Northwest Rett Syndrome Association
- Assets
- $51.5k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Seattle, WA
- Founding
- 12/1989
- Data as of
- 12/2021
- EIN
- 93-0979668
Organization Overview
Northwest Rett Syndrome Association is located in Seattle, WA. The organization was established in 1989. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Northwest Rett Syndrome Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Northwest Rett Syndrome Association generated $17.9k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 5 years, the organization has seen revenues fall by an average of (3.6%) each year. All expenses for the organization totaled $9.7k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (6.8%) per year over the past 5 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2021
Describe the Organization's Program Activity:
Part 3
THE ORGANIZATION EXPANDED ONLINE PRESENCE THROUGH A ZOOM ACCOUNT TO CARRY OUT WEBINARS. THE ORGANIZATION HOSTED ONE RETT CLINIC LUNCH.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Glenn Lawson Treasurer | 1 | $0 | |
Sharon Sutherland Board Member | 1 | $0 | |
Megan Brown President | 1 | $0 | |
Gary Kostenko Board Member | 1 | $0 | |
Phillip Baird Board Member | 1 | $0 | |
Lexy Deitchler Board Member | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $17,659 |
| Total Program Service Revenue | $0 |
| Membership dues | $150 |
| Investment income | $47 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $17,856 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $4,600 |
| Occupancy, rent, utilities, and maintenance | $1,456 |
| Printing, publications, postage, and shipping | $2,201 |
| Other expenses | $1,411 |
| Total expenses | $9,668 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $51,513 |
| Other assets | $0 |
| Total assets | $51,513 |
| Total liabilities | $0 |
| Net assets or fund balances | $51,513 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
The Bleeding Disorder Foundation Of Washington Shoreline, WA | $413,904 | $376,812 |
Team Telomere Inc Coeur D Alene, ID | $469,889 | $298,127 |
Vivian Lee Foundation Newberg, OR | $74,914 | $0 |
Coffin-Siris Syndrome Foundation Kirkland, WA | $110,646 | $0 |
Recurrent Pregnancy Loss Association Seattle, WA | $106,809 | $0 |
Road Runners Club Of America Portland, OR | $68,533 | $0 |
Northwest Rett Syndrome Association Seattle, WA | $51,513 | $0 |
Evergreen Spina Bifida Association Inc Colbert, WA | $24,123 | $0 |
Washington State Neurofibromatosis Families Kent, WA | $20,653 | $0 |
Hnrnp Family Foundation Seattle, WA | $129,037 | $0 |