Fanconi Cancer Foundation is located in Eugene, OR. The organization was established in 1994. According to its NTEE Classification (H90) the organization is classified as: Medical Disciplines Research, under the broad grouping of Medical Research and related organizations. As of 12/2023, Fanconi Cancer Foundation employed 12 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Fanconi Cancer Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Fanconi Cancer Foundation generated $3.5m in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 0.3% each year. All expenses for the organization totaled $4.2m during the year ending 12/2023. While expenses have increased by 6.6% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Fanconi Cancer Foundation has awarded 88 individual grants totaling $12,379,124. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO FAMILIES WORLDWIDE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH INITIATIVES - "ADVANCES OUR STAND UP TO CANCER PROJECT, AWARDS AND MANAGES RESEARCH GRANTS, MANAGES THE VIRTUAL TUMOR BOARD, ADVANCES OUR CLINICAL REGISTRY, OVERSEES THE FANCONI ANEMIA RESEARCH MATERIALS PROJECT, KEEPS FANCONI ANEMI GUIDELINES MANUAL UP TO DATE, MANAGES FANCONI ANEMIA CANCER CONSORTIUM, MANGES FANCONI ANEMIA BRUSH BIOPSY PROJECT, CONVENES FARF SPARKS MEETINGS, MANAGES FRIENDS DATA COMMONS."
EVENTS - "ANNUAL PLANNING MEETING, JOEL WALKER SERIES MEETINGS, ANNUAL FAMILY RETREAT, SCIENTIFIC SYMPOSIUM, ADULT FA RETREAT, INTERNATIONAL SUMMIT, SUPPORT FOR FARF SPARKS AND FA CONNECT."
COMMUNITY PROGRAMS AND SUPPORT - "ONBOARDS NEWLY DIAGNOSED FAMILIES, MANAGES ADULT COUNCIL, MANAGES WINN/BYRD AWARD, MANAGES INTERNATIONAL SUPPORT GRANT PROGRAM, MANAGES BEREAVEMENT SUPPORT, MANAGES CAREGIVER SUPPORT, MANAGES PEER SUPPORT, CONVENES FA CONNECT SESSIONS, MANAGES ADVOCACY AND ENGAGEMENT PROGRAM. "
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Mark Quinlan Executive Director | Officer | 40 | $168,509 |
Isis Sroka Chief Scientific Officer | Officer | 40 | $146,531 |
Sherri L Van Ravenhorst Highest Compensated Employee | 1 | $102,325 | |
Lisa Mingo President | Officer | 5 | $0 |
John Connelly Secretary | Officer | 5 | $0 |
Win Gouldin Vice President | Officer | 5 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $0 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $3,189,061 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $3,189,061 |
Total Program Service Revenue | $40,035 |
Investment income | $208,600 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $54,165 |
Net Income from Fundraising Events | $1,750 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $3,493,638 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $1,510,098 |
Grants and other assistance to domestic individuals. | $9,000 |
Grants and other assistance to Foreign Orgs/Individuals | $419,116 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $370,873 |
Compensation of current officers, directors, key employees. | $74,018 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $554,003 |
Pension plan accruals and contributions | $18,527 |
Other employee benefits | $132,703 |
Payroll taxes | $89,055 |
Fees for services: Management | $0 |
Fees for services: Legal | $658 |
Fees for services: Accounting | $41,772 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $170,038 |
Advertising and promotion | $0 |
Office expenses | $62,001 |
Information technology | $53,444 |
Royalties | $0 |
Occupancy | $63,935 |
Travel | $247,155 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $55,945 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $10,622 |
All other expenses | $0 |
Total functional expenses | $4,187,970 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $1,681,246 |
Savings and temporary cash investments | $0 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $54,933 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $5,309,235 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $510,344 |
Total assets | $7,555,758 |
Accounts payable and accrued expenses | $149,010 |
Grants payable | $353,268 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $388,177 |
Total liabilities | $890,455 |
Net assets without donor restrictions | $6,665,303 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $7,555,758 |
Over the last fiscal year, Fanconi Cancer Foundation has awarded $1,505,098 in support to 11 organizations.
Grant Recipient | Amount |
---|---|
STAND UP TO CANCER | | | $375,000 |
NATIONAL CANCER INSTITUTE | | | $369,154 |
ALPHA OMEGA ALPHA HONOR MEDICAL SOCIETY OREGON UNIVERSITY | | | $100,000 |
STANFORD UNIVERSITY | | | $265,834 |
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK | | | $78,334 |
THE ROCKEFELLER UNIVERSITY | | | $64,492 |