Concussion Legacy Foundation Inc
- Assets
- $3.6m
- Revenue
- $2.7m
- Investments
- $0.0
- Employees
- 11
- Location
- Boston, MA
- Founding
- 01/2009
- Data as of
- 12/2021
- EIN
- 77-0689904
Organization Overview
Concussion Legacy Foundation Inc is located in Boston, MA. The organization was established in 2009. According to its NTEE Classification (G05) the organization is classified as: Research Institutes & Public Policy Analysis, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Concussion Legacy Foundation Inc employed 11 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Concussion Legacy Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Concussion Legacy Foundation Inc generated $2.7m in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (0.2%) each year. All expenses for the organization totaled $1.8m during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO ADVANCE THE STUDY, TREATMENT AND PREVENTION OF THE EFFECTS OF BRAIN TRAUMA IN ATHLETES AND OTHER AT-RISK GROUPS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CLF SUPPORTS MULTIPLE RESEARCH PROGRAMS FOCUSED ON CHRONIC TRAUMATIC ENCEPHALOPATHY (CTE) AND OTHER CONSEQUENCES OF BRAIN TRAUMA IN ATHLETES, VETERANS (PROJECT ENLIST) AND OTHERS. CLF LEADS OUTREACH, RECRUITING, AND EDUCATION EFFORTS FOR THE VETERANS AFFAIRS (VA) BOSTON HEALTHCARE SYSTEM-BOSTON UNIVERSITY (BU)-CLF BRAIN BANK. IT IS THE WORLD'S LARGEST CTE BRAIN BANK WITH OVER 1,000 BRAINS DONATED, OVER 600 CASES OF CTE IDENTIFIED AND MORE THAN 100 ACADEMIC PAPERS PUBLISHED. OVER 100 RESEARCH TEAMS AT 50 INSTITUTIONS AROUND THE WORLD HAVE RECEIVED TISSUE FROM THE BRAIN BANK FOR ADDITIONAL STUDIES. THE CLF BRAIN DONATION AND CLINICAL RESEARCH REGISTRY HAS RECRUITED NEARLY 8,000 BRAIN DONATION PLEDGES AND RECRUITED FOR FOUR CLINICAL RESEARCH STUDIES. THE CLF GLOBAL BRAIN BANK ENABLES SIMILAR COLLABORATIONS WITH THE AUSTRALIAN SPORTS BRAIN BANK, THE UNIVERSITY OF SAO PAULO (BRAZIL), AND THE UNIVERSITY OF AUCKLAND (NEW ZEALAND). CLF PROVIDED FUNDING FOR RESEARCH AT BOSTON UNIVERSITY SCHOOL OF MEDICINE AND THE UNIVERSITY OF SAO PAULO.
CLF PATIENT AND FAMILY SERVICES IS THE LEADING DIGITAL EDUCATION RESOURCE FOR FAMILIES STRUGGLING WITH POSSIBLE CTE OR POST-CONCUSSION SYNDROME (PCS). THE CLF HELPLINE PROVIDED OVER 2,000 PATIENTS AND FAMILIES WITH PERSONALIZED REFERRALS, EDUCATION, AND MENTORS. CLF EARNED MEDIA EFFORTS RESULTED IN PLACEMENT OF OVER 100 UNIQUE STORIES IN THE NY TIMES, USA TODAY, AP AND MORE. CLF'S NEW ZOOM WEBINARS HAD OVER 10,000 VIEWERS IN 2020. CLF ALSO EDUCATES THROUGH A NEWLY UPGRADED WEBSITE AND DYNAMIC SOCIAL MEDIA, WITH MORE THAN 43,000 FOLLOWERS ON TWITTER, 16,000 ON TWITTER, AND 8,000 ON INSTAGRAM. CLF FACEBOOK GROUPS FOR PATIENTS AND FAMILIES FIGHTING PCS OR POSSIBLE CTE HAVE OVER 1,000 MEMBERS.
