
Related organizations$0
Government grants $3,363,476
All other contributions, gifts, grants, and similar amounts not included above$5,815,363
Noncash contributions included in lines 1a–1f $40,390
Total Revenue from Contributions, Gifts, Grants & Similar$10,467,543
Total Program Service Revenue$0
Investment income $587
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $10,468,130

Grants Awarded

Over the last fiscal year, Amyotrophic Lateral Sclerosis Association has awarded $1,688,759 in support to 11 organizations.

Grant RecipientAmount

ALS ASSOCIATION GREATER SACRAMENTO CHAPTER

Org PageRecipient Profile

Citrus Heights, CA

PURPOSE: To support a wraparound model of care

$316,661

ALS ASSOCIATION GREATER SAN DIEGO CHAPTER

Org PageRecipient Profile

Oceanside, CA

PURPOSE: To support a wraparound model of care

$298,164

ALS ASSOCIATION ORANGE COUNTY CHAPTER

Org PageRecipient Profile

Tustin, CA

PURPOSE: To support a wraparound model of care

$273,934

REGENTS OF THE UNIVERSITY OF CALIFORNIA IRVINE

Org PageRecipient Profile

Irvine, CA

PURPOSE: To support a wraparound model of care

$100,000

REGENTS OF THE UNIVERSITY OF CALIFORNIA DEPARTMENT OF NEUROSCIENCES

Org PageRecipient Profile

La Jolla, CA

PURPOSE: To support a wraparound model of care

$100,000

FACULTY PHYSICIANS & SURGEONS OF LLUSM

Org PageRecipient Profile

Loma Linda, CA

PURPOSE: To support a wraparound model of care

$100,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 17 grants that Amyotrophic Lateral Sclerosis Association has recieved totaling $400,965.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$100,995
Schwab Charitable Fund

San Francisco, CA

PURPOSE: HEALTH

$77,513
Silicon Valley Community Foundation

Mountain View, CA

PURPOSE: Health

$52,900
Thatcher Foundation

Woodland Hills, CA

PURPOSE: TO FURTHER GOALS OF FOUNDATIONTO FURTHER GOALS OF FOUNDATIONTO FURTHER GOALS OF FOUNDATIONTO FURTHER GOALS OF FOUNDATION

$45,000
Sherwood Country Club Charitable Foundation Inc

Thousand Oaks, CA

PURPOSE: SUPPORT

$30,000
Lon V Smith Foundation

Beverly Hills, CA

PURPOSE: UNRESTRICTED

$25,000
View Grant Recipient Profile

Endowment Analysis

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