The Bleeding Disorder Foundation Of Washington is located in Shoreline, WA. The organization was established in 1999. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Bleeding Disorder Foundation Of Washington employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Bleeding Disorder Foundation Of Washington is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2020, Bleeding Disorder Foundation Of Washington generated $553.7k in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 7.2% each year. All expenses for the organization totaled $390.6k during the year ending 12/2020. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
ADVOCATE FOR ACCESS TO CARE FOR THOSE LIVING WITH BLEEDING DISORDERS. WITH BLEEDING DISORDERS BEING ONE OF THE MOST EXPENSIVE MEDICAL CONDITIONS TO MANAGE, ACCESS TO CARE CONTINUES TO BE A CHALLENGE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CAMP I-VY: CAMP I-VY IS THE HEART OF THE BLEEDING DISORDER COMMUNITY. EACH YEAR FOR OVER 30 YEARS, MEMBERS OF THE BLEEDING DISORDER COMMUNITY HAVE COME TOGETHER DURING THE SUMMER TO LEARN ABOUT BLEEDING DISORDERS IN A 24/7 MEDICALLY SAFE CAMP. OUR MEDICAL SERVICES ARE DONATED BY BLOODWORKS NW AND SEATTLE CHILDREN'S HOSPITAL. THE BDFW PROVIDES CAMP I-VY PROGRAMS TO NEWLY DIAGNOSED YOUTH AND TEEN CAMPERS AND THEIR PARENTS. AGES 0 TO 10 ARE SERVED THROUGH CAMP I-VY JR. AND CAMPERS 7 TO 15 ARE SERVED THROUGH CAMP I-VY. CAMPERS ARE TAUGHT HOW TO SELF-INFUSE THEIR LIFE SAVING MEDICATION, LEARN TO ASK QUESTIONS OF MEDICAL PROVIDERS AND BUILD RELATIONSHIPS WITH MENTORS FROM THE BLEEDING DISORDER COMMUNITY.
EDUCATIONAL OUTREACH: EDUCATIONAL OUTREACH IS A KEY COMPONENT OF THE BDFW MISSION. DUE TO THE RARITY OF BLEEDING DISORDERS, EDUCATIONAL SEMINARS ARE CHALLENGING TO COME ACROSS. THE BDFW EDUCATIONAL PROGRAMS PROVIDE INFORMATION ON OVER 30 TOPICS INCLUDING: EMERGENCY MANAGEMENT, GOING TO SCHOOL WITH A BLEEDING DISORDER, SIBLING ISSUES, INSURANCE CHALLENGES, AFFORDABLE CARE ACT IMPLICATIONS, PHYSICAL THERAPY, HOW TO BE ACTIVE, AND MANY MORE. OUR EDUCATIONAL EVENTS REACH ALL DEMOGRAPHICS OF THE COMMUNITY FROM THE NEWLY DIAGNOSED, TO THE OLDER POPULATION. IN ADDITION, WE PROVIDE EDUCATIONAL EVENTS ON BOTH THE EAST AND WEST SIDE OF THE MOUNTAINS TO ENSURE ALL THOSE WITH BLEEDING DISORDERS HAVE THE OPPORTUNITY TO RECEIVE THE CRITICAL INFORMATION THEY NEED.
ADVOCAY: THE BLEEDING DISORDER FOUNDATION OF WASHINGTON ADVOCATES FOR ACCESS TO MEDICAL CARE AND PRODUCTS FOR THOSE WITH BLEEDING DISORDERS. ON AVERAGE, 40% OF THE BLEEDING DISORDER COMMUNITY RECEIVE THEIR MEDICAL CARE THROUGH STATE OR FEDERALLY FUNDED INSURANCE PROGRAMS. ACCESS TO MEDICAL CARE IS CRITICAL FOR INDIVIDUALS WITH BLEEDING DISORDERS.
