Riaan Research Initiative Inc

Organization Overview

Riaan Research Initiative Inc is located in Oakland Gardens, NY. According to its NTEE Classification (G05) the organization is classified as: Research Institutes & Public Policy Analysis, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Riaan Research Initiative Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 05/2023, Riaan Research Initiative Inc generated $788.1k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 2 years, the organization has seen revenues fall by an average of (27.9%) each year. All expenses for the organization totaled $219.3k during the year ending 05/2023. As we would expect to see with falling revenues, expenses have declined by (23.5%) per year over the past 2 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2023

Describe the Organization's Mission:

Part 3 - Line 1

TO CREATE A WORLD WHERE EVERY CHILD WITH A FATAL GENETIC DISEASE HAS A PATHWAY TOWARD TREATMENT. THE ORGANIZATION IS DEDICATED TO PROMOTING AND FURTHERING TRANSLATIONAL SCIENTIFIC RESEARCH TO ADVANCE TREATMENTS FOR SEVERE AND LIFE-TIMING GENETIC DISORDERS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

RESEARCH PROJECTS - RIAAN RESEARCH INITIATIVE IS DEDICATED TO ADVANCING, ACCELERATING, AND FUNDING TRANSLATIONAL SCIENTIFIC RESEARCH TO GENERATE TREATMENTS FOR SEVERE AND LETHAL NEURODEGENERATIVE GENETIC DISORDERS THAT IMPACT THE PEDIATRIC POPULATION SUCH AS COCKAYNE SYNDROME. THE ORGANIZATION'S PROGRAMMATIC AREAS INCLUDE SUPPORTING THE DEVELOPMENT OF COCKAYNE SYNDROME GENE REPLACEMENT THERAPY, AND DRUG REPURPOSING SCREENS BY PARTNERING WITH RESEARCHERS AND ACADEMIC INSTITUTIONS AND ISSUING GRANTS. GENE THERAPY WORK INVOLVES ACCELERATING THE DEVELOPMENT OF ADENOVIRUS VECTORS AND SUPPORTING PRE-CLINICAL TO CLINICAL RESEARCH STUDIES; THE ORGANIZATION'S DRUG REPURPOSING PROJECTS INVOLVE SCREENING SMALL MOLECULES TO IDENTIFY DRUGS THAT CAN HALT OR REVERSE NEURODEGENERATION IN THIS PATIENT POPULATION. THE ORGANIZATION ALSO PROVIDES EDUCATION AND RESOURCES TO THE MEDICAL AND RARE DISEASE COMMUNITY, THE MEDIA, AS WELL AS MEMBERS OF THE PUBLIC ON ADVANCEMENTS IN SCIENTIFIC RESEARCH AND GENERAL COCKAYNE SYNDROME AWARENESS AND MAINTAINS A PATIENT REGISTRY TO GATHER RELEVANT CLINICAL DATA FOR FUTURE TRIALS.


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Board, Officers & Key Employees

Name (title)Compensation
Gurjot Kaur
Founder/chair
$0
Ajit Singh
Secretary
$0
Aasees Kaur
Treasurer
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$787,156
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$787,156
Total Program Service Revenue$0
Investment income $989
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $788,145

Grants Awarded

Over the last fiscal year, Riaan Research Initiative Inc has awarded $336,631 in support to 2 organizations.

Grant RecipientAmount

UMASS MEDICAL SCHOOL

PURPOSE: RESEARCH PROJECT

$311,631

RAREBASE PBC

PURPOSE: RESEARCH PROJECT

$25,000
View Grant Profile

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