Rory Belle Foundation

Organization Overview

Rory Belle Foundation is located in Denver, CO. According to its NTEE Classification (H20) the organization is classified as: Birth Defects & Genetic Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Rory Belle Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2023, Rory Belle Foundation generated $214.8k in total revenue. All expenses for the organization totaled $5.2k during the year ending 12/2023. While expenses have increased by 55.7% per year over the past 2 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2023

Describe the Organization's Mission:

Part 3 - Line 1

TO BRING ONE MORE DAY OF JOY TO KIDS AND FAMILIES BATTLING NARS1 DISEASE

Describe the Organization's Program Activity:

Part 3 - Line 4a

NARS1 GENETIC RESEARCH ACCOMPLISHMENTS: CONTINUED FUNDRAISING TO SUPPORT FUTURE GRANT PROGRAMS. ESTABLISHED A NETWORK OF SCIENTIFIC RESOURCES AND BEGAN COLLABORATION ON SEVERAL KEY INITIATIVES. FACILITATED PATIENT REGISTERY THROUGH OUTREACH TO NARS1 POPULATION. ESTABLISHED BIOREPOSITORY.


NARS 1 DRUG REPURPOSING ACCOMPLISHMENTS: COLLABORATED WITH ACADEMIC INSTITUTION THAT COMPLETED INITIAL SCREENING ANALYSIS OF AVAILABLE COMPOUNDS. HELD FUNDRAISING EVENT TO SUPPORT FUTURE DRUG REPURPOSING STUDIES.


NARS1 RARE DISEASE AWARNESS ACCOMPLISHMENTS: BOARD MEMBERS ATTENDED SEVERAL CONFERENCES. RECEIVED GRANT TO FUND TRANSLATION SERVICES TO BETTER CONNECT WITH NON-ENGLISH SPEAKING PATIENT POPULATION. BEGAN SELLING FOUNDATION BRANDED MERCHANDISE.


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Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$58,540
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$135,226
Noncash contributions included in lines 1a–1f $21,660
Total Revenue from Contributions, Gifts, Grants & Similar$193,766
Total Program Service Revenue$0
Investment income $3,499
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $16,680
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $805
Miscellaneous Revenue$0
Total Revenue $214,750

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