SOCIAL SERVICES: CONSTITUENT SERVICES CONSIST OF A MEDICAL ASSISTANCE PROGRAM AND MANAGEMENT AND SUPPORT SERVICES. THE MEDICAL ASSISTANCE PROGRAM PROVIDES FINANCIAL ASSISTANCE TO INDIVIDUALS THAT ARE EXPERIENCING FINANCIAL HARDSHIP BUT HAVE MEDICAL NEEDS SUCH AS HELP WITH TRAVEL AND/OR LODGING FOR MEDICAL APPOINTMENTS, MEDICAL EQUIPMENT THAT IS NOT COVERED BY INSURANCE AND ASSISTANCE FOR FAMILIES WHILE A CHILD IS IN THE HOSPITAL. CONSTITUENT MANAGEMENT AND SUPPORT SERVICES PROVIDE PROFESSIONAL STAFF ASSISTANCE TO MEMBERS OF THE COMMUNITY TO HELP THEM MANAGE THE CHALLENGES OF THEIR CHRONIC CONDITION INCLUDING INSURANCE NAVIGATION, SCHOOLING OPTIONS, MANAGING STRESS AND PERSONAL ADVOCACY FOR THEIR HEALTHCARE NEEDS.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Stephanie Simpson Executive Director | Officer | 40 | $114,900 |
Katie Dawdy President | OfficerTrustee | 2 | $0 |
Jessica Whittaker Secretary | OfficerTrustee | 4 | $0 |
Alison Yena Vice President | OfficerTrustee | 2 | $0 |
Chris Bucholz Treasurer | OfficerTrustee | 2 | $0 |
Chyna Lockhart Board Member | Trustee | 2 | $0 |
Statement of Revenue | |
---|---|
Total Revenue from Contributions, Gifts, Grants & Similar | $505,422 |
Investment income | $241 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $553,736 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $114,900 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $114,530 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $13,800 |
Payroll taxes | $18,591 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $10,763 |
Fees for services: Lobbying | $36,000 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $2,818 |
Advertising and promotion | $2,654 |
Office expenses | $7,445 |
Information technology | $564 |
Royalties | $0 |
Occupancy | $9,420 |
Travel | $1,341 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $0 |
Payments to affiliates | $3,000 |
Depreciation, depletion, and amortization | $0 |
Insurance | $6,568 |
All other expenses | $0 |
Total functional expenses | $390,642 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $575,119 |
Savings and temporary cash investments | $87,529 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $146,000 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $4,451 |
Investments—publicly traded securities | $10,000 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $823,099 |
Accounts payable and accrued expenses | $25,256 |
Grants payable | $51,300 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $76,556 |
Net assets without donor restrictions | $0 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Total liabilities and net assets/fund balances | $746,543 |
Over the last fiscal year, we have identified 3 grants that The Bleeding Disorder Foundation Of Washington has recieved totaling $28,199.
Awarding Organization | Amount |
---|---|
Goldman Sachs Philanthropy Fund New York, NY PURPOSE: MEDICAL / PUBLIC SERVICES | $20,000 |
Hemophilia Alliance Foundation Lansdale, PA PURPOSE: PROMOTE HEMOPHILIA | $8,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $199 |
Beg. Balance | $5,783 |
Ending Balance | $5,783 |
Organization Name | Assets | Revenue |
---|---|---|
Provail Seattle, WA | $17,228,128 | $20,920,912 |
The Bleeding Disorder Foundation Of Washington Shoreline, WA | $823,099 | $553,736 |
Ladybug Cdh Foundation Portland, OR | $62,481 | $0 |
Vivian Lee Foundation Newberg, OR | $91,522 | $0 |
Northwest Rett Syndrome Foundation Inc Seattle, WA | $51,513 | $0 |
Recurrent Pregnancy Loss Association Seattle, WA | $99,101 | $0 |
Evergreen Spina Bifida Association Inc Colbert, WA | $24,123 | $0 |
Washington State Neurofibromatosis Families Kent, WA | $20,653 | $0 |