Foundation For Ichthyosis And Related Skin Types
- Assets
- $2.1m
- Revenue
- $734.9k
- Investments
- $0.0
- Employees
- 3
- Location
- Lansdale, PA
- Founding
- 06/1981
- Data as of
- 09/2023
- EIN
- 94-2738019
Organization Overview
Foundation For Ichthyosis And Related Skin Types, operating under the name First, is located in Lansdale, PA. The organization was established in 1981. According to its NTEE Classification (G40) the organization is classified as: Diseases of Specific Organs, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 09/2023, First employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. First is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 09/2023, First generated $734.9k in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 0.6% each year. All expenses for the organization totaled $756.1k during the year ending 09/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO IMPROVE LIVES AND SEEK CURES FOR THOSE AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FIRST EDUCATES, INSPIRES, AND CONNECTS FAMILIES AND INDIVIDUALS AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES. FIRST HOSTS PATIENT SUPPORT FORUMS AND ALSO PROVIDES CRITICAL INFORMATION TO ITS MEMBERS AND THE GENERAL PUBLIC THROUGH ITS WEBSITE AND CALLS TO ITS KNOWLEDGEABLE STAFF. FIRST MAINTAINS AN ACTIVE SOCIAL MEDIA PRESENCE AND FACILITATES GROUP DISCUSSIONS. FIRST PROVIDES ACCURATE, NON-BIASED INFORMATION ON THE LATEST IN RESEARCH, DIAGNOSIS, AND MANAGEMENT OF ICHTHYOSIS AND RELATED SKIN TYPES, AND CRITICAL SUPPORT TO THOSE AFFECTED WITH THESE GENETIC CONDITIONS AND THOSE THAT CARE FOR THEM.
ONE OF THE CORNERSTONES OF FIRST IS ITS EMPHASIS ON RESEARCH AND ITS SUPPORT OF THE YALE ICHTHYOSIS REGISTRY BOTH FINANCIALLY AND THROUGH ITS PROMOTION ACCROSS ITS COMMUNICATION CHANNELS. CRITICAL TO IMPROVING THE MANAGEMENT OF THEIR CONDITION, PARTICIPATION IN THE YALE REGISTRY PROVIDES EACH AFFECTED INDIVIDUAL A GENETIC DIAGNOSIS OF THEIR PARTICULAR TYPE OF ICHTHYOSIS OR OTHER SKIN TYPE. THE REGISTRY IS ALSO VITALLY IMPORTANT TO THE RESEARCH COMMUNITY AND CONTINUES TO BE REFERENCED IN NUMEROUS STUDIES AND MANUSCRIPTS. THE REGISTRY ALSO SERVES TO PROVIDE RESEARCH OPPORTUNITIES FOR TRAINING THE NEXT GENERATION OF PHYSICIAN SCIENTISTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Christopher Boynton Chief Exec. | Officer | 40 | $182,895 |
Jackie Barrett Board Member | Trustee | 1 | $0 |
Jolie Cina Board Member | Trustee | 1 | $0 |
Mark Evans Board Member | Trustee | 1 | $0 |
Beth Hampshire Board Chair | OfficerTrustee | 2 | $0 |
Tejal Kamdar Board Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $676,431 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $676,431 |
| Total Program Service Revenue | $0 |
| Investment income | $71,603 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$13,088 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $734,946 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $93,500 |
| Grants and other assistance to domestic individuals. | $15,221 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $182,895 |
| Compensation of current officers, directors, key employees. | $20,667 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $132,600 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $10,566 |
| Payroll taxes | $23,757 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $53,432 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $12,939 |
| Fees for services: Other | $38,902 |
| Advertising and promotion | $0 |
| Office expenses | $19,473 |
| Information technology | $10,855 |
| Royalties | $0 |
| Occupancy | $1,368 |
| Travel | $8,588 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $5,528 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $8,263 |
| Insurance | $4,771 |
| All other expenses | $50,380 |
| Total functional expenses | $756,091 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $157,406 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $15,243 |
| Net Land, buildings, and equipment | $16,242 |
| Investments—publicly traded securities | $1,885,282 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,074,173 |
| Accounts payable and accrued expenses | $19,514 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $19,514 |
| Net assets without donor restrictions | $1,172,894 |
| Net assets with donor restrictions | $881,765 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,074,173 |
Grants Awarded
Over the last fiscal year, Foundation For Ichthyosis And Related Skin Types has awarded $110,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
YALE UNIVERSITY PURPOSE: RESEARCH | $50,000 |
YALE UNIVERSITY PURPOSE: NATIONAL REGISTRY SUPPORT | $50,000 |
PEDIATRIC DERMATOLGOY RESEARCH ALLIANCE (SOCIETY FOR PEDIATRIC DERMATOLOGY) PURPOSE: SUPPORT OF 2018 RETINOIDS CONSENSUS MEETING | $10,000 |