Amyotrophic Lateral Sclerosis Association
- Assets
- $1.6m
- Revenue
- $1.7m
- Investments
- $0.0
- Employees
- 16
- Location
- Phoenix, AZ
- Founding
- 07/1990
- Data as of
- 01/2024
- EIN
- 86-0727136
Organization Overview
Amyotrophic Lateral Sclerosis Association is located in Phoenix, AZ. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2024, Amyotrophic Lateral Sclerosis Association employed 16 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Amyotrophic Lateral Sclerosis Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 01/2024, Amyotrophic Lateral Sclerosis Association generated $1.7m in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 4.5% each year. All expenses for the organization totaled $1.5m during the year ending 01/2024. While expenses have increased by 3.6% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2024
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE COMPREHENSIVE SUPPORT AND ADVOCACY FOR PEOPLE WITH ALS AND THEIR FAMILIES, WHILE ADVANCING RESEARCH FOR NEW TREATMENTS AND AN END TO ALS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
ALS ARIZONA, A 501(C)(3) NON-PROFIT ORGANIZATION IS A STATEWIDE VOLUNTARY HEALTH ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST AMYOTROPHIC LATERAL SCLEROSIS, PROVIDING COMPREHENSIVE PATIENT SERVICES AND SUPPORT TO ARIZONA'S ALS COMMUNITY. WE ARE COMPASSIONATE, COMMITTED, AND RELENTLESS IN THE FIGHT TO DEFEAT ALS. SINCE 1991, WE HAVE IMPLEMENTED CRITICAL ASSISTANCE FOR MORE THAN 10,000 PATIENTS AND THEIR FAMILIES AT EVERY STAGE OF THE DISEASE BY OFFERING DISEASE EDUCATION, PATIENT CARE MANAGEMENT, A MEDICAL EQUIPMENT LOAN PROGRAM, TRANSPORTATION, AND MULTIDISCIPLINARY ALS CLINICS. ALS ARIZONA ALSO RECOGNIZES THAT ALS AFFECTS THE ENTIRE FAMILY AND OFFERS SUPPORT THROUGH SPECIALIZED SUPPORT GROUPS, FAMILY COUNSELING, RESPITE CARE, A YOUTH PROGRAM, AND ADAPTIVE RECREATION ACTIVITIES, ENABLING EACH FAMILY TO LIVE LIFE TO THE FULLEST.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Taryn Norley President & CEO | OfficerTrustee | 40 | $142,530 |
Robert Meyncke Chair | OfficerTrustee | 1 | $0 |
Robert Bowser Vice Chair | OfficerTrustee | 1 | $0 |
Dan Roder Treasurer | OfficerTrustee | 1 | $0 |
Cindy Ketcherside Director | Trustee | 1 | $0 |
Beau Baukol Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $49,159 |
| Membership dues | $0 |
| Fundraising events | $839,259 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $652,300 |
| Noncash contributions included in lines 1a–1f | $95,230 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,540,718 |
| Total Program Service Revenue | $0 |
| Investment income | $8,929 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$72,173 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,685,724 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $142,530 |
| Compensation of current officers, directors, key employees. | $14,253 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $459,718 |
| Pension plan accruals and contributions | $11,222 |
| Other employee benefits | $17,264 |
| Payroll taxes | $50,841 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $39,179 |
| Fees for services: Lobbying | $213 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $273,934 |
| Advertising and promotion | $3,731 |
| Office expenses | $43,892 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $60,901 |
| Travel | $39,812 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $42,512 |
| Depreciation, depletion, and amortization | $21,371 |
| Insurance | $5,853 |
| All other expenses | $27,280 |
| Total functional expenses | $1,459,710 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $629,497 |
| Savings and temporary cash investments | $858,538 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $29,787 |
| Net Land, buildings, and equipment | $102,960 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $22,909 |
| Total assets | $1,643,691 |
| Accounts payable and accrued expenses | $92,496 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $15,740 |
| Total liabilities | $108,236 |
| Net assets without donor restrictions | $1,532,655 |
| Net assets with donor restrictions | $2,800 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,643,691 |