National Spasmodic Torticollis Association

Organization Overview

National Spasmodic Torticollis Association, operating under the name Association, is located in Fountain Valley, CA. The organization was established in 2000. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 09/2022, Association employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 09/2022, Association generated $411.7k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 23.6% each year . All expenses for the organization totaled $183.5k during the year ending 09/2022. While expenses have increased by 1.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990T Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

THE MISSION OF THE NSTA IS TO SUPPORT THE NEEDS AND WELL BEING OF AFFECTED INDIVIDUALS AND FAMILIES;TO PROMOTE AWARENESS AND EDUCATION; TO ADVANCE RESEARCH FOR MORE TREATMENTS AND ULTIMATELY A CURE.

Describe the Organization's Program Activity:

PEOPLE WHO RECEIVE THE ST QUARTERLY MAGAZINE USE IT AS A CONTINUOUS SOURCE OF UP-TO-DATE INFORMATION REGARDING SPASMODIC TORTICOLLIS. FROM THE INFORMATION THEY LEARN THROUGH THE ARTICLES WRITTEN BY MEDICAL PROFESSIONALS AND PEOPLE INFLICTED WITH ST, THEY ARE ABLE TO COMMUNICATE CLEARLY WITH THE MEDICAL PROFESSIONALS INVOLVED WITH THEIR HEALTHCARE. IN ADDITION TO INFORMATION, READERS ARE USING THE MAGAZINE AS A SOURCE OF EMOTIONAL SUPPORT. THEY TAKE COMFORT KNOWING THERE ARE PEOPLE WHO UNDERSTAND WHAT THEY ARE GOING THROUGH AND THERE IS A PLACE TO CONTACT IF THEY SHOULD EVER NEED INFORMATION OR SUPPORT.


RESEARCH


PROVIDED EMAIL SUPPORT TO PEOPLE INQUIRING INFORMATION ON SPASMODIC TORTICOLLIS. PROVIDE INFORMATION ON YOUTUBE, FACEBOOK, & NSTA WEBSITE ABOUT THE CONDITION.


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Board, Officers & Key Employees

Name (title)Compensation
Kenneth Price
President
$0
Justin Aquines
Treasurer
$0
Sandra Levine
Secretary
$0
Mark Ledoux
Chairman
$0

Financial Statements

Statement of Revenue
Federated campaigns$405,456
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$6,192
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$411,648
Total Program Service Revenue$0
Investment income $22
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $411,670

Grants Recieved

Over the last fiscal year, we have identified 2 grants that National Spasmodic Torticollis Association has recieved totaling $10,267.

Awarding OrganizationAmount
Abbvie Foundation

North Chicago, IL

PURPOSE: GENERAL MISSION

$10,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$267
View Grant Recipient Profile

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