CLF EDUCATES COACHES, PARENTS, ATHLETES, AND POLICY MAKERS THROUGH MULTIPLE PROGRAMS. THE CLF MEDIA PROJECT TRAINS SPORTS JOURNALISM STUDENTS AT 20 UNIVERSITIES ON HOW TO COVER CONCUSSIONS AND HAS CERTIFIED OVER 100 JOURNALISTS. CLF IS COMMITTED TO CHANGING POLICY IN SPORTS TO MAKE THEM SAFER FOR THE BRAIN. TO CREATE TOP-DOWN CHANGE, CLF LEADERSHIP SERVES ON VOLUNTEER ADVISORY BOARDS WHICH SET CONCUSSION POLICY FOR MULTIPLE PROFESSIONAL AND COLLEGIATE SPORTS ORGANIZATIONS, INCLUDING WORLD RUGBY, THE IVY LEAGUE, AND THE NATIONAL FOOTBALL LEAGUE PLAYERS ASSOCIATION. IN ADDITION, CLF PROMOTES SPECIFIC CHANGES TO SPORTS, INCLUDING REMOVAL OF HITS TO THE HEAD FROM YOUTH SPORTS LIKE FOOTBALL AND SOCCER, AND REDUCTION OF HITTING IN FOOTBALL PRACTICE AT THE HIGH SCHOOL, COLLEGE, AND PROFESSIONAL LEVELS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Christopher Nowinski CEO | Officer | 40 | $240,000 |
Tyler Maland Chief Impact Office | 40 | $118,827 | |
Peter Carfagna President/director | OfficerTrustee | 2 | $0 |
Matt Collier Vice-President/director | OfficerTrustee | 2 | $0 |
Barbara Piette Secretary/director | OfficerTrustee | 2 | $0 |
Scott Blackburn Treasurer/director | OfficerTrustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,607,221 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,607,221 |
| Total Program Service Revenue | $92,122 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,699,860 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $67,132 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $5,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $276,023 |
| Compensation of current officers, directors, key employees. | $14,294 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $623,147 |
| Pension plan accruals and contributions | $12,657 |
| Other employee benefits | $43,914 |
| Payroll taxes | $59,397 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $9,908 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $272,727 |
| Advertising and promotion | $187,521 |
| Office expenses | $59,751 |
| Information technology | $2,115 |
| Royalties | $0 |
| Occupancy | $84,369 |
| Travel | $23,688 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $564 |
| Insurance | $7,527 |
| All other expenses | $1,901 |
| Total functional expenses | $1,809,754 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $2,386,421 |
| Savings and temporary cash investments | $784,008 |
| Pledges and grants receivable | $330,211 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $14,784 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $36,192 |
| Total assets | $3,551,616 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $3,551,616 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,551,616 |
Grants Awarded
Over the last fiscal year, Concussion Legacy Foundation Inc has awarded $131,251 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
Boston, MA PURPOSE: RESEARCH GRANTS | $77,043 |
Boston, MA PURPOSE: RESEARCH | $54,208 |
Grants Recieved
Over the last fiscal year, we have identified 30 grants that Concussion Legacy Foundation Inc has recieved totaling $599,186.
| Awarding Organization | Amount |
|---|---|
Disabled American Veterans Charitable Service Trust Erlanger, KY PURPOSE: Health | $316,375 |
Boston Bruins Charitable Foundation Inc Boston, MA PURPOSE: COMMUNITY SUPPORT | $55,000 |
Goldman Sachs Charitable Gift Fund New York, NY PURPOSE: MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS | $41,000 |
Dennis M & Lois A Doyle Family Fdn Cincinnati, OH PURPOSE: CHARITABLE - OPERATING | $30,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $21,380 |
Robert Irvine Foundation Inc Tampa, FL PURPOSE: GENERAL SUPPORT | $15,000 |
Endowment Analysis
| Beg. Balance | $846,780 |
| Ending Balance | $846,780 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Next For Autism Inc New York, NY | $6,631,395 | $5,308,625 |
Concussion Legacy Foundation Inc Boston, MA | $3,551,616 | $2,699,860 |
Institute For Healthcare Optimization Inc Bedford, MA | $196,720 | $732,903 |
Foxg1 Research Inc Sands Point, NY | $2,520,850 | $2,803,193 |
Thanc Foundation Inc New York, NY | $5,679,438 | $1,339,976 |
Riaan Research Initiative Inc Oakland Gardens, NY | $1,140,975 | $1,515,797 |
Heart Valve Collaboratory Inc New York, NY | $181,917 | $300,000 |
Metco Directors Association Mattapan, MA | $43,534 | $0 |
Mho Research Foundation Inc New York, NY | $289,774 | $80,414 |
Association Of Professional Researchers For Advancement Waltham, MA | $199,920 | $0 |
The New York Glaucoma Research Institute New York, NY | $1,205,090 | $29,192 |
International Center For Integrative Systems Inc Cambridge, MA | $124,859 | $98,463 |