Riaan Research Initiative Inc

Organization Overview

Riaan Research Initiative Inc is located in Oakland Gardens, NY. According to its NTEE Classification (G05) the organization is classified as: Research Institutes & Public Policy Analysis, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Riaan Research Initiative Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

TO CREATE A WORLD WHERE EVERY CHILD WITH A FATAL GENETIC DISEASE HAS A PATHWAY TOWARD TREATMENT. THE ORGANIZATION IS DEDICATED TO PROMOTING AND FURTHERING TRANSLATIONAL SCIENTIFIC RESEARCH TO ADVANCE TREATMENTS FOR SEVERE AND LIFE-TIMING GENETIC DISORDERS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

RESEARCH PROJECTS - RIAAN RESEARCH INITIATIVE IS DEDICATED TO ADVANCING, ACCELERATING, AND FUNDING TRANSLATIONAL SCIENTIFIC RESEARCH TO GENERATE TREATMENTS FOR SEVERE AND LETHAL NEURODEGENERATIVE GENETIC DISORDERS THAT IMPACT THE PEDIATRIC POPULATION SUCH AS COCKAYNE SYNDROME. THE ORGANIZATION'S PROGRAMMATIC AREAS INCLUDE SUPPORTING THE DEVELOPMENT OF COCKAYNE SYNDROME GENE REPLACEMENT THERAPY, AND DRUG REPURPOSING SCREENS BY PARTNERING WITH RESEARCHERS AND ACADEMIC INSTITUTIONS AND ISSUING GRANTS. GENE THERAPY WORK INVOLVES ACCELERATING THE DEVELOPMENT OF ADENOVIRUS VECTORS AND SUPPORTING PRE-CLINICAL TO CLINICAL RESEARCH STUDIES; THE ORGANIZATION'S DRUG REPURPOSING PROJECTS INVOLVE SCREENING SMALL MOLECULES TO IDENTIFY DRUGS THAT CAN HALT OR REVERSE NEURODEGENERATION IN THIS PATIENT POPULATION. THE ORGANIZATION ALSO PROVIDES EDUCATION AND RESOURCES TO THE MEDICAL AND RARE DISEASE COMMUNITY, THE MEDIA, AS WELL AS MEMBERS OF THE PUBLIC ON ADVANCEMENTS IN SCIENTIFIC RESEARCH AND GENERAL COCKAYNE SYNDROME AWARENESS AND MAINTAINS A PATIENT REGISTRY TO GATHER RELEVANT CLINICAL DATA FOR FUTURE TRIALS.


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Board, Officers & Key Employees

Name (title)Compensation
Gurjot Kaur
Founder/chair
$0
Aasees Kaur
Treasurer
$0
Ajit Singh
Secretary
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$1,515,724
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$1,515,724
Total Program Service Revenue$0
Investment income $73
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,515,797

Grants Awarded

Over the last fiscal year, Riaan Research Initiative Inc has awarded $336,631 in support to 2 organizations.

Grant RecipientAmount

UMASS MEDICAL SCHOOL

Org PageRecipient Profile

Shrewsbury, MA

PURPOSE: RESEARCH PROJECT

$311,631

RAREBASE PBC

PURPOSE: RESEARCH PROJECT

$25,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Riaan Research Initiative Inc has recieved totaling $6,023.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$6,023
View Grant Recipient Profile

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