Movement Disorders Foundation
- Assets
- $664.1k
- Revenue
- $147.6k
- Investments
- $0.0
- Employees
- 0
- Location
- Englewood, CO
- Founding
- 01/2011
- Data as of
- 12/2023
- EIN
- 27-1618835
Organization Overview
Movement Disorders Foundation is located in Englewood, CO. The organization was established in 2011. According to its NTEE Classification (H20) the organization is classified as: Birth Defects & Genetic Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Movement Disorders Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Movement Disorders Foundation generated $147.6k in total revenue. The organization has seen a slow decline revenue. Over the past 6 years, revenues have fallen by an average of (0.9%) each year. All expenses for the organization totaled $108.4k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
WE HELP PEOPLE WITH MOVEMENT DISORDERS LIVE BETTER LIVES THROUGH COLLABORATIVE PARTNERSHIPS WITH THOSE WHO CONDUCT INNOVATIVE RESEARCH, OFFER PATIENT-FOCUSED EDUCATION OR PROVIDE UNIQUE CARE SERVICES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH PROJECTS FUNDED BY THE MOVEMENT DISORDERS FOUNDATION GRANT FUNDING PROGRAM MUST HAVE A CLEAR POSSIBILITY OF WORKING AT SCALE AND FOR WHICH GRANT FUNDING HAS BEEN OTHERWISE DIFFICULT TO OBTAIN. IN 2023, THE ORGANIZATION RESTRUCTURED ITS GRANT FUNDING PROGRAM TO SUPPORT EARLY-CAREER RESEARCH SCIENTISTS IN THEIR ADVANCEMENT OF HIGH RISK/HIGH REWARD TRANSLATIONAL AND/OR CLINICAL RESEARCH THAT ADVANCES THE UNDERSTANDING, TREATMENT OR PREVENTION OF MULTIPLE MOVEMENT DISORDERS. SUBSEQUENTLY, THE ORGANIZATION DID NOT AWARD ANY GRANTS IN 2023. THE NEW YOUNG INVESTIGATOR PILOT GRANT PROGRAM FORMALLY LAUNCHED IN FEBRUARY 2024 WITH AN INVITATIONAL REQUEST FOR PROPOSALS TO RESEARCH INSTITUTIONS IN THE UNITED STATES, CANADA AND UNITED KINGDOM.
MOVEMENT DISORDERS FOUNDATION'S ENEWSLETTER PROVIDES IMPORTANT NEWS, INFORMATION AND RESOURCES EACH THURSDAY FOR INDIVIDUALS LIVING WITH MOVEMENT DISORDERS AND THEIR CARE PARTNERS. NOW IN ITS SECOND YEAR, THE MDF ENEWSLETTER REACHES OVER 3000 PEOPLE EACH WEEK WITH MORE THAN 1600 ACTIVE READERS.
MOVEMENT DISORDER FOUNDATION'S HUNTINGTON'S DISEASE (HD) CLINIC PROVIDES AN ELITE TEAM APPROACH TO HD CARE AND RESEARCH. PATIENTS BENEFIT FROM EXPERT NEUROLOGISTS, PSYCHIATRISTS, SOCIAL WORKERS, THERAPISTS, COUNSELORS AND OTHER PROFESSIONALS WHO HAVE EXTENSIVE EXPERIENCE WORKING WITH FAMILIES AFFECTED BY THE DISEASE AND WHO WORK COLLABORATIVELY TO HELP FAMILIES PLAN THE BEST HD CARE PROGRAM THROUGHOUT THE COURSE OF THE DISEASE. WITH THE HUNTINGTON'S DISEASE SOCIETY OF AMERICA (HDSA), MOVEMENT DISORDERS FOUNDATION HELPS FUND AND ADMINISTERS THE CENTER OF EXCELLENCE AT THE ROCKY MOUNTAIN MOVEMENT DISORDERS CENTER, A COMPREHENSIVE CLINIC WHERE PATIENTS CAN VISIT WITH GENETIC COUNSELORS, PSYCHOLOGISTS, THERAPISTS AND PROVIDERS - AT NO CHARGE. THE CENTER OF EXCELLENCE DISTINCTION IS CONFERRED ON CLINICS WHO SHARE HDSA'S COMMITMENT TO HIGH-QUALITY, COMPREHENSIVE CARE AND ACCESS TO CLINICAL RESEARCH.
MOVEMENT DISORDERS FOUNDATION HOSTED ITS ANNUAL HUNTINGTON'S DISEASE FAMILY EDUCATION DAY SYMPOSIUM IN OCTOBER 2023. THE EVENT WAS HELD IN PERSON AND LATER STREAMED TO A COMBINED AUDIENCE OF OVER 60 PARTICIPANTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Eugene H Sobczak Executive Director | OfficerTrustee | 12.5 | $55,750 |
Betty Ross Chairperson | OfficerTrustee | 2 | $0 |
Morris Susman MD Secretary | OfficerTrustee | 1 | $0 |
Peter Mckown Treasurer | OfficerTrustee | 1 | $0 |
Rajeev Kumar MD Board Member | Trustee | 2 | $0 |
Sara Minott Board Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $5,300 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $110,778 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $116,078 |
| Total Program Service Revenue | $0 |
| Investment income | $30,650 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $147,641 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $55,750 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $433 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $26 |
| Fees for services: Other | $40,941 |
| Advertising and promotion | $0 |
| Office expenses | $386 |
| Information technology | $2,280 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $2,961 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $650 |
| All other expenses | $1,445 |
| Total functional expenses | $108,398 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $54,802 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $8,825 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $600,430 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $664,057 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $664,057 |
| Total liabilities and net assets/fund balances | $664,057 |
Grants Awarded
Over the last fiscal year, Movement Disorders Foundation has awarded $170,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
KIHA CO UNIVERSITY OF DENVER PURPOSE: Neurodegenerative disorders | $125,000 |
KIHA CO UNIVERSITY OF DENVER PURPOSE: Neurodegenerative disorders | $20,000 |
KIHA CO UNIVERSITY OF DENVER PURPOSE: Neurodegenerative disorders | $25,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Pachyonychia Congenita Fund Holladay, UT | $3,130,275 | $490,833 |
Ralston Volunteer Fire Department And Rescue Squad Inc Ralston, NE | $976,525 | $433,805 |
Newborn Hope Incorporated Colorado Springs, CO | $450,835 | $147,853 |
Minkoff Center For Jewish Genetics Dba Jewish Genetic Diseases Center Scottsdale, AZ | $836,999 | $106,155 |
Southwest Institute For Families And Children With Special Needs Phoenix, AZ | $137,623 | $219,226 |
Healthy Birth And Infant Brains Foundation Casper, WY | $725,524 | $96,677 |
Movement Disorders Foundation Englewood, CO | $664,057 | $147,641 |
Warner House Inc Oro Valley, AZ | $18,662 | $0 |
Mid-America Games For The Disabled Inc Overland Park, KS | $0 | $0 |
Rory Belle Foundation Denver, CO | $267,644 | $214,750 |
Finding Hope For Frrs1l Fort Collins, CO | $65,823 | $0 |