Alaska Hemophilia Association Inc

Organization Overview

Alaska Hemophilia Association Inc is located in Anchorage, AK. The organization was established in 1994. According to its NTEE Classification (Z99) the organization is classified as: Unknown, under the broad grouping of Unknown and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Alaska Hemophilia Association Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2022, Alaska Hemophilia Association Inc generated $170.0k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 8 years, the organization has seen revenues fall by an average of (4.1%) each year. All expenses for the organization totaled $219.4k during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

TO INFORM AND EDUCATE THE PUBLIC ABOUT HEMOPHILIA AND OTHER INHERITED BLEEDING DISORDERS, AND TO PROVIDE EDUCATIONAL AND SUPPORT SERVICES FOR ALASKANS LIVING WITH HEMOPHILIA AND OTHER INHERITED BLEEDING DISORDERS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

CAMP FROZEN CHOSEN: ANNUAL SUMMER CAMP FOR FAMILY AND CHILDREN WITH GENETIC BLEEDING DISORDERS. THE GOAL OF THIS EVENT IS TO IMPROVE THE LIVES OF THOSE WITH BLEEDING DISORDERS AND THEIR FAMILIES, BY PROVIDING THE EXPERIENCE OF CAMP ACTIVITIES, AND PROVIDING EDUCATIONAL SESSIONS TO HELP CHILDREN GAIN SKILLS IN SELF CARE, TEACHING THEM TO HAVE CONTROL AND LIFE SKILLS OVER THEIR MEDICAL CONDITION.


DIRECT PATIENT SERVICES: HEALTH INSURANCE ASSISTANCE FOR PREMIUMS, MEDICAL EXPENSES, CLINIC APPOINTMENTS, AND LIVING ASSISTANCE FOR PATIENTS WITH BLEEDING DISORDERS, POST-SECONDARY SCHOLARSHIPS FOR PATIENTS WITH BLEEDING DISORDERS AND NURSE STAFFING FOR PROVIDENCE ALASKA MEDICAL CENTER AND TREATMENT CENTER SUPPORT.


EDUCATIONAL ACTIVITIES: ANNUAL WOMEN'S RETREAT, NEWSLETTER, ANNUAL MEETING.


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Board, Officers & Key Employees

Name (title)Compensation
John Palmatier
Executive Dir.
$107,520
Matthew Findley
President
$0
Marjorie Allard
Secretary
$0
Wayne Cobb
Treasurer
$0
Denise Cook
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$131,006
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$131,006
Total Program Service Revenue$0
Investment income $3,812
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $35,195
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $170,037

Grants Recieved

Over the last fiscal year, we have identified 2 grants that Alaska Hemophilia Association Inc has recieved totaling $16,033.

Awarding OrganizationAmount
Hemophilia Alliance Foundation

Lansdale, PA

PURPOSE: PROMOTE HEMOPHILIA

$16,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$33
View Grant Recipient Profile

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