Histiocytosis Association Inc
- Assets
- $2.4m
- Revenue
- $1.2m
- Investments
- $0.0
- Employees
- 8
- Location
- Pitman, NJ
- Founding
- 05/1988
- Data as of
- 12/2023
- EIN
- 22-2827069
Organization Overview
Histiocytosis Association Inc is located in Pitman, NJ. The organization was established in 1988. According to its NTEE Classification (G40) the organization is classified as: Diseases of Specific Organs, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Histiocytosis Association Inc employed 8 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Histiocytosis Association Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Histiocytosis Association Inc generated $1.2m in total revenue. The organization has seen a slow decline revenue. Over the past 8 years, revenues have fallen by an average of (0.6%) each year. All expenses for the organization totaled $1.2m during the year ending 12/2023. As we would expect to see with falling revenues, expenses have declined by (1.1%) per year over the past 8 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Histiocytosis Association Inc has awarded 21 individual grants totaling $977,000. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
HISTIOCYTOSIS ASSOCIATION, INC. IS DEDICATED TO RAISING AWARENESS ABOUT HISTIOCYTIC DISORDERS, PROVIDING EDUCATION AND EMOTIONAL SUPPORT, AND FUNDING RESEARCH LEADING TO BETTER TREATMENTS AND A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
EDUCATION AND OUTREACH: THE HISTIOCYTOSIS ASSOCIATION PROVIDES EDUCATIONAL INFORMATION AND OPPORTUNITIES TO PATIENTS AND THEIR FAMILIES AS WELL AS TO THE MEDICAL COMMUNITY THROUGH OUR ONLINE PRESENCE AT WWW.HISTIO.ORG, EDUCATIONAL VIDEOS, PRINTED MATERIALS AND ECOMMUNICATIONS. WE PROVIDE EMOTIONAL SUPPORT WITH OUR CIRCLE OF FRIENDS PROGRAM, SOCIAL MEDIA ACTIVITY, TELEPHONE-BASED HELPLINE AND HISTIO WARRIORS DIRECTORY WHICH CONNECTS PATIENTS AND FAMILIES IN A PRIVATE AND SECURE SETTING. THROUGH OUR PHYSICIAN DIRECTORY, PATIENTS AND DOCTORS ALIKE CAN FIND EXPERIENCED PHYSICIANS IN THEIR AREA. WE ADVOCATE FOR PATIENTS WITH HISTIOCYTIC DISORDERS THROUGHOUT THE YEAR, PARTICULARLY DURING SEPTEMBER HISTIOCYTOSIS AWARENESS MONTH, TO RAISE FUNDS AND AWARENESS ABOUT THESE RARE DISORDERS.
RESEARCH INITIATIVES: WE FUND THE VERY BEST BASIC SCIENCE RESEARCH BEING CONDUCTED WORLDWIDE AS IDENTIFIED THROUGH A COMPETITIVE EVALUATION PROCESS; THE RESULTS OF THIS FUNDING CONTINUE TO PAVE THE PATH TO A CURE. WE FUND CLINICAL STUDIES THAT RESULT IN IDENTIFYING THE BEST POSSIBLE TREATMENTS FOR HISTIOCYTIC DISORDERS; THIS PROVIDES IMMEDIATE AID TO PATIENTS BATTLING THESE DISEASES. AND WE DIRECTLY FACILITATE RESEARCH BY MANAGING THE HISTIOCYTE SOCIETY, THE ONLY PROFESSIONAL MEDICAL ORGANIZATION SPECIFICALLY DEDICATED TO THE RESEARCH AND TREATMENT OF HISTIOCYTIC DISORDERS; THIS UNIQUE RELATIONSHIP PROVIDES US WITH UNPARALLELED ACCESS TO THE LATEST ADVANCEMENTS AND INFORMATION IN THE SCIENTIFIC COMMUNITY, FROM WHICH ALL PATIENTS CAN BENEFIT.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Bradley Comp Board Member | Trustee | 1 | $0 |
Eli Diamond MD Board Member | Trustee | 1 | $0 |
James Hassan ESQ Board Member | Trustee | 1 | $0 |
Stephan Ladisch MD Board Member | Trustee | 1 | $0 |
Chad Rubin Board Member | Trustee | 1 | $0 |
Christine Shipley Board Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $805,669 |
| Related organizations | $0 |
| Government grants | $98,000 |
| All other contributions, gifts, grants, and similar amounts not included above | $242,323 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,145,992 |
| Total Program Service Revenue | $50,580 |
| Investment income | $31,995 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $2,038 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,231,034 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $226,000 |
| Grants and other assistance to domestic individuals. | $8,600 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $459,564 |
| Pension plan accruals and contributions | $12,964 |
| Other employee benefits | $0 |
| Payroll taxes | $37,815 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $4,488 |
| Fees for services: Other | $33,473 |
| Advertising and promotion | $9,189 |
| Office expenses | $0 |
| Information technology | $56,079 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $15,048 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $102,277 |
| All other expenses | $49,537 |
| Total functional expenses | $1,178,994 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,184,882 |
| Savings and temporary cash investments | $524,473 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $24,882 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $10,670 |
| Net Land, buildings, and equipment | $290,342 |
| Investments—publicly traded securities | $403,098 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,438,347 |
| Accounts payable and accrued expenses | $278,625 |
| Grants payable | $0 |
| Deferred revenue | $50,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $328,625 |
| Net assets without donor restrictions | $1,926,843 |
| Net assets with donor restrictions | $182,879 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,438,347 |
Grants Awarded
Over the last fiscal year, Histiocytosis Association Inc has awarded $226,000 in support to 6 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF CALIFORNIA SAN DIEGO PURPOSE: MEDICAL RESEARCH | $51,000 |
UNIVERSITY OF ALABAMA BIRMINGHAM PURPOSE: MEDICAL RESEARCH | $50,000 |
CINNCINATI CHILDREN'S HOSPITAL PURPOSE: MEDICAL RESEARCH | $10,000 |
CCRI ST ANNA KINDERKREBSFORSCHUNG PURPOSE: MEDICAL RESEARCH | $15,000 |
SCHNEIDER CHILDREN'S MEDICAL CENTER PURPOSE: MEDICAL RESEARCH | $50,000 |
THE OHIO STATE UNIVERSITY PURPOSE: MEDICAL RESEARCH | $50,000 |